PTEN World

PTEN World, is the largest international online support group for families living with PTEN Hamartoma Tumor Syndrome.

[World Health Network @TheWHN]

Telehealth saves time traveling to and from appointments – and that means less disruption to work and other daily activities. Those without access to transportation and those who live far from their healthcare providers rely on telehealth to see their clinicians. But without Congressional action, Medicare telehealth coverage is ending soon for millions.

If your provider participates in an Accountable Care Organization (ACO), some telehealth benefits may be available (https://t.co/jFL6N7JiC1).

Learn more about telehealth access and its impact at: https://t.co/mD6BYmSXyb

Please share this post to raise awareness.

[World Health Network @TheWHN]

Telehealth reduces the risk of infection by allowing patients to receive medical care from home. But without Congressional action, Medicare telehealth coverage is ending soon for millions.

If your provider participates in an Accountable Care Organization (ACO), some telehealth benefits may be available (https://t.co/CPrckkrTph).

Learn more about telehealth access and its impact at https://t.co/sPkZaSRQUA.

Please share this post to raise awareness.

#Telehealth #COVID19 #COVID #PublicHealth #COVIDConscious #PublicSafety #CommunityHealth

[RARE Foundation @RareAdvocates]

Top 5 Reasons why YOU should join us for #RareDisease Week February 24th to the 28th! #RDW2019

https://t.co/cBYRGilZDJ

[PTEN World @ptenworld]

And thank you, @Neady8, for the RT! :)

[PTEN World @ptenworld]

Happy #WWPTENAWARENESSDAY! We've been sharing #PTEN awareness ideas throughout today on our FB page: https://t.co/Z9L4tx6WBy. You're welcome to join us on FB!
#PHTS #CowdenSyndrome #BRRS

[PTEN World @ptenworld]

And thank you, @GlobalGenes, for the RT! :)

[PTEN World @ptenworld]

And thanks, @klcrocodile, for the RT! :)

[PTEN World @ptenworld]

Thanks for the RT, @beatingcowdens! :)

[PTEN World @ptenworld]

Thank you for sharing, @danarnie.

[Danny Daly-Arnett @danarnie]

Today is the inaugural PTEN Syndrome Awareness Day - our youngest son has a PTEN Mutation (his is manifested in large head and body size) - as well as ASD. We are trying to spread the word as it is still a bit of an unknown genetic condition #PTENAwarenessDay #WWPTENAWARENESSDAY

[Charis Eng, MD, PhD @CharisEngMDPhD]

This is a model of what the PTEN gene looks like, created by a post-doc in #CleClinicGenomics lab. #PTENAwarenessDay

[Charis Eng, MD, PhD @CharisEngMDPhD]

Another great photo for #PTENAwarenessDay! #CleClinicGenomics

[Charis Eng, MD, PhD @CharisEngMDPhD]

Love this one from @fcheng234: #CleClinicGenomics #PTENAwarenessDay photo contest!

[Charis Eng, MD, PhD @CharisEngMDPhD]

#PTENAwarenessDay #CleClinicGenomics

[PTEN World @ptenworld]

Love this pic! Thank you, @RayOfShreya, @CharisEngMDPhD, and the rest of the team at #CleClinicGenomics!

[PTEN World @ptenworld]

Congratulations, @CharisEngMDPhD! Thank you for all that you do to help people with #PHTS!

[Charis Eng, MD, PhD @CharisEngMDPhD]

I am very honored and extremely humbled to receive this award, and wouldn't be here without my research & clinical teams, colleagues, collaborators, mentors, parents, @ClevelandClinic and Dr. Serpil Erzurum.

[PTEN World @ptenworld]

Looking for more info? We have more links on @ptenworld's FB page: https://t.co/rzG6JbhYhX.

[PTEN World @ptenworld]

People w/ #PHTS may also develop one or more #disabilities. Please RT if you can relate to @seastarbatita's statement below.

[PTEN World @ptenworld]

Some people with #PHTS develop one or more #disabilities. Sharing this article from @TheMightySite about more representation of people with disabilities in the media.

[The Mighty @TheMightySite]

Teen Vogue’s September issue highlights the disability representation we need. https://t.co/iVGIg48Fpx

[American Cancer Society @AmericanCancer]

Year-round, we honor & support those affected by all types of cancer. In September, we bring awareness to #Pediatric, #Ovarian, #Gynecological, #Prostate, #Thyriod, & #BloodCancer. #AttackingCancer

[PTEN World @ptenworld]

Thanks for sharing, @FacingOurRisk!

[@FacingOurRisk @FacingOurRisk]

#Life can often leave us feeling bogged down or stuck in the dark. There may not be sunshine surrounding our day to day, but we can create the feeling within ourselves. Rain or shine, there is light within us all! Have a beautiful #weekend FORCE Friends! #HBOC #Quote