Cystitis Info

Recovering chronic UTI sufferer thanks to Professor Malone-Lee and his team. 🙏 Misdiagnosed with IC. Living a pain free life.

[Cystitis Info @CystitisInfo]

@ChronicUTIAus I’ll never forget the Prof. Such an incredible man who has saved so many lives and will continue to do so with his legacy.

[Cystitis Info @CystitisInfo]

@Theholisticpsyc Yes this is me. I’m the only person that has any autoimmune issues in my family. Do you think it’s possible to reserve the physical damage?

[Cystitis Info @CystitisInfo]

@utihealthally No, I think it did permanent damage. I had this procedure over 20 years ago and I haven’t been able to wee properly ever since. I had a urethral dilation and bladder stretch and I’ll never forget Professor Malone-Lee describing it as bladder rape.

[Cystitis Info @CystitisInfo]

@WardellR This is very triggering for families who receive none of these things from the department you head up. My child is one of the 1800 children with an EHCP who has no education in place. What is happening in your department is abhorrent.

[Barrie Engel @BarrieEngel]

@thismorning - 🤬🤬
Based on extensive science over the last 1-2 decades, *everything Dr. Jean McDonald said on your show was not only based on 75+ years of assumption, but has now been DEBUNKED. #CystitisUnmasked

Here’s the segment ⬇️⬇️⬇️
https://t.co/411AlSaDe5 via @YouTube

[SEND National Crisis @SendCrisis]

Attention Surrey folk, please comment on Surrey children’s services leaders getting OBEs!! Comments from non Surrey folk welcome too as we know the failures are shared nationwide. Smacks of the post of leader getting hers despite overseeing the scandal https://t.co/rXnELU45JV

[Cystitis Info @CystitisInfo]

On a positive note though, thanks @cherryhealey for helping to raise awareness about UTI. This condition needs a lot more coverage.

Can you do a documentary please?

[Cystitis Info @CystitisInfo]

Watched the @thismorning interview with @cherryhealey

Lots of inaccurate information that concerned me - it’s a big no to drinking cranberry juice for example. And no mention of hiprex as a non-antibiotic UTI treatment.

https://t.co/KIxl0SMpmZ

[Cystitis Info @CystitisInfo]

Prof ML advised not to drink to excess with a UTI when on antibiotics because it flushed them out quicker. Makes sense.

[Eleanor Kashouris @EKashouris]

Reading more on evidence and guidance around increased hydration in rUTI. Fascinating to find what I have glossed over in the past as un-important

[Jocelyn J. Fitzgerald MD @jjfitzgeraldMD]

The amount of eye-rolling I have seen among medical professionals when talking about women with chronic Lyme, fibromyalgia, endometriosis, EDS/POTS/MCAS, long COVID, etc as though they are hysterical crazies makes me furious.

https://t.co/YUguoZGGyy

[Chronic UTI Australia Inc. @ChronicUTIAus]

We need more doctors like Prof Robson @amapresident urging other doctors to wake up & pay attention to the new UTI evidence:
"Because if you don’t, you’re going to be misdiagnosing and not adequately treating lots & lots of women, leading to lots and lots of misery and debility"

[Leah @LRH33]

Chronic UTI patients, make sure you check this out

https://t.co/B6WEVkHg17

[Chronic UTI Australia Inc. @ChronicUTIAus]

This graph shows people presenting to outpatient clinics in the UK with interstitial cystitis/chronic bladder pain from 1998 to 2019 & the introduction of UTI guidelines. Note the steep rise after 2002 guidelines propose 3-day abx treatments for acuteUTI https://t.co/CBjxIpArmG

[FindingAda @FindingAda]

Over 400m people, mostly women, develop a UTI every year. @JennyRohn will be delving into the complexities of UTIs and some of the new treatments on the horizon. 18:30, Tues 10 Oct @Ri_Science or watch online.
Details: https://t.co/rh6YBkVg8C
Tix: https://t.co/6iEL4VQ4KG

[Leah @LRH33]

@NHSEngland what will you do to improve this? https://t.co/LyrGNEXQIW

[MythoFobe @MythoFobe]

😰😤😰😤!!!
If everyone in the world experienced UTI, just once, would this problem exist?
I don't believe so.
It's both preventable and treatable.
If adults can become suicidal with this condition, what does it do to children?
https://t.co/348xRUfjJv

[Eleanor Kashouris @EKashouris]

Please help with final push for advertising research workshop on Sat 30th in London!
@cuticuk @BladderHealthUK @HattyCollier @connie_dimsdale @SussexSocCrim @ChronicUTIAus @ChronicUTI @cUTIrUTIAusNZ
Retweets & shares on Facebook/Insta appreciated- you never know who may see it.

[CUTIC @cuticuk]

Can anyone help Eleanor with her important work - research workshop held in London.

[Barrie Engel @BarrieEngel]

Campaigning works! Chronic Embedded UTI has finally gotten the acknowledgment sufferers need.

[CUTIC @cuticuk]

Urgent appeal for all CUTI sufferers please complete this important, short survey into the prevalence of chronic uti and QofL issues. Research by Eleanor Stride, Oxford University, who is developing the nano capsule treatment.

https://t.co/f7KQdKGR41