Annette

Post Covid | POTS | PEM | ME/CFS on the horizon |
Determined to avoid PEM at all costs.

[Annette @Annette121020]

@JohnVsJonVsME @_diatoma @emilyesfraser @PhillyPhile215 @ElizaCharley I wanted to DM you, but it looks like your messages aren’t open. I sent you an email last Wednesday instead.

[Annette @Annette121020]

Thank you for the excellent idea!
#JohnVsJonVsME
#GreatestMEdicalScandal
#MEAwarenessMonth
#MECFS
#severeME
#verysevereME
#LongCovid

@_diatoma @emilyesfraser @dualiejulie @PhillyPhile215 @ElizaCharley

[María Richardson @_diatoma]

Beautiful people, we want to close out this #MEAwarenessMonth with something fun & lighthearted that will both help highlight the #GreatestMEdicalScandal and allow you all to show off your humor, wit, and creativity. 🧵#ME #MECFS #LongCovid #ExposeMENow #MyalgicEncephalomyelitis

[Care 4 PAIS & ME/CFS @Care4PAISMECFS]

We are conducting a global online questionnaire on Post Acute Infection Syndromes (PAIS) in English and German.
Who can participate?
- Anyone who has developed chronic symptoms for longer than 12 weeks after an infection or another trigger (e.g. surgery, medication, mold)

[WE&ME Foundation @weandmecfs]

Mit großer Trauer nehmen wir Abschied von Judith, deren Engagement und Stärke die #MECFS -Community tief geprägt haben.Wir werden ihre Vision und ihren Einsatz weitertragen und in ihrem Sinne für die ME/CFS-Community kämpfen.

Unser aufrichtiges Mitgefühl und unsere Gedanken sind bei ihrer Familie, ihren Freund*innen und allen, die ihr nahe standen. Wir wünschen ihnen viel Kraft in dieser schweren Zeit.

Judiths Vermächtnis soll weiterleben – gemeinsam setzen wir uns für mehr Sichtbarkeit, Forschung und Unterstützung ein.

Vielen Dank an alle, die durch ihre Spenden an uns Judiths Anliegen unterstützen. 💙

https://t.co/VQn9WyFv1z

[Annette @Annette121020]

@CBammerMD Are you also measuring 3 or 5 hours after the test? I understand that in a healthy state, lactate levels should return to normal within an hour. What stands out most for me after such a test is that the levels stay high for many hours, so clearance isn’t working as it should.

[Putrino Lab @PutrinoLab]

I know today is a frightening day for many with #LongCOVID, #MECFS, chronic #lyme and other infection-associated chronic conditions. Today, all I can offer is a small piece of advice and a small piece of reassurance. Advice: please take care of yourselves and practice some 1/

[Annette @Annette121020]

@peony_386 @LebenWunder @LeitzkeMarco Furthermore, Prof. Wirth from @mitodicure lists nicotine patches as having vasodilating effects due to stimulation of NO release in his talk:
https://t.co/yrb7uPfRgl(last presentation at the bottom of this page, minute 18:00 onwards)

[Annette @Annette121020]

@peony_386 @LebenWunder @LeitzkeMarco ... ist es so, dass die in der Endothel-, also der inneren Schicht des Blutgefäßes – die Endothelzelle produziert durch die Gabe von Nikotin mehr Stickstoffmonoxid, was eine Vasodilatanz ist." ⬇️

[European ME Coalition (EMEC) @EMEC_advocacy]

Our heartfelt gratitude goes out to the MEPs who supported #MECFS patients but have unfortunately not been re-elected.

