part-time disabled academic

Musings from an academic learning the reality of what it means to have a disability at work and working part-time.

[part-time disabled academic @DisabledPart]

So I'm learning what it means to have a #disability and also returning to work part-time. It's not very fun!

[part-time disabled academic @DisabledPart]

Those with #longcovid knew this day was on its way. We've been gaslit since the beginning. #ME/CFS doesn't exist either, presumably.

[Together @Togetherdec]

COVID "There is no such thing as long Covid, say health officials"

"Doctors in Queensland say the condition is no different to any post-viral syndrome"

#LongCovid

[Science Magazine @ScienceMagazine]

A #SciencePerspective by @zalaly and @EricTopol identifies key issues that need to be prioritized in the study of #LongCovid.

Learn more on #LongCovidAwarenessDay: https://t.co/PaYw6CF7Pf

[Karyn Bishof @K_Bishof]

Today, on #LongCOVIDAwarenessDay, I hit my 4 yr #COVID anniversary, which resulted in me becoming #disabled from #LongCOVID as a healthy, 30 yr old firefighter/ paramedic & single mom. Here is my story& todays feelings. 1/18

[part-time disabled academic @DisabledPart]

@maosbot To be fair, once you're part of the disability group, people will expect you to be more stupid anyway, so best to keep within norms...!

[part-time disabled academic @DisabledPart]

Meanwhile, thank you so much to all of you who are posting and sharing about your #LongCovid journey. It helps. I hear you and see you. I am sending you kindness, courage and compassion.

[part-time disabled academic @DisabledPart]

I'm fed up with academic colleagues getting funding and promotions and congratulations on their brilliant #longcovid research while neglecting or just plain old ignoring their longcovid colleagues within the Academy.
#AcademicTwitter #AcademicChatter

[part-time disabled academic @DisabledPart]

I'm so sick of research papers on #LongCovid with 'new' findings on individuals after 1 year of the condition. I'm sick of all of you not researching the people who have been dealing with 4 years of this condition.

[part-time disabled academic @DisabledPart]

#LongCovid has left me with #epilepsy and #MCAS. Maybe I've had it all along. Work don't help. They have allowed me to work from home. But I'm more and more isolated. My mental health is deteriorating rapidly.

[part-time disabled academic @DisabledPart]

I haven't been on here for a while.
My return to work has been traumatic.
4 years of #LongCovid and I'm getting worse.
I've called the @samaritans 3 times desperate because symptoms have been uncontrollable.

[part-time disabled academic @DisabledPart]

Let's see how many studies come out over the next 5 years validating and confirming what #LongCovid patients have been trying to tell their GPs and employers for the past 3 years.

[part-time disabled academic @DisabledPart]

@MEAssociation Does #MECFS ever stabilise? Do symptoms stop varying? I am beside myself with the evolving nature of #LongCovid. My mental health is worsening and it's in part because #symptoms keep changing and it's variability that is driving my crazy.

[part-time disabled academic @DisabledPart]

Is there something on the pattern of #MECFS over 10 years? After 3.5 years of #LongCovid, and interacting with those with longcovid after 1-2 years, I can see that there is a real pattern of how things go. Can anyone recommend what 10 years of ME/CFS looks like? #symptoms

[part-time disabled academic @DisabledPart]

Taking part in a #LongCovid online support group organised by a Long Covid clinic makes me see my own evolving 3.5 trajectory of #symptoms so much more clearly.

[part-time disabled academic @DisabledPart]

Researching #LongCovid is like a full time hobby and job rolled into one.

[part-time disabled academic @DisabledPart]

@HelenRSalisbury @BBCRadio4 Because it's the same same same. Just reporting the crap that's going on in the UK doesn't cut it anymore.

[part-time disabled academic @DisabledPart]

@GeoEduOne And yet I didn't even show any antibodies 3 weeks after the 2nd vaccine. #LongCovid

[part-time disabled academic @DisabledPart]

7) Updated ventilation and air systems in all public buildings; government subsidies to get this in place quickly.
8) Manager training in work places; to be treated as a disability.
9) Access to breathing exercises and rehab to help manage symptoms.
10) Take time to rest!

[part-time disabled academic @DisabledPart]

This is how I would deal with covid and long covid...
1) Masks optional;
2) Don't come to work if you are sniffley, coughing or feverish. Whatever you've got, don't spread it.

[part-time disabled academic @DisabledPart]

3) Those diagnosed with long covid or immuno-compromised to be able to work from home if possible; retain employees where possible.
4) Reduced taxi rates for elderly.
5) Free Vit D for all.
6) Open windows required on public transport unless ventilated.

[part-time disabled academic @DisabledPart]

@LongCovidNews Nah, 3.5+ years on... it didn't make the cut.