Blu Genes Foundation

We are raising funds to advance gene therapy and find a cure for genetic disorders - offering hope where currently there is none.

[Blu Genes Foundation @BluGenesFdn]

TMG Builders is our gracious Decor Sponsor this year - helping Velo Blu 2024 look beautiful! Thank you for your support 🙌💙@tmg_builders

[Blu Genes Foundation @BluGenesFdn]

💦Our riders need hydration! Thank you to our Water Bottle Sponsor - Miller Thomson LLP.
@millerthomson

[Blu Genes Foundation @BluGenesFdn]

💙Owens Wright Lawyers is back again supporting Velo Blu 2024 as our Start and Finish Line Sponsor for our riders! 🚲
We are so thankful to have their support year over year!

[Blu Genes Foundation @BluGenesFdn]

💙Thank you for supporting Velo Blu 2024 - special thank you to our Experience Niagara Sponsor - @Rogers 👏

[Blu Genes Foundation @BluGenesFdn]

Welcome to Velo Blu 2024 - with our one and only Welcome Sponsor, @CityzenGroup.
Thank you for your years of support - we would not be here without you! 💙👏

[Blu Genes Foundation @BluGenesFdn]

💙VELO BLU 2024 💙
Time to grab your tickets for a beautiful scenic ride in Niagara-on-the-lake on September 13, 2024.
Learn more and donate at: https://t.co/FhtUmGgoCu

[Blu Genes Foundation @BluGenesFdn]

We’re kicking off Velo Blu 2024 - Pedal for Blu Genes! A special thank you to our annual Kit Sponsor - Greybrook Realty. 💙 @greybrookrealty

[Blu Genes Foundation @BluGenesFdn]

At Blu Genes Foundation, we hope that we can continue to reassure families and show them that there is still hope - and that Blu Genes will keep working to find a cure.

[Blu Genes Foundation @BluGenesFdn]

Blu Genes' goal is to support the development of promising treatment options for Tay-Sachs Disease, and to also fund the groundbreaking research that may one day provide options for families living with other rare genetic diseases as well.

[Blu Genes Foundation @BluGenesFdn]

In most cases, 2 defective copies of a gene - 1 from each parent - are necessary to cause a genetic disorder in their child. Since each of the parents provides one copy of the gene to a child, there is a 1 in 4 chance that their child would have a disease.

[Blu Genes Foundation @BluGenesFdn]

Blu Genes Foundation was founded 7 years ago - and since then we’ve been able to fund an innovative gene editing research project ongoing at @SickKids, and the fight to find a cure for Tay-Sachs Disease continues.
We are proud of the work and progress made so far!

[Blu Genes Foundation @BluGenesFdn]

In some cases, only one defective copy of a gene is enough to cause a genetic disorder. These can arise by a spontaneous mutation, but generally they are diseases that don’t show their effects right away.

[Blu Genes Foundation @BluGenesFdn]

How common are genetic disorders? Though individually rare, collectively they affect millions of people worldwide, including many children. According to @WHO, the prevalence of all single-gene disorders at birth is 10 in 1,000.

[Blu Genes Foundation @BluGenesFdn]

Whole-genome sequencing can help sick infants with rare diseases avoid months/years-long worth of tests & hospitalizations without a clear diagnosis. Studies show rapid whole-genome testing may lower health costs by reducing unnecessary hospitalizations, testing, and care.

[Blu Genes Foundation @BluGenesFdn]

Few hospitalized babies with an undiagnosed illness undergo whole-genome sequencing — a diagnostic tool that allows scientists to quickly identify genetic disorders and guide clinicians’ treatment decisions by analyzing a patient’s complete DNA makeup.

[Blu Genes Foundation @BluGenesFdn]

Many private and public health insurers won’t cover the $4,000-to-$8,000 expense of whole-genome sequencing. Florida now is among eight state Medicaid that programs do.
Read more at https://t.co/mR8WGuYABf

[Blu Genes Foundation @BluGenesFdn]

Celebrating 4th of July with our friends in the US! 🇺🇸

[Blu Genes Foundation @BluGenesFdn]

Enjoying the long weekend.
Happy Canada Day! 🇨🇦

[Blu Genes Foundation @BluGenesFdn]

Every year, Dr. Evgueni Ivakine attends our Afternoon Tea for Blu and helps educate us on Tay-Sachs Disease, Rare Genetic Disorders, and the research being done on Gene Therapy at @SickKids. We are grateful to have his support and expertise.

[Blu Genes Foundation @BluGenesFdn]

A special thank you to our special presenting sponsor - @BMO. Supporting our Afternoon Tea year after year means the world to us!