So privileged to present at RSM Vasculitis Meeting. Absolutely enlightening session on 'Living with vasculitis – what matters most?' by John Mills, Julie Power, Shanali Perera. Shanali presented her amazing art work as therapy for vasculitis. Thank you @shanaliperera2@anzmusc
Brandneu in der FAZ! Die Beilage zum Thema Seltene Erkrankungen:
“Medizinische Detektivarbeit: Die ANCA-assoziierte Vaskulitis erkennen und behandeln. Prof. Dr. med. Hellmich. Absolut Lesenswert !
#Vaskulitis#ANCA#AAV#GPA#MPA
https://t.co/6B1LW3vkuf
Last year it started with a poster and a Vsign. Today is WorldVasculitisDay, for the second year we’re marking this special Day to create awareness about Vasculitis such as ANCA- Vasculitis AAV. I am completely amazed by the strong community Stronger Together💪 WVD ✌️
Join the Rare Disease Investigation Team and put your expertise to the test in our interactive challenge on ANCA-associated vasculitis: Investigate AAV.
To take the challenge, visit: https://t.co/TgvMWK8T5e
#AAV#RareDisease#ANCA#Vasculitis
Today is Rare Disease Day! Did you already show your Strengh in Numbers? If you want to learn more about ANCA-associated Vasculitis visit https://t.co/tJ0zzmanDV #RareDiseaseDay#StrenghinNumbers#AAV#ANCA#Vasculitis
World Rare Disease Day 2021 is taking place this Sunday 28th February to raise awareness for those affected by rare diseases such as AAV. Find out about all the activities taking place at https://t.co/EMdm3MfJpJ
The C5a receptor inhibitor avacopan was superior to a tapering schedule of prednisone with respect to remission of ANCA-associated vasculitis at 52 weeks. There were fewer glucocorticoid-associated adverse events in the avacopan group than in the prednisone group.
We congratulate our partner ChemoCentryx on the publication in prestigious The New England Journal of Medicine of the results of the pivotal phase-III ADVOCATE trial of #avacopan for the treatment of ANCA-associated vasculitis. https://t.co/gBLtRYamr3 https://t.co/LF5rFq6qPu
A couple that looks at each other and you see and feel their bond and their love for each other.Grateful for getting to know them and wish them all the best 😘
Celebrating carers
Carer – Susan Mills
Nominated by John Mills (husband)
"Those two potent tools, Love and Laughter, keep us together. I could not do what I do without ‘My Susan’ alongside.”
#celebratecarers#carers#advent#rare#December
For our Italian speaking followers!
Ecco a voi il frutto della nostra cooperazione con Rare Revolution Magazine. Rare Revolution dà voce ai pazienti affetti da malattie rare come le vasculiti ANCA-associate. https://t.co/Ho0ddgDvZk
#rarerevolutionmagazine#VAA#vasculiti
Thank you #WODC2020 for inviting me to join the Industry panel: „How are we incorporating patients in a meaningful way?" At #ViforPharma the patients are at the heart of what we do and it was great to share examples such as about #AAV myANCAvasculitis
For our Dutch speaking followers!
Bekijk onze samenwerking met Mediaplanet.
Lees het verhaal van expert Chris Hagen (MMC) en Peter & Elisabeth over de impact van ANCA-geassocieerde vasculitis. #mediaplanet
https://t.co/tic0CgGVGO
https://t.co/jGqbRT75LC