Bea

This is the story of Bea; a violin-playing, theatre-performing tomboy with a disease so rare, it carries her namesake. Directed by @KoriFeener and #AllenMoore

[Bea @BeaTheFilm]

Congrats to Bea! 8th grade graduation complete! #documentary #beathefilm

[Bea @BeaTheFilm]

Bea, not yet awake, on the morning of her 8th grade graduation. Entering the final year of production! #beathefilm #documentary

[Global Genes @GlobalGenes]

#raredisease caregivers often spend more hours caregiving, face increased financial +emotional tolls, and provide longer duration of care. A new study from @NA4Caregiving and Global Genes aims to shed light on these issues so we can make changes. https://t.co/zBkz4ugk77

[Rare Disease Report @RareDR]

#RareDiseaseDay: @FDNA is calling patient advocacy groups, clinicians, labs and life sciences stakeholders to join the Genomics Collaborative, a group of research efforts using computational techniques and phenotypic data to analyze human genetics.

https://t.co/hgLlKax4uC

[Rare Disease Day US @RareDayUS]

What is #RareDiseaseDay? Learn more in video produced by #NORD (@RareDiseases) here: https://t.co/bi3ECxDEvb

[Rare Disease Report @RareDR]

#RareDiseaseDay: In observance of World Rare Disease Day, the @US_FDA has announced a collaboration with NORD (@RareDiseases), in which a pilot project would assist medical reviewers in better understanding rare disease patient experiences.

https://t.co/uAQVdQXIY5

[Rare Disease Day US @RareDayUS]

Please Share: Today is #RareDiseaseDay! — feeling excited

[Bea @BeaTheFilm]

On this #rarediseasesday think about making a tax deductible donation to #beathefilm - we are in need of finishing production funds to tell this incredible story of growing up w/ a rare condition: https://t.co/TsBEzGdy1d #Documentary

[Bea @BeaTheFilm]

Bea goofing around after singing holiday music for an elderly community. #beathefilm #RareDisease #genetics #identity

[Bea @BeaTheFilm]

Bea focused in Humanities. #beathefilm #documentary #raregenes #tgfbeta3

[EliseCook Foundation @ECFoundation]

https://t.co/t6daMR4wHg

[Bea @BeaTheFilm]

8th grade. How the time flies. Bea taking a Spanish exam #BeaTheFilm #documentary #raregenes

[Bea @BeaTheFilm]

Year three of production is almost complete as Bea turns 13. Here she is doing the marshmallow challenge in class.

[Bea @BeaTheFilm]

Bea learning about Greek Mythology at school. Year Three of filming.

[Bea @BeaTheFilm]

Beautiful day in California, and filming Miss Bea at school. #beathefilm #documentary #rarecondition

[Beacon for Rare Diseases @RareBeacon]

One in a million: little boy diagnosed with #raredisease so rare that is does not have a name http://t.co/WZaty923JX

[Bea @BeaTheFilm]

Bea, saying goodbye to her brother at #Putney

[Bea @BeaTheFilm]

Bea and Co-Director's @KoriFeener and @AllenMooreFilms after a wonderful shoot at Lassen. #raredisease #documentary

[Nathan Pearson @GenomeNathan]

Can't wait for @BeaTheFilm! Great hearing from Bea & #kickstarted team as they progress, step by step.

[Bea @BeaTheFilm]

@nickdawson thank you!