anons shouting into the NEISVoid

place to ask anonymous questions or tell stories for the #NEISVoid - DM and I'll post it | run by @undercafeinated

[Rebecca Randel, MPH, BCPA @rebeccarandel]

Much thanks to a redditor for posting this chart in the #fibromyalgia sub.

#ChronicFolks - Can you dig it?

#NEISvoid #DisablityTwitter #ChronicPain #health #women #autoimmune #spoonies #chronicillness #chronicallyill #LongCovid #longhaulers @AnonsInTheVoid #spoonie #MECFS #pain

[Kym Davis @kymdavis73]

@AnonsInTheVoid @bennessb
Anyone else in the #NEISvoid fighting with #IntersticialCystitis ?
It's a wicked curse. Haven't had a flare this bad in a while, thank God, but OUCH it's a nightmare.

Would love to connect with others who suffer & chat ideas/solutions or just vent.

[Halvar Flake @halvarflake]

Dear Twitterverse, does anyone in my follower list know of a clinic / geriatric rehab center in the vicinity of Berlin that works with patients suffering from postoperative delirium?

[anons shouting into the NEISVoid @AnonsInTheVoid]

#NEISVoid
Everyone please hit me with your PANDAS knowledge.

My daughter - 17, autistic, ID, OCD - has wicked high WBCs and platelets. She cycles through intense OCD periods. Her psychiatrist has noticed they're worse following illness and suggested PANDAS.

[Lolo Haroutunian 👋🏼 @laurasaurusrex]

@AnonsInTheVoid #NEISvoid
I just found out my family has a history of lupus and while my “mystery illness” shares almost all of its symptoms, including the face rash, I had a negative ANA screen last year. Is it still worth looking into, or there is absolutely no way I have it?

[anons shouting into the NEISVoid @AnonsInTheVoid]

#NEISVoid one of void-ers has surgery the first week of October, & they could really use help to get their apartment set up by then
https://t.co/NG8FYTjfRT

[anons shouting into the NEISVoid @AnonsInTheVoid]

@1baldchick oh sorry, quote tweet/retweet (it appears between no or retweets and no of likes

[anons shouting into the NEISVoid @AnonsInTheVoid]

@1baldchick just realised I forgot to tag you in the qrt, so you may want to periodically check it for comments (sorry!)
sam

[anons shouting into the NEISVoid @AnonsInTheVoid]

#NEISVoid any ideas? (QRT so that more people can answer)

[anons shouting into the NEISVoid @AnonsInTheVoid]

#NEISVoid I hope it's obvious for most but here's your reminder that if you're anti-mask/anti-vax/pandemic minimiser or denier you're not welcome here and you will be blocked

[anons shouting into the NEISVoid @AnonsInTheVoid]

@1baldchick (would you like me to QRT it as well so that more ppl can answer, or do you prefer to keep it only to ppl that you follow?)
sam

[Rebecca Randel, MPH, BCPA @rebeccarandel]

Hello fellow #chronicfolks.

After yrs of procrastination, I'm finally accepting that I need to wear compression socks.

I'm petite (US shoe size 5.5/EU 35/36) but have medium-sized calf.

Can you recommend brand that doesn't dig in under the knee & isn't difficult to put on?

[Kym Davis @kymdavis73]

@jisici If I started a weekly Zoom for #neisvoid peeps, not for chronic illness support, but just to socialize, maybe around topics or maybe just getting to know each other, how many would attend if it fit your schedule?

@bennessb

[anons shouting into the NEISVoid @AnonsInTheVoid]

[ DV / IPV ]

Asking for an allocishet white woman looking to make sense of what’s happening in a survivor-centered space. 2/2

[anons shouting into the NEISVoid @AnonsInTheVoid]

[ DV / IPV ]

#NEISVoid Can anyone recommend any online peer-support groups (like on Discord) that are similar to the Void and for people navigating emotional & psychological abuse? 1/2

[anons shouting into the NEISVoid @AnonsInTheVoid]

How do I firmly advocate for a single room when that’s not written anywhere in my disability accommodations for school? I’ll sleep with a mask on if I have to but I’d rather try and get a better option worked out. 2/2

[anons shouting into the NEISVoid @AnonsInTheVoid]

#NEISVoid My master’s program is mostly online, but we meet in-person one weekend each term. This semester, it’s in August, and we’ll be staying somewhere with dorms. I’m high risk for COVID and I’m uncomfortable with this. 1/2