Team Bill Duff

ALS Champion

[Team Bill Duff @BillDuff12]

@JustinTrudeau Canadians deserve better medical research. ALS needs funding to save Canadian lives like myself so my children can grow up with their father. Click the link to email your MP and inform them ALS needs funding. Please RT. #ALS #CaptureALS

https://t.co/YVF94EzKJi

[Greg Gowe @GregGowe]

Meet my son. He is one of Canada’s newest ALS advocates. He is 11.

He gave a speech to his school today. His topic was ALS. He didn’t win the competition, but he made sure his voice was heard.

I couldn’t be more proud.

[Team Bill Duff @BillDuff12]

@BrainstormCell @MDAorg Be pretty cool if you applied to the @US_FDA or even better @GovCanHealth #NurOwn.

[Team Bill Duff @BillDuff12]

@BrainstormCell today I asked my son what he wanted for his Birthday and he said he didn't know. Then he said I know what you want. To walk again. How much longer until you apply to the #FDA for #NurOwn?

[Candice Malcolm @CandiceMalcolm]

True North will pay $1,000 to anyone who can help identify the person flying the Nazi flag.

Who is he or she? Where is this photo taken? Are there any other photos, aside from this single shot making the rounds? Pls don’t doxx. DMs are open. Thank you 🙏

[Pierre Poilievre @PierrePoilievre]

Say it slowly: N.I.N.E-T.R.I.L.L.I.O.N-D.O.L.L.A.R.S.

[Brian Wallach @bsw5020]

Read the article below. It is now painfully clear that #NurOwn:

Is safe.
Is effective for those with an ALSFS above 26.
Impacts critical biomarkers.

And should be approved today through accelerated approval.

Submit the BLA now.

https://t.co/qCE6Fqa9Ea

[BrainStorm @BrainstormCell]

We are excited to share that @MuscleAndNerve just published the peer reviewed clinical data for the phase 3 study of #NurOwn for ALS, with the totality of evidence showing the potential for NurOwn to be a successful treatment. https://t.co/z33H3gzbxT

[ALS Action Canada @ALSAction]

Every person in Canada who is diagnosed with ALS should be informed about genetic testing and the cost should be covered under provincial health care plans.

#HealthEquity #EndALS

[Team Bill Duff @BillDuff12]

@BrainstormCell Please apply to @GovCanHealth stop sitting on Nurown .

[Team Bill Duff @BillDuff12]

I entered for a chance to win an RTX Video Card from @jayztwocents Click this link for your chance too! https://t.co/e8frgBrOno

[Jan Mattingly @mattwoman]

@PattyHajdu Minister, please prove that sentiment by approving both NurOwn and AMX00035 post haste. ALS moves rapidly for many and currently fatally for all. We need you to distinguish ALS as a HC priority for all Canadians with ALS. Months to approve are not an option. We want a fast lane!

[Jan Mattingly @mattwoman]

So this just happened ⁦@KirtSpeaksALS⁩ ⁦@ALSAction⁩ ⁦@iamalsorg⁩ ⁦@lougehrigs⁩ ⁦@JustinTrudeau⁩ ⁦@erinotoole⁩ ⁦@OntarioNDP⁩

[ItsComplicated @CdnMapleV]

@erinotoole So let me get this straight. I, as a taxpayer, am now going to pay for half of some schmuck's dinner who likely already dines out a lot and who likely makes more money than I do. And you think THIS will recover 1 mil. jobs? Where do you guys come up with this shit?

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Before & After #NurOwn w @Navy Pilot Matt Bellina

Apr 2014 - #ALS dx
2018 - ALSFRS of 21, Wheelchair & Trilogy
2019 - 6 doses of #NurOwn
Spring 2019 - Stood out of wheelchair
Aug 2020 - NurOwn dose 7
Sept 2021 - Standing, breathing & holding neck up

#LivingProof
#NurOwnWorks

[No More Excuses ALS Watchdogs! @als_now]

Read what the top @ALSCanada doctor said about Radicava in his rebuttal of #AMX0035 Ph.2 data. [Radicava] is "usually more harmful". How is #Radicava @US_FDA APPROVED with NO RESTRICTION (@ $144K yr), while #NurOwn is superior in EVERY way [but a damn "p-value?"] #SOMEISENOUGH

[Team Bill Duff @BillDuff12]

@PodolskyRony @VPResearch_ALS @temerityTM @PatrickNelson2 Nice

[ALS Action Canada @ALSAction]

This should be one of the top news stories in Canada this year: @ChrisSnowCGY is one of the world’s first ALS survivors because he has been able to access an experimental treatment.

@picardonhealth @CTV_AvisFavaro

[ALS Action Canada @ALSAction]

We believe that these Canadian ALS Best Practices Recommendations should be updated to include “full panel” genetic testing for anyone diagnosed with ALS.

The is supported by ALS science and this testing should be covered by provincial health care plans.

[Team Bill Duff @BillDuff12]

@foldingathome I work with an organization focused on bringing treatments for ALS to market. I was wondering if there is someone I could talk to about having an option in the FAH for ALS research.

[Team Bill Duff @BillDuff12]

@Cylebo Should check out Canada like @AmylyxPharma, @ALSAction could help.