Catherine Sheahan

[Catherine Sheahan @CatherineSheah2]

@TeamRanil @NHSEngland @VertexPharma

[#UK CF campaigner Sharon @CFno1LeftBehind]

.@CrispinBlunt @scullyp @Matthew_Wright @BBCLondonNews @BBCHughPym @BBCEngland @BBCSurrey @bbcsoutheast @BBCRadioKent @BBCSussex @bbchealth @BBC_HaveYourSay @hananbihi @deb_cohen @MotherhoodvsCF @MattHancock This story needs to be in all the regions We #LifeSavingDrugs4CF NOW!

[Jules Sheahan @SheahanJulian]

On check were told plane was 1 1/2 hours delayed. That implies information. It was more than 3 hours late. Why not just say delayed

[Jules Sheahan @SheahanJulian]

They did not even tell us the name of hotel we were supposed to be going to when directly asked.

[Jules Sheahan @SheahanJulian]

#BritishAirways

Have just experienced a shambles at Naples for BA425 departing at 19 55.
The entire plane load were effectively abandoned by your staff who went home having said they were coming on the bus to hotel with us, Unacceptable. That is a very abridged version.

[Jules Sheahan @SheahanJulian]

Announcements were unintelligible leaving us in ignorance at the gate. Vouchers apparently were distributed but not widespread.

[Jules Sheahan @SheahanJulian]

Rumours were circulating that no BA staff would be on site until 3am. We left at 23 30 and there were still many people waiting around not knowing what to do.

[Jules Sheahan @SheahanJulian]

@ranil cost of living crisis is biting hard. As a person of obvious integrity can you advise as to how I can take a second or third job in the most efficient way?

[Flowers By Becky @FlowersByBeckyS]

⁦@forduk⁩
We’ve broken down in Italy, Ford Assist Europe is a joke. No answer, repeatedly, despite being told I am a high priority call on hold.
Tried the virtual assistant too and no contact from them either.
Please contact me urgently.

[#UK CF campaigner Sharon @CFno1LeftBehind]

Come on @NHSEngland

What’s the reason for the hold up of #kaftrio for some #cysticfibrosis #lifesaving rare #CF🧬mutations when innovative deals give access in other #uk devolved nations but not #england??
@blakeydark @cftrust @ChrisMRiches @MHRAgovuk
https://t.co/jVMuluyn9T

[Catherine Sheahan @CatherineSheah2]

@Alidilly @MattHancock @blakeydark Amazing!!

[Ali Dillon 💙 NHS @Alidilly]

Today’s thank you tweet @blakeydark @MattHancock is from all the babies born with CF who can now grow up with a manageable condition never having to think about their mortality until they are adults, because of the decision you made.

[Ali Dillon 💙 NHS @Alidilly]

Here’s your countdown to Kaftrio, thank you tweet @blakeydark @MattHancock Did you know the @cftrust is 56 years old by the way, that’s a long time to get to where we are today, there’s just another 10% more people with cf to help 🙏

[Catherine Sheahan @CatherineSheah2]

@MattHancock I’m just overwhelmed to hear amazing news for #cysticfibrosis I was so worried we would have a long hard fight again! Well done

[Catherine Sheahan @CatherineSheah2]

Thank you @MattHancock ! Saving thousands of lives the cf community are so grateful! #cysticfibrosis

[#UK CF campaigner Sharon @CFno1LeftBehind]

.@MattHancock @DHSCgovuk .@blakeydark ThankYou You are giving this beautiful girl a future that she never dreamed she’d have @jess_cranfield 💕

@VertexPharma @NHSEngland if this story is true, I’m delighted the deal will be agreed & our CF warriors will get to breathe easy🙏🏻💛

[Professor Chris Whitty @CMO_England]

COVID-19 has gone down due to the efforts of everyone but is still in general circulation.

If we do not follow social distancing guidance then cases will rise again. Naturally people will want to enjoy the sun but we need to do so in a way that is safe for all.

[#UK CF campaigner Sharon @CFno1LeftBehind]

A great positive step in the right direction
Countries with pipeline deals for @VertexPharma #cysticfibrosis lifesaving 🧬 modifying 💊 will get #Kaftrio within the next 67 days

All I can say...we cannot have another fiasco
Get this ✅ .@MattHancock @blakeydark @ChrisMRiches

[Chris Riches @ChrisMRiches]

Great news for #cysticfibrosis sufferers in Europe that @VertexPharma wonder drug #kaftrio (also known as #trikafta) has been approved for Licence by @EMA_News. In two months it will be available for @NHSuk to buy. Let’s get a UK deal sorted @MattHancock @BorisJohnson

[EU Medicines Agency @EMA_News]

‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: https://t.co/tvl0aKrLEX

[Cystic Fibrosis Trust @cftrust]

This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay.
We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.

[#UK CF campaigner Sharon @CFno1LeftBehind]

@Daily_Express ThankYou
@ChrisMRiches helping the #cysticfibrosis crusade for CF

.@MattHancock Let’s get the job done ✅

My daughter is literally hanging on edge of life

Give her a future😢

#KaftrioNow #kaftrio
Please RT🙏🏻

@blakeydark @cftrust @VertexPharma @NHSuk

[Catherine Sheahan @CatherineSheah2]

Please where yellow for #cysticfibrosis on the 19th June! #cysticfibrosis fighters do your workouts everyday to help manage their condition #PEwithjoe #sheilding @cftrust

[Beata Wojcik @muko_mama]

Amazing idea @thebodycoach please wear yellow on 19th June for all #cysticfibrosis fighters, mine is working out with you every morning, it will mean a lot to him and our community to raise a bit of awareness #PEwithjoe #shielding @cftrust