Cure ME/CFS (and Long COVID)

Mild COVID = no hospitalization.
Mild long COVID = no home health aide.

MS Computer Science
BS Biological Sciences
BA Economics
@Stanford

[Cure ME/CFS (and Long COVID) @CureCFS]

Antiphospholipid antibodies positive 2X & >12 wks apart.

Already had rec for aspirin to reduce risk of colon cancer recurrence. It's treatment for APS too so..

1 aspirin on 10/3. New record walk speed next day, though many variables.. night walk, different path during heatwave.

[Cure ME/CFS (and Long COVID) @CureCFS]

I don't mind when people are smarter than me. I like it, admire them, & learn from them.

But like I don't mind people asking my age because I look young.. is that because I'm actually as smart or smarter.

Or perhaps I don't mind people asking my age even if I didn't look young.

[Cure ME/CFS (and Long COVID) @CureCFS]

When I put degrees in my Twitter bio, I stopped getting comments such as, you can't argue 1+1=2 or anything because you're anonymous.

However, mind you, I'm still anonymous and you can't verify my degrees.

Now I'm imagining putting MCAT scores on my forehead when I see doctors.

[Cure ME/CFS (and Long COVID) @CureCFS]

To "level with" me means she's not afraid that I can read research papers and figure out biology, send her references that she can consider in her own problem solving.

And doesn't need to say/do something illogical to prove they're smarter than a patient saying something logical

[Cure ME/CFS (and Long COVID) @CureCFS]

Can't stand all the Teslas around here.

You vote with your money.

Silicon Valley stopped being entrepreneurial ~15 yrs ago. Sadly it's the same people who in dot-com days would've been in their garages since day 1 of the pandemic inventing air cleaning systems to replace masks.

[Cure ME/CFS (and Long COVID) @CureCFS]

@RonBrownstein @Bob_Wachter Dunno... I live in Silicon Valley and wealthy people who want to show off and be cool bought Teslas. The people who actually wanted to do it for the environment bought Priuses 10-20 years ago. The progressive professors I know bike to work.

[Cure ME/CFS (and Long COVID) @CureCFS]

@latimes When you rename de-skilling as skills. Like when the microwave came out, we needed training on our new chef skills pressing a button!

[Cure ME/CFS (and Long COVID) @CureCFS]

@NASAWatch Sounds like China. Good job. US and China are trading places.

[Cure ME/CFS (and Long COVID) @CureCFS]

@washingtonpost How the F does this fall under presidential executive order. There is more than one gulf in "America". Rename all of them to Gulf of America. And just start changing American English to use Trump like Smurf.

[Cure ME/CFS (and Long COVID) @CureCFS]

Well, I haven't met a doctor or nurse at UCSF that doesn't look at me like an alien if I mention Long COVID (except one specially tasked for "mystery illnesses" (except they are only trying to test & find anything other than ME/CFS after saying it's most likely actually ME/CFS)).

[Dame Sa 🐝 3.5% @LongCovidHell]

“The tissue samples from long COVID patients revealed severe muscle damage, a disturbed immune response, and a buildup of microclots.”

The evidence of #LongCovid is all there.

Doctors who continue to ignore it should no longer be working in medicine. https://t.co/NKbvFiu4fp

[Dr Richard Hirschson @richardhirschs1]

⚠️BREAKING
COVID/LongCovid is causing an explosion of dizziness, tiredness and tachycardia in young people. The incidence of Postural Orthostatic Tachycardia Syndrome (POTS) has increased 15 fold.

https://t.co/3FIxAyNoYl

[Tatiana Prowell, MD @tmprowell]

#MedTwitter
Researchers asked people w/ & w/o #longCovid to 🚲 & performed muscle biopsies:

Tissue from people w/ LC had “severe muscle damage, a disturbed immune response, & a buildup of microclots…& immense amounts of cell death, or necrosis.” 😞

https://t.co/HjF0eoq3vu

[hux | lizzie huxley-jones 🍟📚 (they/them) @littlehux]

Hey so if you have long covid or ME, or suspect you do, and your doctor suggests you take up graded exercise as a key part of therapy, please direct them to the Nature Communications paper published 4th Jan on Post exercise malaise. Here's the NPR write up
https://t.co/rcnT5bblYG

[Cure ME/CFS (and Long COVID) @CureCFS]

@goodairquality @gregisenberg Google Translate would be the tool for that.

[Cure ME/CFS (and Long COVID) @CureCFS]

@chrishood Like using a microwave doesn't make me a chef. And using an iPhone doesn't make people engineers.

[Cure ME/CFS (and Long COVID) @CureCFS]

@luigi_warren @gregisenberg I'm not that old and we had to handwrite pages on the spot through high school and some parts of college.

[Cure ME/CFS (and Long COVID) @CureCFS]

@gregisenberg Calculator scenario mainly applies to calculating tip at restaurants, an isolated unimportant task. Or for more complex math problems, the arithmetic is unimportant vs how to solve the problem. But words & writing apply to all thought. I can't stand AI writing sounds like zombies

[Cure ME/CFS (and Long COVID) @CureCFS]

@medical_xpress @PLOS @PLOSMedicine Diabetes lingers. Lupus lingers. Alzheimer's lingers. Studies show no major changes in second year...
https://t.co/3Xf3cMZ0V4

[Cure ME/CFS (and Long COVID) @CureCFS]

Yes I want to know if it was COVID that led to cardiac arrest & death of famed Vietnamese chef.

But we've been systematically relegated to Bob & Jetelina & co's people-don't-need-to-know if it was COVID. So don't mind if they die.

Are the Slanted Door bao in my freezer the last

[Cure ME/CFS (and Long COVID) @CureCFS]

Random Tweets.

I ordered from @GoodEggs on Christmas Eve at 11am & got my delivery at 3pm.

Handy if you have ME/CFS & going to Whole Foods 2 blocks away is sometimes too much.

Though $5 / medium sized bao from Slanted Door & needs to be steamed + delivery & subscriptions fees.

[Billy Hanlon @bhanlon15]

IFL Science: 'People Who’ve Had COVID Could Be Almost 8 Times As Likely To Develop ME/CFS'

'New research finds levels of the chronic condition are now 15 times higher than pre-pandemic'

“'..underscores the urgency..to recognize post-COVID-19 ME/CFS'

https://t.co/Xejcbm65A5