Children with this disease don't survive beyond 2 yrs. He's fine now but is going to get weaker & won't be able to sit, swallow or breathe. There's only 1 treatment where he can be given a missing genetic code via virus. It's a one-shot cure & most expensive drug: Dr Anne Mathew
@nitinchandra09@ANI Thank you for supporting us. Link to the crowdfunding is below:
World's Costliest Drug Zolgensma Is Rehansh's Only Hope!
https://t.co/SCMUZzOBP8
Field specialist Dr Ann Agnes explaining SMA in simple words.@ANI
‘one spelling mistake’ must not take our child away. ‘Each one save one’.
Contribute as little as you can and it will help us filling the big pot.
https://t.co/jwzt8F4YCn
@SuchitraMukher2 @BRehansh@IamNaveenKapoor Litrally my eyes were full when doctor explaining about the fight of the little one. I wish India helps this family to save @BRehash
Delhi couple resorts to crowdfunding for treatment of their infant suffering from rare genetic disorder - The Daily Guardian
@SuchitraMukher2&
@MadhunaikBunty Report-ANI
@BRehansh@IamNaveenKapoor https://t.co/iIGJSEoOzr
Today we have crossed a mark of over
known and unknown 1000 donors who are fighting this battle along with us to save Rehansh.
Forever grateful & filled with gratitude
https://t.co/jwzt8ENnKP
#save_rehansh_from_sma
Delhi: Parents of 10-month-old Rehansh Suri seek crowdfunding support to avail treatment for him.
"He's suffering from Spinal Muscular Atrophy Type I, a rare genetic disease. He can only be treated with a US-based Gene therapy worth Rs 16 cr. We can't afford it," says his mother
Done my bit....humble request to everyone on my fleet to help save this child @BRehansh 💟 who's suffering a rare genetic disease Spinal Muscular Atrophy Type I
Crowd Funding Link is in the appended tweet
My prayers for his good health and recovery 🙏🙏🙏