Beyond The Ramp

Getting out with #MECFS #FND #MCS #POTS #MS etc building a shared world #SocialModel of disability

[Beyond The Ramp @BeyondRamp]

Campaigning for an #MECFS Friendly world using the #SocialModel of disability It’s more than just ramps !

[Beyond The Ramp @BeyondRamp]

@AliceBowleyMBR @cfs_research @AlanCarson15 Are you on Instagram ? It’s much easier to be honest about real recovery there

[Matthew Yglesias @mattyglesias]

Fascinating piece from @nataliesurely.

I'm struck once again by how the shadow of mind-body dualism hangs heavily over the idea that a problem whose roots are in the brain is somehow "less real" than one emanating from elsewhere.

https://t.co/UvCgCO1I6z

[BreakingFree-ResettoThrive @FreefromCfs]

Focus is absolutely key to recovery. Look for tiny green shoots of recovery and make the brain notice you are safe to heal. X #longcovid #cfs #recovery #thrive #resettothrive https://t.co/Ep8kbQNtZw

[Jon Burke 🌍 @jonburkeUK]

The cooling effect of a single, young street tree is the same as 5 room-sized air conditioners operating 20 hours/day.

If every London borough had delivered the 50% increase in street trees that I did as a Hackney Cllr, we may have prevented the U.K’s first 40C+ heatwave.

[Dr Vivian Rath @RathVivian]

Today I was able to roll down the beach on my mobility scooter bcoz of the new beach mats in Rosslare leaving me able to get sand in my sandwiches like everyone else @visitwexford. #AccessibleTourism #UNCRPD @cllrlisamcd @struggleiswheel
@wexfordcoco @mccartpm @niamhnih

[Fiona @Fionas_Story]

I had so many years of not being able to ride my bike that it makes me feel like a child again when I go out on mine now. I stand up every time I whizz down a hill - best feeling in the world!🚴‍♀️

This was where I ended up last night #bikelife #mtb

[Beyond The Ramp @BeyondRamp]

#MSAwarenessWeek

[Paul @griffax09]

1. I have #invisibledisability
2. The symptoms I have are extreme pain head to toe, spasms in arms,hands,fingers,toes.I use a stick to walk with to help balance.I've problems with my bladder & bowels.
3. I was diagnosed 26 years ago,now SPMS
#MSAwarenessWeek
#MultipleSclerosis

[Beyond The Ramp @BeyondRamp]

Wonderful to see 😊

[Tom Plender @TomPlender]

Last weekend walking on Hastings beach we discovered this amazing submerged boat sculpture by artist Leigh Dyer. Having spent nearly a decade housebound with FND to now be recovering & able to go away & walk on the beach like this still feels really special.

[Beyond The Ramp @BeyondRamp]

“They will also have less access to safety, relief, and recovery support.
Women with disabilities are at increased risk of sexual violence.
Children with disabilities are more exposed to abuse and neglect.” https://t.co/xbzn27QBzQ

[HeartofKentHospice @heartofkenthosp]

New for 2022 our ‘mini Bluebell Walk’ offers a beautiful new route of 2.5 miles without stiles for little legs or those who feel less able to complete the full 6 mile walk.

This route also takes in part of the beautiful Bluebell Walk across the North Downs.

[[email protected] @WorldWheelchair]

LAKE DISTRICT, UK - Miles Without Stiles is a collection of 50 graded routes across the National Park that are suitable for wheelchair users. Check out the link for route and grading system details.
#wheelchair #accessibletourism #accessibility #travel

https://t.co/Sophr22lwi

[Jonnie Smith @Where2Walk]

Looking for a Miles without Stiles walk in the Dales above Kettlewell. Head up to Top Mere, down to Stabotton and return along the flanks of Birks.
Lovely....and empty. One couple in 3 hours.
#mileswithoutstiles
#Kettlewell
#yorkshiredales

[Beyond The Ramp @BeyondRamp]

Great tip

[mimi smartypants @mimismartypants]

If you are hiking in a group and waiting for slower people to catch up, don't start walking again when they do catch up, because then you got a rest and they didn't.

I think about this tip a lot, in many different contexts.

[Beyond The Ramp @BeyondRamp]

Always a problem - in order to get what we need we have to ‘complain’ It takes its toll as often however gently we raise the issues we get an aggressive or rude defensiveness in return. So a double whammy 🙁

[Shona @shonalouiseblog]

Fellow disabled activists, how do you manage criticising something you really love? I fear I’m on the brink of losing another favourite theatre show because I dared to challenge something about their access. I want to fight, but I don’t want to lose the show.

[Beyond The Ramp @BeyondRamp]

I love this time of year too with the promise of opportunities to get out into nature and not have to get togged up with multiple coats , covers and heat pads which makes getting out so tiring !

[Fiona @Fionas_Story]

I feel so impatient for spring to get here so I can get out on some proper walks again - this was taken last May on Catbells. Hiking was one of the things I missed most when I was ill. It is one of my greatest passions now

#chronicpain #mecfs

[FNDConnect @ConnectFnd]

The clue is in the name.

It’s 2022 and it’s not “FHD” (formerly hysteria disorder) or
“AIYHD” (all in your head disorder) or
“CD” (conversion disorder)
BUT:
FND (functional neurological disorder)

#FNDAware

Let’s show some respect for this painful, disabling condition!

[Beyond The Ramp @BeyondRamp]

Great to be able to enjoy this as we recover but we need access to these places and the healing power of nature at the start of our healing,as wheelchair users
All terrain wheelchairs eg Boma 7.5 from @EqualAdventure are unaffordable for most. We need more hire options!

[Fiona @Fionas_Story]

I took this photograph 3 years ago, right at the beginning of my attempts to rebuild my fitness. I used to go down this track in my wheelchair but could never get this far because of the rougher terrain

[David Hanscom @DrDavidHanscom]

Threat overwhlems our immune system. The key is thriving regardless of circumstances and upping your odds of survival.
https://t.co/uM8q4OioLf

[Beyond The Ramp @BeyondRamp]

‘Disabled’ means prevented from functioning
Opposite is ‘enabled’ eg

“iPhone 12 tips: 10 features you should enable and disable right away”

When we disable a feature we don’t say it’s a ‘phone with disabilities’
My phone is still a phone when I disable features

[Tanni Grey-Thompson @Tanni_GT]

Why are non disabled people afraid to used the word ‘disabled’?

[Beyond The Ramp @BeyondRamp]

@Tanni_GT ‘Disabled’ means prevented from functioning
Opposite is ‘enabled’ eg

“iPhone 12 tips: 10 features you should enable and disable right away”

When we disable a feature we don’t say it’s a ‘phone with disabilities’
My phone is still a phone when I disable features