Beating Cowdens

Daughter and I fighting Cowden's Syndrome. 1 in 200,000. Rare. Invisible. Real. Tumor growths, malignancies, vascular malformations, pain. Raise Awareness!

[Beating Cowdens @beatingcowdens]

@JetBlue my experience trying to close my JetBlue credit card has cured me of EVER wanting to fly JetBlue again!🤬

[Beating Cowdens @beatingcowdens]

@madhatterpress Thanks for sharing your story too. There is power in numbers! Now if I can spend some time figuring out how to navigate social media a bit better...

[Beating Cowdens @beatingcowdens]

NEW BLOG POST #beatingcowdens Raise awareness #PTEN #PHTS Do Better… https://t.co/GPeIcabWPK

[Beating Cowdens @beatingcowdens]

New Blog Post #beatingcowdens What if it all works out? New week, new diagnosis. #POTS

https://t.co/7QHjRqXFjY

[Beating Cowdens @beatingcowdens]

https://t.co/QjxwjiFEjl NEW BLOG POST #PTEN #PHTS #beatingcowdens #PTENAwarenessMonth

[Beating Cowdens @beatingcowdens]

The rain... https://t.co/CNchUeWYvW NEW BLOG POST #beatingcowdens #raredisease #PTEN #PHTS

[Beating Cowdens @beatingcowdens]

New Blog Post https://t.co/153XYpoqNX Thoughts on the year gone by. #beatingcowdens #PTEN #2021reflections

[Beating Cowdens @beatingcowdens]

@ChaseSupport @Chase Is it even normal that I’ve spent 4.5 hours over 3 days on hold, been disconnected at the end of office hours twice, and am only trying to report fraud from a letter you sent me? #unimpressed

[Beating Cowdens @beatingcowdens]

Vote for Ella in the 1st Annual Medical Mutts Service Dog Team Calendar Photo Contest https://t.co/MkmOqB8TW6

[Beating Cowdens @beatingcowdens]

I'm not crying- wait, yes I am. #beatingcowdens #PTEN #PHTS #raredisease #college #classof2021 NEW BLOG POST https://t.co/JzqaXYYTFF

[Beating Cowdens @beatingcowdens]

https://t.co/SyxrrGPDmO NEW BLOG POST #beatingcowdens #RareDisease #PTEN #PHTS #servicedog

[Beating Cowdens @beatingcowdens]

https://t.co/hOFMx3gbIN Killing time watching the grass grow. NEW BLOG POST. Covid comes to BeatingCowdens. #RareDisease #PHTS #PTEN #COVID19

[Social Health Network @socialhealthnet]

To the patients who are not only advocating for themselves but their loved ones who also live with a health condition, find hope in this #WEGOHealthAwards Patient Leader Hero finalist's words.💫

Join the @PTENFoundation community here: https://t.co/EqiqlEpmYg

#PTEN #Cancer

[Beating Cowdens @beatingcowdens]

Check on your teacher friends. https://t.co/vTo8xzHYXJ

#Beatingcowdens #Pandemicteaching NEW BLOG POST

[Beating Cowdens @beatingcowdens]

NEW BLOG POST #beatingcowdens Puppy Steps #PTEN #PHTS #hEDS #servicedog Moving Forward https://t.co/0MXK0p65aR

[Beating Cowdens @beatingcowdens]

NEW BLOG POST. Easy is for Amateurs https://t.co/G4ihs4TCl8

The team begins to bond. #beatingcowdens #PTEN #PHTS #hEDS #RareDisease #servicedog #teamtraining

[Beating Cowdens @beatingcowdens]

https://t.co/8vBa0yu4JQ

NEW BLOG POST. Meet ELLA. A LONG awaited step in the process. #beatingcowdens #PTEN #PHTS #hEDS #servicedog #movingforward

[Beating Cowdens @beatingcowdens]

@Hyundai How can I have a virtually NEW Tucson and no ability to take it on a 750 mile medically necessary trip as there is a brake recall? I need the car repaired NOW. No one will even answer a phone. Empty promises won't help.

[Beating Cowdens @beatingcowdens]

My new Tuscon @Hyundai- purchased in September has a recall. 750 mile medically necessary trip pending. No timeline on the parts. No rental. No comparable loaner. No one calls back.Mailboxes are full.Complaint office "closed."Empty promises.This is my prize for customer loyalty.

[Beating Cowdens @beatingcowdens]

Does anyone work @Hyundai? Recall on the car. 750 mile medically necessary trip pending. No timeline on the parts. No rental. No comparable loaner. No one calls back. Mailboxes are full. Complaint office "closed." Empty promises. This is my prize for customer loyalty.