@AnonsInTheVoid@bennessb
Anyone else in the #NEISvoid fighting with #IntersticialCystitis ?
It's a wicked curse. Haven't had a flare this bad in a while, thank God, but OUCH it's a nightmare.
Would love to connect with others who suffer & chat ideas/solutions or just vent.
Dear Twitterverse, does anyone in my follower list know of a clinic / geriatric rehab center in the vicinity of Berlin that works with patients suffering from postoperative delirium?
#NEISVoid
Everyone please hit me with your PANDAS knowledge.
My daughter - 17, autistic, ID, OCD - has wicked high WBCs and platelets. She cycles through intense OCD periods. Her psychiatrist has noticed they're worse following illness and suggested PANDAS.
@AnonsInTheVoid#NEISvoid
I just found out my family has a history of lupus and while my “mystery illness” shares almost all of its symptoms, including the face rash, I had a negative ANA screen last year. Is it still worth looking into, or there is absolutely no way I have it?
#NEISVoid one of void-ers has surgery the first week of October, & they could really use help to get their apartment set up by then
https://t.co/NG8FYTjfRT
#NEISVoid I hope it's obvious for most but here's your reminder that if you're anti-mask/anti-vax/pandemic minimiser or denier you're not welcome here and you will be blocked
Hello fellow #chronicfolks.
After yrs of procrastination, I'm finally accepting that I need to wear compression socks.
I'm petite (US shoe size 5.5/EU 35/36) but have medium-sized calf.
Can you recommend brand that doesn't dig in under the knee & isn't difficult to put on?
@jisici If I started a weekly Zoom for #neisvoid peeps, not for chronic illness support, but just to socialize, maybe around topics or maybe just getting to know each other, how many would attend if it fit your schedule?
@bennessb
[ DV / IPV ]
#NEISVoid Can anyone recommend any online peer-support groups (like on Discord) that are similar to the Void and for people navigating emotional & psychological abuse? 1/2
How do I firmly advocate for a single room when that’s not written anywhere in my disability accommodations for school? I’ll sleep with a mask on if I have to but I’d rather try and get a better option worked out. 2/2
#NEISVoid My master’s program is mostly online, but we meet in-person one weekend each term. This semester, it’s in August, and we’ll be staying somewhere with dorms. I’m high risk for COVID and I’m uncomfortable with this. 1/2