Danielle D. Leach, MPA

Patient advocate, mom, & nonprofit professional working to empower & engage all stakeholders to conquer cancer. All opinions expressed my own & not my employer

[HOPARX @HOPArx]

Join HOPA in calling Congress to support the #SafeStepAct. We know that one-size-fits-all step therapy policies cause unnecessary delays + negative health consequences.
Call on your lawmakers to co-sponsor the #SafeStepAct with our letter-writing campaign https://t.co/4tWMwhQZ1V

[ARPA-H @ARPA_H]

ARPA-H delivers health breakthroughs in years, not decades.

From cancer care and brain repair to microplastics, we take on challenges that demand speed, scale, and a different approach.

Subscribe to Vitals for the latest science, funding opportunities, deadlines, and events.

The future of health will not wait. Neither will we. https://t.co/7ABSHOw9dB

[ARPA-H @ARPA_H]

150 million Americans struggle with poor sleep. Current insomnia treatments fail more than 70% of patients.

ARPA-H launched REST to move sleep medicine beyond tracking and into treatment.

We are looking for leading teams across sleep, neuroscience, biosensing, AI, engineering, and neuromodulation ready to take on one of the biggest drivers of health.

Sleep medicine needs a wake-up call. Register for Proposers’ Day. https://t.co/ODfWn03uBd

[CAPC @CAPCpalliative]

Patients and families can learn more by visiting CAPC’s patient and family website. Resources include this downloadable handout titled 'Palliative Care: What You Should Know', available in English and Spanish

Download >>
https://t.co/vIZIzKCdqU

[ARPA-H @ARPA_H]

The lymphatic system is one of the body’s most important networks, shaping immunity, healing, and brain health.

Join ARPA-H Program Manager Kimberley E. Steele, M.D., Ph.D. for a look at ARPA-H’s work to help launch a new field of lymphatic medicine.

See prototypes, explore programs, and connect with performers and partners.

📍 Why Lymphatics; Why Now?
Wednesday, June 24 | 1:00 PM
Booth: 6157
RSVP: https://t.co/x1TakyAdsO

[The Patient-Centered Outcomes Research Institute @PCORI]

PCORI is seeking public comment on a comprehensive update to its Methodology Standards for patient-centered CER.

Take advantage of this opportunity to help shape the conduct of patient-centered CER! https://t.co/ukAQzzZzw4

[The Sontag Foundation @sontagfdn]

Our sister organization, @BTNcares, provides free personalized navigation and support for patients and caregivers navigating a brain tumor diagnosis. Click here to learn more: https://t.co/CPag64LnRS

[OVAC @OVACInfo]

OVAC thanks the House Appropriations Committee, especially @TomColeOK04, @Robert_Aderholt and @rosadelauro, for providing funding increases for @NIH, @theNCI and @CDC_Cancer and maintaining support for @ARPA_H. Federal support for cancer research and prevention saves lives!

[National Organization for Rare Disorders (NORD) @RareDiseases]

Today in Boston, during the @orphan_drugs World Orphan Drug Congress, #NORD CEO Pamela Gavin delivered opening remarks stating, “A therapy is not truly available when it is approved. It is available when a patient can actually receive it.”

She then joined fellow patient advocates for the panel, “Building a Patient-Centered Policy Framework for #RareDisease Drug Development,” where she emphasized the need for more de-siloed #DrugDevelopment grounded in a shared understanding of patient needs, experiences, and outcomes.

Thank you to our fellow panelists today for this meaningful discussion!

@argenxglobal @nyugrossman #WODC #RareDiseases

[ARPA-H @ARPA_H]

Tens of millions live with permanent disability after brain injuries such as stroke, disease, or aging. Current therapies help people cope but cannot restore lost brain function.

The BRAINS Exploratory Topic aims to advance regenerative neuroscience by engineering graftable precursor tissues and testing their integration into adult brains.

