colin

I founded and run the UK charity (CostelloKids) International costello syndrome support group charity number 1085605

[colin @CostelloKids]

Helaina loving her additional needs dance competition

[colin @CostelloKids]

#costellokids
#costellosyndrome
#rasopathies

[colin @CostelloKids]

Sadly for some parents Costello syndrome means that there loved and cherished child passes far too soon. Selin sadly passed earlier this year and her parents need your help.

The donation link is in the comments.....

Thank you https://t.co/0eEDnXgrIj via @FacebookWatch

[colin @CostelloKids]

A short overview of Costello syndrome, covering several aspects of the condition.

#costellokids
#costellosyndrome
#RASopathies https://t.co/VAvVMjFB8V via @FacebookWatch

[colin @CostelloKids]

Merry Christmas and a happy new years from us all at CostelloKids https://t.co/Z2ZJ7FhiWZ via @FacebookWatch

[colin @CostelloKids]

@andrealeadsom I think that it was your party that planned to end the cap and let the bus companies charge what they wanted at the end of the year. But don't let the facts get in the way of talking crap

[colin @CostelloKids]

@Conservatives Unlike the conservatives who hit everybody but the rich. VAT UP. But you gave lods of money to your rich mates.... All while you partied...

Highest taxes since the second world war
Stop the bullshit and lies and just F*** Off I am sick of Conservative gaslighting .

[colin @CostelloKids]

@myohe Hi Dr Yohe. Thank you for your work in Costello syndrome research. My Daughter had Rhabdomyosarcoma twice when she was 2 1/2 and then 4 years of age. She is now 30. Within our CS community we are estimating that the risk of Rabdo is approximately 15-17% .

[colin @CostelloKids]

Costello syndrome families by country. For more information visit our website
#Costellosindrome
#rasopathies

https://t.co/NKgXd6FRmY

[colin @CostelloKids]

@JManrara we will be at the Manchester show on May 31st 2025. For more information about Helaina and Costello Syndrome please visit
Https://www https://t.co/rO4JMHmHQQ

[colin @CostelloKids]

@JManrara My daughter Helaina is a huge fan. She danced today in Blackpool.
She would love to meet you when you are in Manchester but all the VIP tickets are sold out.
Helaina loves to dance, has survived cancer twice, and had over 60 surgeries.Can you help. Many thanks.

[colin @CostelloKids]

So proud of my daughter Helaina today. She has been competing in the additional needs completion at Blackpool Winter gardens.
She rocks
#costellosyndrome

[colin @CostelloKids]

Costello syndrome is extremely rare affecting just 1:380,000 births. This shows just how few members we have in the USA.

#Costellokids
#RASopathies

[colin @CostelloKids]

@mrjamesob Interesting how your book is being displayed against Boris big book of lies

[colin @CostelloKids]

@easyJet why have you ignored my complaint. ?

[colin @CostelloKids]

@easyJet This A* Hole is the easyJet dispatcher who refused to bring Helaina's wheelchair to the aircraft gate when we arrived at Manchester airport last night. His actions resulted in Helaina experiencing pain and discomfort using the Airport wheelchair. A complaint made

[colin @CostelloKids]

This A* Hole is the easyJet dispatcher who refused to bring Helaina's wheelchair to the aircraft gate when we arrived at Manchester airport last night. His actions resulted in Helaina experiencing pain and discomfort using the Airport wheelchair.

[colin @CostelloKids]

https://t.co/jA7CJF3uyi

[colin @CostelloKids]

https://t.co/0FZsYzJxcK via @YouTube
My daughter Helaina has Costello syndrome loves to dance and she is a HUGE fan of #strictlycomedancing She competes in additional needs dance competitions and would love to meet Anton Du Beke . Can anybody help make her wish come true