Childless Cat Ladies Unite!

Type 1 diabetic, Hypothyroid, Addison’s Disease, Anemia, POTS/Dysautonomia, ME/CFS? Life interrupted. Looking for answers....So many questions

[Niall Harbison @NiallHarbison]

https://t.co/mwqhyUsomb

[Childless Cat Ladies Unite! @Charkypop]

@NiallHarbison Charlie aka Charlie Sheen

[Childless Cat Ladies Unite! @Charkypop]

@outbreakupdates @threadreaderapp unroll

[Childless Cat Ladies Unite! @Charkypop]

@JackHadfield14 So I had autoimmune Addisons diagnosis 15 years prior to POTs onset. Now my Renin is through the roof despite my Normal steroid and aldosterone replacement meds and I can barely keep my sodium above min level and my potassium below max levels. Does my case fit this model?

[Childless Cat Ladies Unite! @Charkypop]

@NeurologistMom You can DM me but her case sounds very similar to my own. I don’t have PEM but unbearable pain. Have many autoimmune markers and respond to steroids but still no definitive diagnosis besides POTs. I suspect either a connective tissue dx or antibody attacking nerves and tendons.

[Melanie D'Arrigo @DarrigoMelanie]

Republicans will quote Dr. Martin Luther King Jr while trying to pass laws preventing children from learning why.

[Alexandra Halaby @iskandrah]

SOS: Pine Ridge Reservation is experiencing extreme cold weather right now and First Families Now has reached out with an urgent need for blankets, quilts and comforters (twin/full/queen/king) for Lakota elders and families! #PineRidge https://t.co/1WMNT9q4aM

[🎒Shailja #FreePalestine Patel @shailjapatel]

“We don’t live on our reservation. We survive on our reservation. People snowed in for days are burning clothes in their wood stoves because they're out of wood. We’re in serious need of some help.”
https://t.co/1VmcqykdHd

[charlos @loscharlos]

Hey #BayArea — @StanfordMed is in high need of controls for #LongCovid study examining autonomic dysfunction 👇

Looking for: Participants had COVID but recovered completely; Ages 20-40; women, had COVID at least 6 months ago (PCR or home antigen test)

Please consider & share!

[follow @bencollins on bluesky @oneunderscore__]

Journalists who cover Elon Musk have been suspended on Twitter tonight: @Donie O'Sullivan from CNN, Aaron Rupar and the Washington Post's @drewharwell.

Rupar tells me he has "no idea" why it happened.

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

If you want to argue with me that #LongCovid or #MECFS are #FND or psychological, you better show me peer-reviewed studies to support this. Going by your personal experience or anecdotes from your work with FND patients is not #science, it's #bias. #StopPsychologizing

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

I just heard from a patient that an allergist at a certain top academic institution wrote in her chart, "Patient believes that #MCAS can cause #POTS. Patient is not well-informed," and then dismissed her with anxiety because her serum tryptase was normal. How sad and ironic... 🙄

[Déjà Clement, MPH, Ph.D. @ClementDeja]

My dissertation data was attacked by bots, therefore I am still collecting and would greatly appreciate any help! I am recruiting Black women, ages 18 and up! Those interested can DM me or email me and I will send a link. Please share widely!

[Dysautonomia Intl. @Dysautonomia]

Being young, healthy & fully vaxxed does NOT prevent you from developing Long COVID. @DrTomFrieden this is very irresponsible messaging from a former CDC Director currently leading an org that claims to be trying to prevent cardio complications of pandemics.

[NPR @NPR]

Hundreds of coal miners in Alabama have spent more than 600 days on strike to protest pay and benefits cuts. And yet their employer has turned record profits — and neither side seems ready to budge.
https://t.co/z14YP6X0vl

[Occupy Democrats @OccupyDemocrats]

BREAKING: A 15-year-old boy canvassing for Raphael Warnock in Georgia is shot in the leg after a 42-year-old man fires a single bullet through his closed front door, striking the teen in the leg — the boy is thankfully in stable condition. RT TO DEMAND THE SHOOTER BE PROSECUTED!

[Reverend Raphael Warnock @ReverendWarnock]

I’m inspired by the Early Voting turnout. But let's turn it up a notch. Get your family and friends to the polls today. When we vote, we win!

[Dysautonomia Intl. @Dysautonomia]

This study showed that though POTS due to Long COVID might resolve with time, brain blood flow can continue to remain abnormal. Support Long COVID dysautonomia research here: https://t.co/KA1iT8VWGV
Read the study here:
https://t.co/OBPngQPiJm

[Childless Cat Ladies Unite! @Charkypop]

@RuhoyMD Do you know which pattens have been identified with encephalopathy? I had slowing in R hemisphere but neurologist dismissed it like he dismissed abnormal LP results. 😡 I am now getting IVIG but still no clear diagnosis.