We warmly thank you for your dedication 💙

Jordi Cañas @jordi_canyas
Karsten Lucke @karstenlucke
Sirpa Pietikäinen @spietikainen
Chris MacManus @MacManusChris

[European ME Coalition (EMEC) @EMEC_advocacy]

🇳🇱 The Netherlands (2)

Mohammed CHAHIM (S&D) @MChahim
Raquel GARCÍA HERMIDA-VAN DER WALLE (Renew) @RaquelGarciaHer

[European ME Coalition (EMEC) @EMEC_advocacy]

🇧🇬 Bulgaria (1)
Radan KANEV (EPP) @rmkanev

🇮🇪 Ireland (1)
Luke Ming FLANAGAN (The Left) @lukeming

🇩🇰 Denmark (1)
Per CLAUSEN (The Left) @PerClausen3

🇪🇸 Spain (1)
Antoni COMÍN I OLIVERES (Junts UE - Non-attached ) @toni_comin

[European ME Coalition (EMEC) @EMEC_advocacy]

🇧🇪 Belgium (6)

Pascal ARIMONT (EPP) @pascal_arimont
Kathleen VAN BREMPT (S&D) @kvanbrempt
Johan VAN OVERTVELDT (ECR) @jvanovertveldt
Assita KANKO (ECR) @Assita_Kanko
Barbara BONTE (ID) @Barbarabonte
Liesbet SOMMEN (EPP) @LiesbetSommen

[European ME Coalition (EMEC) @EMEC_advocacy]

🇫🇷 France (8)
...
Majdouline SBAI (Greens) @majdoulinesbai

🇩🇪 Germany (3)

Katrin LANGENSIEPEN (Greens) @k_langensiepen
Jutta PAULUS (Greens) @JuttaPaulusRLP
Tiemo WÖLKEN (S&D) @woelken

[European ME Coalition (EMEC) @EMEC_advocacy]

🇫🇷 France (8)

Raphaël GLUCKSMANN (S&D) @rglucks1
Christophe CLERGEAU (S&D) @clergeau
Nora MEBAREK (S&D) @MebarekNora
Marie TOUSSAINT (Greens) @marietouss1
David CORMAND (Greens) @DavidCormand
Mélissa CAMARA (Greens) @CAMARAMlissa2
Mounir SATOURI (Greens) @MounirSatouri
...

[European ME Coalition (EMEC) @EMEC_advocacy]

🇦🇹 Austria (8)

Günther SIDL (S&D)
Andreas SCHIEDER (S&D) @SCHIEDER
Hannes HEIDE (S&D) @HannesHeide
Lukas MANDL (EPP) @lukasmandl
Alexander BERNHUBER (EPP)
Helmut BRANDSTÄTTER (Renew) @HBrandstaetter
Thomas WAITZ (Greens) @thomaswaitz
Lena SCHILLING (Greens) @LenaSchilling1

[European ME Coalition (EMEC) @EMEC_advocacy]

Congratulations to the 31 new and re-elected MEPs who signed the #MECFS pledge! We are very grateful for your support and wish you lots of success in the new parliamentary term.

[Annette @Annette121020]

@_diatoma @LastWeekTonight @iamjohnoliver #JohnvsJonvsME
#GreatestMEdicalScandal

It looks promising that @iamjohnoliver already included this one in the Medicaid episode:

[Katharina 🦋🍀 @katha1970]

Dear #MEsuperstarjournalists, you are tagged in this thread because you have reported on #MECFS or #LongCovid in the past. Firstly, thank you for this. Given the unimaginable burden of disease, paired with medical neglect, gaslighting and still so little public awareness,...
1/

[Katharina 🦋🍀 @katha1970]

@Annette121020 @DoktorWhatson @FrauXausNRW @TimoStrotmann @thephysicsgirl @Not_Recovered @maithi_nk @LygiaNavarro Well, I do really like the term "superstar journalist" and would love for it to stick. Any journalist helping to spread awareness for #MECFS and #LongCovid is a superstar and if enough start reporting they could truly change the lives of millions 🙏

#MEsuperstarjournalists 🫶

[Annette @Annette121020]

@katha1970 @DoktorWhatson @FrauXausNRW @TimoStrotmann @thephysicsgirl @Not_Recovered @maithi_nk @LygiaNavarro I completely agree! That's exactly what I meant and why the term has really stuck in my head as well.
#MEsuperstarjournalists 🙏