@Dr_M_Guthridge@JourneyFog@bmj_latest Terrifying facts. Perhaps if this happens, appropriate finding will finally be allocated for ME research. If not too late.
@MikesEUmaras Such lousy timing for you Mike, when you're raising money for those who are vulnerable to coronavirus at this time, thank goodness for your beautiful daughter. 😊 And thank you so much for your races so far and hopefully those to come. You're a star.
Heartbreaking story of a courageous lady who literally tried every possible treatment, therapy, supplement, drug and lifestyle recommendation for ME/CFS and yet each time she gained some relief, her body rejected it with catastrophic results. This disease is the worst.
Terribly sad to hear of the death of Darden Burns who struggled with ME/CFS for 45 years. Moving obituary by @CortJohnson. RIP.🕯️ #pwME#MyalgicE#MEcfs https://t.co/sPDsVphl5f
Before I slashed my salary 94% to pay my employees a living wage, I used to sip champagne in fancy hotels, hang out with millionaires and go on fancy trips.
You know what I miss about it? Nothing! That stuff doesn't buy happiness. Being a good person does
https://t.co/Co0jTlLCs7
@sturdyAlex Lorry drivers with LGV and specialist qualifications are often earning £25k + too and are essential in our internet based society and for getting vital supplies distributed around the UK. 😎 We need a balance of all jobs/professions.
“ME patients feel effectively the same every day as an AIDS patient feels 2 months before death; the only difference is that the symptoms can go on for never ending decades.”
Prof Mark Loveless, Head of AIDS & ME Clinic, Oregon Health Sciences University, 1995.
#MEAwarenessHour
@simon_reeve@samaritans A powerful, human story - thank you for sharing this @simon_reeve - I loved attending your honest, uplifting and heartfelt show in Plymouth; new book, energy, empathy, vitality and drive against demons are all breathtaking - a truly genuine mental health advocate for our time. 😊
@SJ_Watson@matthaig1 Definitely started reading @matthaig1 books as a result of his Twitter feed! A truly fantastic and beautiful writer who offers both a handbook and a toolbox for negotiating life, emotions and the world. 😊
Ron Davis “The effort to understand this new virus is exactly what we’ve been doing for ME/CFS for years. The diff betw our progress & theirs: lack of support from our federal govt!” Scientists are unraveling coronavirus with unprecedented speed & openness https://t.co/hjI2KEPHJ7
PRESS RELEASE: £500k Pledged by @Invest_in_ME .... “As far as we know, this is the largest single pledge for biomedical research into Myalgic Encephalomyelitis ever made by a charity in UK!” https://t.co/eaWS1ulBzj