Charlotte's Brain Tumour Journey
Diagnosis to Death: 951 days
Age 19
18.2.97 - 24.2.16
29.8.13
We left home at 10.45 am, as we had to be at The Marsden for 12.00 pm for Charlotte to have her Portacath fitted. This is a small medical device that provides long-term access to a major vein for her chemotherapy, replacing the need to have a cannula inserted each time.
Charlotte was understandably apprehensive. The port was going to be inserted on the right-hand side of her chest. We had been told that it was a relatively quick procedure. The surgeon would make an incision, create a small pocket beneath the skin, insert the port and then stitch everything back together. They had also implied that it wouldn't be particularly painful.
They took Charlotte into the theatre, and I stayed with her for as long as I could before they asked me to leave.
When she began to stir after the procedure, she was crying in pain.
"Get this out of me."
She told me that the pain was unbearable.
They gave her a considerable amount of pain relief, but sadly the pain was to continue for another ten days or so.
While we were at The Marsden, Charlotte was examined and we were reassured that, at this point, she was neurologically well.
For the moment, that was something to hold on to.
1.9.13
Today is Miles’ birthday. Later this month, he will be heading off to university, which should be such an exciting and happy time for all of us.
We are doing our best to celebrate with him today, but, inevitably, everything has been overshadowed by the situation we are facing with Charlotte.
Today, Charlotte has been suffering with severe indigestion and a slight headache, which is worrying me. I find myself constantly wondering whether the pressure in her head could be building up again. It is incredibly difficult not to worry when every new symptom makes you question what might be happening.
Her Portacath is really getting her down today too. She is resting a lot, and at the moment, all I can do is give her pain relief, keep her comfortable and hope that things improve.
It is so hard watching your child go through this, particularly on a day that should be filled with celebration. We are trying to make the most of Miles’s birthday and hold on to the happy moments, while hoping and praying that Charlotte has a better day tomorrow.
2.9.13
Back to The Marsden today for Charlotte to have her Vincristine administered.
Later in the evening Charlotte has been saying that her left arm feels very sore and heavy. I’ve given her pain relief, but unfortunately it doesn’t seem to be making any difference.
We have to go to the local hospital tomorrow, so I will make sure they check it then.
Another day, another hospital appointment.
It was becoming increasingly clear that our lives were now being governed by cancer. Every day seemed to revolve around hospitals, treatments, medications and the next appointment. There was very little space left for anything else.
If you would like to support, self-funding brain tumour charity where 100% of your donation goes directly to research in Charlotte's Lab at King's College Hospital, London, we would be incredibly grateful.
No salaries.
No overheads.
No advertising.
No merchandise.
We even cover the PayPal and PO Box fees personally so nothing is taken from the charity account.
https://t.co/mrMKrVYPrx
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He’s been hiding in pain for months. That all changed today.
Im not sure if we can save the leg as he’s a much older gentleman but we’ll do everything for him.
He’s a little nervous. I called him Chunks. Fingers crossed for his tests and treatment in the coming days 🤞
Scott and TPD Reggie have been training an article search with a passive indication ie not touching the article. Scott has been using several familiar articles to teach him the indication & today we added a new article.
Ella, TPD Ronnie and I have had an early morning walk, some training with TPD Ronnie, breakfast and now off to the Force Police dog trials. TPD Ronnie is charging around the garden with his toy & Ella is not leaving the van to make sure she doesn’t get left behind. ❤️
A man has been handed a Criminal Behaviour Order (CBO) in order to curb crime and disorder in the Glastonbury area.
Leslie Roper, 47, of Street Road, Glastonbury, appeared at Taunton Magistrates’ Court on Wednesday 26 August.
➡️ Read more: https://t.co/BFz4bdLybk
Timothee’s transformation is just magic! 🥺❤️🩹
Trapped in a tiny cage for his first 6 months, his back legs were severely underdeveloped. But he fought back with:
💧 Hydrotherapy to safely build muscle
🐾 Daily physio for mobility
🩹 Braces to realign his legs
Now? He is strong, confident, and running free! Best of all, today is his LAST day in a cone, so he brought his emotional corn plushy on his walkie to celebrate. 🌽🐶 Way to go, Timothee!
After a male decamped from his car and ran from officers, PD Sid wasn’t too far behind and picked up a track from where the offender was last seen. Sid tracked into a garden and over a fence where he located the offender trying to hide. Sid quickly reminded them not to run 💪🏼🐾
US Secretary of the Treasury Scott Bessent:
"We are going through an energy shock right now due to both the war in Ukraine, because Ukraine has decided that they want to blow up Russian energy assets and refine products, so that is creating upward price pressure on a global basis, and then the conflict in Iran. And the conflict in Iran will end."
Comment from me: the war in Iran has had significantly more impact on the global energy market than Ukrainian strikes diminishing Russia's capacity to wage a war of aggression against Ukraine.
We are appealing for the public's help to identify this man following an assault in Bristol earlier this month.
The man pictured is described as white, approximately 5ft 11ins tall, in his thirties, with short, dark hair.
➡️ Read more: https://t.co/UKjZt1d7Lj
Ursula von der Leyen:
Europe and NATO will not just maintain our pressure on Russia, we will increase it and we will not stop.
Not until Russia stops bombing and killing innocent children, men and women in Ukraine.
Officers investigating a suspected arson are appealing for witnesses.
On Tuesday 18 August a silver Hyundai Accent entered a ditch on the A361 East Compton Road in Shepton Mallet, before it was set alight later that day.
➡️ Read more: https://t.co/RytrQAqvh4
The National University of Food Technologies in the center of Kyiv after a Russian strike.
Thankfully, students and staff were in the shelter.
Just today, 7 people were injured in Kyiv by the Russian attacks.
A question for a BH Monday.
Are we seeing a decline in the use of X?
We hope it’s not us, (it might well be!), but we are noticing fewer new followers, as well as interactions with posts.
We are on Instagram - and Facebook - and Linekdin - and YouTube, but we are seriously considering no longer using X, as it seems to be fading away into a shadow of its former self.
What are your thoughts lovely followers?
Can you help identify the woman found murdered in Stanley Park?
Detectives investigating her death are urging anyone who may have information about her to come forward.
The officer leading the investigation explains why identifying her is vital and how even the smallest piece of information could make a difference.
Please watch, share, and contact police if you can help.
Information on how to get in touch is in this link https://t.co/MhTSLpsbPV
PD Sid was called into action after his handler located a stolen vehicle in the early hours. Once the offender realised he was being followed he ran from the vehicle and garden hopped until Sid caught up with him and detained him before he tried to jump a fence! One in custody 🐾
Miles and I return to school tomorrow, with an incredibly busy term ahead for both of us.
As there are only the two of us running the charity, it can be incredibly difficult to organise fundraising events ourselves. Quite simply, there just aren't enough hours in the day!
We are therefore so grateful to anyone who is willing to raise awareness and fundraise on our behalf.
One of those amazing people is Wendy, who will be running the Copenhagen Half Marathon on 20 September in support of our charity.
If you are able to donate, I know Wendy would be incredibly grateful and so would Miles and I.
Every donation, no matter how small, helps support the vital brain tumour research being carried out in Charlotte's Lab.
Thank you, Wendy, for taking on this incredible challenge for us.
And thank you to everyone who continues to support Charlotte's legacy and our work to make a difference.
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If you would like to support a self-funding brain tumour charity where 100% of your donation goes directly to research in Charlotte's Lab at King's College Hospital, London, we would be incredibly grateful. No salaries. No overheads. No advertising. No merchandise.
https://t.co/nlJoTXAvFH