Cydan

Cydan, an orphan drug accelerator dedicated to creating therapies that improve the lives of patients living with rare genetic diseases.

[Cydan @Cydanco]

I just signed a @theactionnet petition: Support the Continuation of the Dog Aging Project. Sign here: https://t.co/nBOO2sE6eJ

[Cydan @Cydanco]

@michael_gilman My home town….😉👍

[Cydan @Cydanco]

@BarackObama @JoeBiden https://t.co/NG3kGM7nfX - first time voter Sophie Liebman - Lexington MA made a suffragette dress to make her voice heard!

[Alkeus Pharma @alkeuspharma]

FDA Grants Alkeus Pharmaceuticals Breakthrough Therapy Designation for ALK-001 (C20-D3-vitamin A) for the Treatment of Stargardt Disease
https://t.co/IKQeRukt4a

[Cydan @Cydanco]

@alkeuspharma Congrats to Leonide and the Alkeus Team!!

[NewYorkBIO @newyorkbio]

"When we engaged the patient community on their quality of life we learned things that weren't emphasized by physicians or the literature"

- Imran of Babar of @Cydanco with a great segment on how its incredibly helpful for biotech cos to listen to patients

#patientengagement

[Cydan @Cydanco]

#RareDiseaseDay2021

[Cydan @Cydanco]

On Rare Disease Day 2021 support the Yellow Brick Road Project
@YellowB20752481

[Cydan @Cydanco]

@CamiSamuelsVC Congrats 👏👏👏

[EveryLife Foundation @EveryLifeOrg]

If you haven’t yet taken the National Burden of Rare Disease Survey – there’s still time -> https://t.co/G0ryxaryYy #burdenstudy

Deadline: Monday, August 3rd, 2020
Questions? [email protected]

[YellowBrickRoadProject @YBRP4hnrnph2]

Navigating the world can be a challenge for our patients, but they are brave and determined! In "We Move!", see these amazing individuals and the variety of ways they get around. #hnrnph2 #ybrp #raredisease #genetics #charity #HNRNPH2AwarenessWeek2020

[Cydan @Cydanco]

Excited to participate in the 3rd HNRNPH2 Family Meeting 2020 #HNRNPH2 #ybrp #raredisease #Genetics

[Cydan @Cydanco]

I’m excited about the @MassChallenge Virtual Startup Showcase on July 16 & 17 @ 12pm CT/ 11am ET. 200+ #startups from 18 countries & 34 states will present ground-breaking solutions to industry leaders. Join from any internet-connected device. #MC20 https://t.co/nuqtlb0jK3

[Global Genes @GlobalGenes]

RARE parents are so powerful. @nytimes features 4 rare families in an article outlining the current landscape of #raredisease. #CareAboutRare
https://t.co/VvuCmFqoGm

[Miles Beckett @mbeckett]

The trillion dollar question. Why are COVID cases increasing while deaths are decreasing? The answer is simple. It's called Simpson's paradox and it's the result of incorrectly pooling data and arriving at a false conclusion. A thread 1/9 #COVID19 #ThursdayThoughts

[Cydan @Cydanco]

Congratulations to the MIT100K Finalists and good luck #MIT100K

[Cydan @Cydanco]

Cydan proudly congratulates @Imara for the closing of its IPO. Imara is our second NewCo orphan drug company that was launched in 2016.

[Cydan @Cydanco]

Thank you to all who are caring for patients!

[Vala Afshar @ValaAfshar]

A photo of themselves smiling helps their patients feel more comfortable.

We are seeing humanity at its best.

[Scott Gottlieb, MD 🇺🇸 @ScottGottliebMD]

THREAD: This week tragic reality on ground will overtake events. There are multiple epicenters of U.S. spread. We'll grapple with national epidemic. April will be hard. We'll get through it. Focus must be on slowing spread nationally, support healthcare system, build back in May.

[Cydan @Cydanco]

You are in our thoughts !