Top Tweets for #RareRevolutionMagazine
Join us for @RARERevolutionM's #RareDiseaseDay Takeover tomorrow at 4PM! 🎉 We're excited to support and share insights that amplify voices, promote awareness, and advocate for change in the rare disease community.
🧡💚💙 #RareDiseaseDay2025 #RDD #RDD2025 #RareRevolutionMagazine
We are honored to be featured in the December metabolic edition of @RareRevolutionM Magazine to share flok's vision for a patient-driven transformation of the research and treatment of our rare conditions.
#flok #flokhealth #rarerevolutionmagazine
The rise of AI has transformed medical science over the past decade, sparking breakthroughs for many common conditions. @flokhealth are empowering the #Metabolic community to create the dataset they need to make real medical breakthroughs. https://t.co/NQpC78gPVq
#PKUAwarenessDay
What Rare Disease do you advocate for? Let us know in the comments. #TuesdayTakeover #RareDiseaseNigeria #rarediseaseng #rarediseaseadvocacy #rarerevolutionmagazine
Rare Disease Nigeria seeks to create awareness of rare disease advocacy in Nigeria through partnership with the Cardiac Community and Foundation for Neuromuscular Dystrophy. #TuesdayTakeover #RareDiseaseNigeria #rarediseaseng #rarerevolutionmagazine
RARE Revolution Magazine is proud to partner with
@BioCrystPharma to bring you our #RareDiseaseDay 2023 spotlight edition, elevating the voices of the #HereditaryAngioedema community.
Launching 25th Feb!
Visit: https://t.co/XxjafQpmBH
#RARERevolutionMagazine #RDD
On Tuesday 6 September, we're taking over the social channels of @RareRevolutionM
Give them a follow, so that you can 'LIKE' and SHARE our posts.
When you do more of the rare community will learn about Myhre.
#myhre #moveformyhre #rarerevolutionmagazine
All of us parents at @cure_mito want to thank Rare Rev for inviting us to #TakeoverTuesday! We hope you have learned about Leigh syndrome. Hope your Tuesday has been great!
https://t.co/1wqFowr1NB
#curemito #leighsyndrome #rarerevolutionmagazine #tuesdaytakeover #thankful
Rebecca Pender shares her wealth of wisdom as someone who has been through the ups and downs of #RAREparenting.
Please READ, LEARN, SAVE & SHARE our 10 Top Tips for RARE parents of RARE children:
https://t.co/C2PXKcqsAW
Read the special edition of RARE Revolution Magazine at https://t.co/pT4MUjkjo6. This edition is dedicated specifically to ANCA-associated vasculitis (AAV) and is available in English, German, French, Spanish, Italian and more
#AAV #Vasculitis #RareDisease #rarerevolutionmagazine
Thank you #RareRevolutionMagazine for your interest for Patient Engagement at #ViforPharma. Let us all show the #Strenghinnumbers for #RareDiseaseDay #ANCA-associated Vasculitis patients we SEE YOU we HEAR YOU. https://t.co/ahZzq8QOFj
For our Italian speaking followers!
Ecco a voi il frutto della nostra cooperazione con Rare Revolution Magazine. Rare Revolution dà voce ai pazienti affetti da malattie rare come le vasculiti ANCA-associate. https://t.co/Ho0ddgDvZk
#rarerevolutionmagazine #VAA #vasculiti
I feel incredibly honoured to have a 5 page spread in this month’s issue on my experience living with FCS as well as being on the front cover of this spotlight edition 🤍 #rarerevolutionmagazine #frontcover #raredisease #fcsawarenessday
Emma has taken on the 7 day awareness challenge for #dazzle4rare! Emma tells us why she is so grateful for the rare community and her role here at #RARERevolutionmagazine #day6
Today at #VasculitisDay #ViforPharma is launching in collaboration with the #rarerevolutionmagazine and PAN-EU Patient Associations the Special Edition about #AAV #ANCA-associated #vasculitis ! Specials thanks to all contributors!!! https://t.co/9AGHHQqzdZ
🍂 Autumn edition of #RareRevolutionMagazine is out now! Demystifying GENE THERAPY -
.
@RareRevolutionM @OPENHealth
#genetherapy #clinicalresearch #therapeutics #patientvoice #familyvoice #PatientAdvocacy #geneticmedicine #biopharma #RareDisease
https://t.co/gllTZBF9s3 -
We are proud to be a Charity Partner and an integral part of #RARERevolutionMagazine, helping to bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community. It’s time to turn the tide! #autoinflammatory
We are proud to be a Charity Partner and an integral part of #RARERevolutionMagazine, helping to bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community. It’s time to turn the tide! https://t.co/m4OOb7XyEs
Attention: RARE disease community! Come and join the RARE Revolution, it's time to talk about the zebra in the room! #RareDisease #Healthcare #MedicalZebra #PatientGroups #PatientAdvocacy #TheZebraInTheRoom #RARERevolutionMagazine
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