@EverydayHealth@Endofound@Endo_Jenn A7. I haven’t personally had negative experiences, but sometimes I see chats end up being less than supportive. We're all here to learn and support each other. When wording is slightly off, my wish is that we gently correct each other & assume best intentions. #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A6. Of course, I am biased being the ED @EndoFound. We try to put out constant, high-quality information on our website, through medical conferences, our patient symposium and via social media daily. https://t.co/wAC67SKj72 #EverydayEndoChat
@EverydayHealth@Endofound@Endo_Jenn A5. I used to turn to fellow docs. While it was nice to have professionals around me, I must say, it was really surprising just how many clashing opinions I got about surgery vs oral contraceptives, vaginal rings, IUD, etc. My husband has been a HUGE support #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A4. cont’d: …but even more frustrated by the lag in the insurance world in the way the right type of surgery is NOT reimbursed; discourages good docs from doing excisional endo surgery. #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A4. cont’d: As a primary care doctor who sees patients with endo, and as an endo patient myself, I am extremely disheartened by the relatively few doctors who are trained to perform this type of surgery (given the number of women affected)… #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A4. cont’d: …I travelled to NYC in order to do the entire procedure, involving expert gyn, colorectal and urological surgeons at the same time; no colostomy, thank goodness! #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A4. cont’d: …I learned that no one nearby was willing to do gynecological surgery that involved urinary tract and bowel resection at the same time. They needed to perform the surgery in stages, and I was almost guaranteed to end with a colostomy... #EverydayEndoChat
@EverydayHealth@Endo_Jenn@Endofound A4. My journey has involved multiple surgeries – from ablations, to bowel resections to the more recent larger, excisional surgery in NYC four years ago. I live in Wyoming, and after seeing multiple doctors in the region… #EverydayEndoChat
@EverydayHealth@Endofound@Endo_Jenn A3. As a medical doctor, I learned about endometriosis in med school, though education was limited during 2nd year. As a Resident, I learned more during my gynecological training and suspected I had it during those years while suffering significant pain. #EverydayEndoChat
@EverydayHealth A2. I was diagnosed at age 32 during an appendectomy. I had been seeking care for horrible pelvic pain for 15 years at that point. First surgery had been at age 17 for ovarian torsion. We now know that was most likely caused by a chocolate cyst #EverydayEndoChat@Endofound