Now accepting proposals from bold, interdisciplinary teams.

https://t.co/bYocHMftru

[ARPA-H @ARPA_H]

The lymphatic system affects nearly every part of human health, but patients with lymphatic disease have been left without effective treatment options.

But now, ARPA-H Program Manager Kim Steele is turning one of medicine’s most neglected systems into a new frontier for diagnosis and treatment.

Hear more on Health & Veritas: https://t.co/zkHTFUpJZk

@thehowie @meganranney

[ARPA-H @ARPA_H]

At yesterday’s Healthy Buildings Demonstration Session, ARPA-H was honored to receive a Leadership in Innovation Award from organizations championing cleaner, healthier indoor air.

Through BREATHE and PRO-MICROBE, ARPA-H is helping define a new future for indoor spaces, one where buildings can detect health threats earlier, respond faster, and better protect the people inside.

See how ARPA-H is leading the next frontier in indoor air innovation. 🔗 https://t.co/0GHdTkCbG8

@IFMA @WELLcertified #AAFA

[ARPA-H @ARPA_H]

America’s mental health crisis demands more than awareness. It calls for action.

That’s why ARPA-H is investing $139 million in EVIDENT to accelerate the breakthroughs that will usher in the next era of mental health care. This week in Madison, EVIDENT’s 23 teams came together to launch the first two years of this urgent work.

This week also marked the culmination of a busy Mental Health Awareness Month for ARPA-H, in which we amplified the voices of the veterans, advocates, and innovators who are driving EVIDENT forward. Real progress is powered both by bold action and the people it is meant to serve.

Listen to their stories here: https://t.co/veFZtzfDMP

[ARPA-H @ARPA_H]

Gene therapy. Regenerative medicine. Fertility breakthroughs. The next leap in patient care is still to be built. ARPA-H is at #BIO2026 in San Diego looking for ideas that can redefine what medicine can do and how quickly it can be delivered. We are focused on turning bold thinking into real solutions for patients. Request a meeting with our Program Managers and help drive what comes next. https://t.co/m5H6QKVUPx

[NIH Innovates @NIH_Innovates]

How can standardized pediatric EHR data support your research? Join the National Library of Medicine on Friday, June 5, 12–1:30 p.m. ET to learn how researchers can use the PEDSnet dataset—clinical data from children’s hospitals nationwide—to support studies and generate insights. Hear directly from the experts managing the resource.

Register here: https://t.co/Q5S2t4iLdk

[HOPARX @HOPArx]

Calls for HOPA's Research Fund Award are now open, with up to $75,000 in research funding available for up to three applicants. Submit your Letter Of Intent and find out more here: https://t.co/wQjz43Pzkx

[Dr. Anthony Letai @NCIDirector]

#ASCO26 brings together the best minds in oncology — what happens here translates directly into better outcomes for patients. Looking forward to connecting and collaborating with colleagues this week in Chicago. Find @theNCI-supported science and sessions: https://t.co/zZBwfXctLQ

[CAPC @CAPCpalliative]

The number of caregivers in the U.S. continues to grow, just as the impact on their well-being intensifies. Psychosocial support for caregivers improves care quality, cost-effectiveness, and outcomes for both caregivers and those they care for.

CAPC's toolkit 'Caregiver Support Program Implementation' offers resources to help hospitals and other health care organizations design, launch, and grow evidence-based, financially sustainable caregiver support programs.

Check it out today >> https://t.co/5jEzVgac84

[ARPA-H @ARPA_H]

ARPA-H is heading to #BIO2026 in San Diego. If you are working on something that could change how patients live, whether in gene therapy, regenerative medicine, or fertility care, we want to hear about it. Request a meeting with our Program Managers and help define what comes next in medicine.

https://t.co/m5H6QKVUPx

[NIH @NIH]

Program update: The NIH Director’s Early Independence Award Program remains active, and current awardee projects are continuing without interruption. In 2025/2026 administrative actions were taken to align the program with agency priorities. Forthcoming announcements for the 2027 award cycle will be released later this year.

Check back here for updates: https://t.co/gCUMuTkktR