Lisa

Living with ME, Bartonella and Chronic Lyme Disease + speaking out about ME and CLD + holds an MA in mindfulness studies

[Lisa @BuddhasCloset]

@hayuhelps @connie84038139 Having the same issue with the app crashing on Roku

[#MEAction Network @MEActNet]

If you believe you have seen Jennifer Brea @jenbrea since Wednesday June 15th
- Last seen: Near Gate D37 at Miami Int’l Airport
- Age: 39
- Height: 5'6"
- Weight: 135 lbs
- Race: Mixed
- Sex: Female
- Eyes: Brown

Please email [email protected]
or call [phone].

[Lisa @BuddhasCloset]

@aleth_personal If you know someone who has a blood pressure machine and can help you you can do the NASA lean test at home :) can print off the instructions and just follow.

[Lisa @BuddhasCloset]

@aleth_personal Yes. Fainting is not a prerequisite. Best way to test for POTs is the NASA lean test. Just need a blood pressure machine and you’re good to go.

[Dan 🦠➡️🧠🔥 @Dan_Wyke]

By claiming that #MECFS is perpetuated by psychosocial factors, psychiatrists are responsible for producing more psychological distress than the illness itself. #pwME #MEAwarenessMonth #MedTwitter

[Lisa @BuddhasCloset]

@LymeScience @_UNCTarHeel_ @healingjess_ Not going to argue further. It’s like arguing with the doctors who thought “bad air” caused disease, or that washing hands was laughable, or that MS was hysteria. Truth and science always wins. Plz don’t say you’re a patient advocate tho.

[Lisa @BuddhasCloset]

@LymeScience @_UNCTarHeel_ @healingjess_ Patients do deserve better. We can agree on that. We just don’t agree on what better is. The status quo from the IDSA is not serving patients. Patients would all agree they deserve illness validation and treatments so they can get their lives back.

[Lisa @BuddhasCloset]

@LymeScience @_UNCTarHeel_ @healingjess_ Not going to get into a scuffle. But there are two sides to everything. IDSA is not a perfect organization by any stretch. Lots of conflicts of interest there. There is plenty of good evidence for Lyme persisters. Crying conspiracy is a pretty lame argument.

[Lisa @BuddhasCloset]

@LymeScience @_UNCTarHeel_ @healingjess_ There are in vivo studies using mouse and non-human primate models. https://t.co/qHT8vN2Au8

[Lisa @BuddhasCloset]

@_UNCTarHeel_ @healingjess_ There’s lots of good info and new scientific studies out there if this interests you. I posted a couple links re JH and Stanford. And I know Columbia has a research center dedicated to this work as well. Easy search.

[Lisa @BuddhasCloset]

@_UNCTarHeel_ @healingjess_ https://t.co/3AjgCljm9Z

[Lisa @BuddhasCloset]

@_UNCTarHeel_ @healingjess_ https://t.co/VA1ILVeS52

[Lisa @BuddhasCloset]

@_UNCTarHeel_ @healingjess_ Thanks for your reply. I didn’t see the original tweet, just the Lyme part. Agree with you re vax. Glad you’re open minded re Lyme. Dr. Kinderlehrer actually just put out an excellent book and the reference section is outstanding.

[Hannah Davis @ahandvanish]

A study looking at COVID patients with neurological symptoms found higher rates of anti-neural autoantibodies in the cerebral spinal fluid:

https://t.co/mCDoJfRnEj

#LongCOVID

[Bea is Chronically Persisting✨ @Be_Kinderr]

@ahandvanish I wonder if this is similar to the beta-adrenergic and muscarinic cholinergic autoantibodies found in #MECFS #pwME https://t.co/CgXL9wfwyX

[David Lee, MD @DaveLeeERMD]

Science community: pathogenic autoantibodies and immune mediated thrombosis.

Medical community: it’s probably just non-specific inflammation.

Science community: evidence of autoimmune encephalitis and possible neuroinvasion.

Medical community: it’s probably just psychosomatic.

[Scott Simpson -- Remedies Online Counseling 🏳️‍🌈 @RemediesPodcast]

@SparkleDustx What a warped world we live in when losing at least 50% of your functionality is considered 'mild'.

Is this only applicable to ME?

Do other diseases consider 50% reduction 'mild'?

[Lisa @BuddhasCloset]

@healingjess_ @_UNCTarHeel_ No he’s saying symptoms are being misattributed to past infection. Meaning the patient is mistaking their symptoms for Lyme when really it is something psychosomatic or autoimmune. Because this is what they’re taught 😂😒🙄.

[Lisa @BuddhasCloset]

@_UNCTarHeel_ @healingjess_ John’s Hopkins, Columbia, and Stanford research centres must all be wrong then? All those studies looking at borrelia persisters are fake science? Fact checking is usually a good idea, rather than answering based on old tired dogma.

[Lisa @BuddhasCloset]

@CaroleBruce17 @TomKindlon Sounds like mental health issues or more likely Lyme disease misdiagnosed as ME. She demonstrates no PEM; symptoms don’t line up w ME. Further, her son also has all sorts of health issues that I am willing to bet $ are Lyme, passed on in utero.