Carrie Fowler

Mama of Girls • Rare Disease Advocate • Mama of Someone Rare • Instagram: @HaidynsHope #CureSanfilippo

[Wall Street Mav @WallStreetMav]

@elonmusk World peace is not profitable enough for certain people,

[Stew Peters @realstewpeters]

But Elon said @Israel avoids hurting children.

[Dr. Anastasia Maria Loupis @DrLoupis]

Gaza before and after “American Democracy”🇺🇸

[Carrie Fowler @CEOHaidynsHope]

Pediatric hospice is a choice no parent should have to make, but with Sanfilippo Syndrome, that’s a choice we didn’t get to avoid.

Follow us on IG to learn more (@haidynshope)

[Carrie Fowler @CEOHaidynsHope]

@marcuslemonis I emailed you 🫶🏼We went to @CampingWorld this week and Haidyn LOVED this 5th wheel/toy hauler (plus it fits her wheelchair) - hoping we can make something work for trade 🤞🏻 and get back to traveling with our girl while we can + sharing our adventures 🦋

[Carrie Fowler @CEOHaidynsHope]

I would bet that we could change history for others! 🫶🏼

[Marcus Lemonis @marcuslemonis]

Finish this sentence.
If I had $1000 to bet, I would bet on ……

[Carrie Fowler @CEOHaidynsHope]

Hoping we can create a plan with @CampingWorld and travel with our girl again!
This gently used 5th wheel/toy hauler would be perfect for our medically complex babe. She loved it. Thank you @marcuslemonis for commenting on our IG & inspiring us to see if we can collab with CW. 🫶🏼

[Carrie Fowler @CEOHaidynsHope]

@tiktokcreators
I run the account @haidynshope. It was permanently banned. No option to appeal. I have not violated any guidelines & I am 31 years old.
I had almost 700K followers & shared about my journey with my daughter’s diagnosis of childhood dementia/Sanfilippo syndrome.

[Carrie Fowler @CEOHaidynsHope]

✨WATCH✨ SPEAK UP 🗣

Against @tikok @TikTokForGood @TikTokSupport for banning accounts of those with disabilities and terminal illnesses like my daughter due to discrimination and wrongfully reporting content

#LizzosBigGrrrls #community #Disability #share #viral #Forced

[Carrie Fowler @CEOHaidynsHope]

She used to be able to talk, sing, & play like a typical child and by age 7 she has lost her voice, losing her ability to walk, suffering seizures and progressive brain damage from a fatal childhood form of dementia known as Sanfilippo Syndrome. @instagram handle is @haidynshope

[Carrie Fowler @CEOHaidynsHope]

Ever heard of childhood dementia?
Haidyn is 7 with a rare & terminal disease known as Sanfilippo Syndrome. We had a life diary on @TikTok with over 680,000 followers before being banned unjustly.
@instagram : @haidynshope

[Carrie Fowler @CEOHaidynsHope]

My girl fights to live despite childhood dementia, every single day! IG handle: @haidynshope

[Carrie Fowler @CEOHaidynsHope]

@people ✨WATCH VIDEO✨ how do we stop the discrimination against children like my daughter with a disability & terminal illness on TikTok? Ableist app users mass reporting creator content and creators being permanently banned unjustly by @tiktok 🚨

[Carrie Fowler @CEOHaidynsHope]

@YourAnonNews ✨watch video✨ how do we stop the discrimination towards children like my daughter with a disability & terminal illness on @tiktok? Mass reporting by ableist app users getting creators banned on a “safe environment” platform.

[Carrie Fowler @CEOHaidynsHope]

@TMZ ✨Watch VIDEO✨ how do we stop the allowance of discrimination towards children like my daughter with a disability and terminal illness on @tiktok ?how does this continue to happen from mass reporting by ableist app users?

[Carrie Fowler @CEOHaidynsHope]

@people we need @tiktok_us to see this! Stop the unjust ban of creator accounts with disabilities or terminal illnesses from mass reporting and no option to appeal. What about the safe environment and right to appeal your policy states?

[Carrie Fowler @CEOHaidynsHope]

@KrisKling we need @tiktok_us to see this! Stop the unjust ban of creator accounts with disabilities or terminal illnesses from mass reporting and no option to appeal. What about the safe environment and right to appeal your policy states?

[Carrie Fowler @CEOHaidynsHope]

@WSJ we need @tiktok_us to see this! Stop the unjust ban of creator accounts with disabilities or terminal illnesses from mass reporting and no option to appeal. What about the safe environment and right to appeal your policy states?

[Carrie Fowler @CEOHaidynsHope]

@nytimes we need @tiktok_us to see this! Stop the unjust ban of creator accounts with disabilities or terminal illnesses from mass reporting and no option to appeal. What about the safe environment and right to appeal your policy states?