Barbara Hodkinson MBE

Founder of the Butterfly Scheme through caring for my mother, who had dementia. The scheme helps healthcare staff to care well for people needing memory support

[Barbara Hodkinson MBE @ButterflyScheme]

Great response to refresher training session for Butterfly Scheme Leads! A privilege to work with these amazing dementia care leaders.

[Barbara Hodkinson MBE @ButterflyScheme]

@alzheimerssoc @Dementia_UK How can anguished carers still be emailing me in late 2024 to say staff in their local hospitals haven’t the first idea about #dementia care? With so many hospitals delivering impeccable dementia care, how can other hospitals justify doing so little?

[Barbara Hodkinson MBE @ButterflyScheme]

The pandemic brought a pause in #hospital #dementia #care progress, but it shouldn’t be an excuse for lack of ambition now! In too many places, dementia care is now either no further forward than it was in early 2020, or is actually less good. We must keep expecting improvement!

[Barbara Hodkinson MBE @ButterflyScheme]

A privilege to discuss #dementia care enhancement with @DrTWilliamson this morning; it always is. Great to see leadership that directly leads to benefits for people living with dementia, their carers and their local hospital teams.

[Barbara Hodkinson MBE @ButterflyScheme]

I rarely tweet these days, but what an uplifting session chatting with the fabulous @DeightonJo47103 just now! Vision, passion, graft - a real privilege to work with you, Jo!

[Barbara Hodkinson MBE @ButterflyScheme]

@WendyPMitchell So very sad and shocked to hear the news. Your powerhouse of a mum has done it her way and I suppose we all knew she’d remain in charge in every way she could. Great sadness at the departure of a true campaigner - and my sincere condolences to you, her beloved daughters.

[Barbara Hodkinson MBE @ButterflyScheme]

@zulfiqar_nabila Just read an article you’d written which included examples of inappropriate dementia care in hospital. Please be assured that lots of hospitals are now getting their care spot on. By all means email or DM me if you’d like more info.

[Barbara Hodkinson MBE @ButterflyScheme]

@EnhanceCareCHFT @CHFTNHS @JoScadden It’s always so uplifting when #dementia #care #leadership takes on board the need to maintain education - and I know you do. 👏🏻👏🏻👏🏻

[Barbara Hodkinson MBE @ButterflyScheme]

Always good when you discover an organisation is looking at adopting the Butterfly Scheme because someone working at a member hospital has recommended it #dementia #care #hospital

[Barbara Hodkinson MBE @ButterflyScheme]

@EnhanceCareCHFT @CHFTNHS So pleased to welcome you as a Butterfly Scheme Champion!

[Barbara Hodkinson MBE @ButterflyScheme]

@DrGrantGibson @suzysopenheart You can probably watch it on iplayer.

[Barbara Hodkinson MBE @ButterflyScheme]

@Nigelj08223326 @adamgordon1978 So many other potential causes to all those experiences, though. Awareness is helpful, but oversimplification often isn’t.

[Barbara Hodkinson MBE @ButterflyScheme]

@Nigelj08223326 @BazzaCC @RobertArnol @PrinPeta @pijush357ray @pettet50 #Dementia insight and care education is needed by everyone, but certainly by any professionals likely to be meeting members of the public. It can take as little as one hour to give someone enough dementia insight and care skills to transform their approach. Essential!

[Barbara Hodkinson MBE @ButterflyScheme]

Huge thanks to the fabulous staff of @thelondonclinic who attended @ButterflyScheme training today; your engagement and enthusiasm were superb. We really appreciated the heartwarming feedback and the warm welcome. Enjoy using the Scheme! #dementia #memorysupport

[Barbara Hodkinson MBE @ButterflyScheme]

Well done to Nina Warhurst and #BBCBreakfast for a very sensible, sensitive, well-expressed and helpful piece this morning about LPAs and how tough it is for carers trying to support loved ones without an LPA.

[Barbara Hodkinson MBE @ButterflyScheme]

@SASHChiefNurse With warm thanks from the Butterfly Scheme for your commitment to #dementia care - and supporting the outstanding Lead and team. May you thoroughly enjoy the next phase of your life!

[Barbara Hodkinson MBE @ButterflyScheme]

Post-pandemic care restoration is one thing, but new hospital #Dementia Leads coming into role and finding nothing at all in place - and no ambition from bosses to actually put anything in place - is quite another. It’s happening all the time now - like slipping back 10 yrs.

[Barbara Hodkinson MBE @ButterflyScheme]

@moo01_moore @UhmbtV @diannesmith65 @emmafitton74 @KimCrab14290965 Fantastic! When you’re unsure of your surroundings and don’t have your usual support around you (and can’t perhaps read a book or otherwise sustain an activity independently), this sort of input massively reduces anxiety.

[Barbara Hodkinson MBE @ButterflyScheme]

@TKeegal @WendyPMitchell Ideally, there’d be enough funding for all of it, wouldn’t there?