RareDxRd

RD working in rare conditions | Always finding FOODS for PKU | Join me! Become a Partner for PKU | @pkunews

[RareDxRd @DxRare]

@NutritionEquity meeting with my MOCs, tweeting, generally nagging :)

[RareDxRd @DxRare]

@SenatorRisch @MikeCrapo @SteveDaines @MittRomney @MattForMontana If you want to decrease Medicaid costs, then pass #MNEA. Treatment by way of #medicalfoods is much cheaper than hospitalizations or residential care from lack of treatment @NutritionEquity #SPEAKUP4MNEA

[RareDxRd @DxRare]

Lifetime costs of #medicalfoods < lifetime costs of untreated or undertreated #IMDs. Hard.stop @NutritionEquity #SPEAKUP4MNEA

[RareDxRd @DxRare]

Term infant formula: $14.00 per can.
Term infant formula for #PKU: $23.00+
#barriertotreatment @NutritionEquity #medicalfoods #SPEAKUP4MNEA

[RareDxRd @DxRare]

Can of OTC nutritional shake: $2.00
Can of specialized #medicalfood for certain GI conditions: $5.00
#coverage @NutritionEquity #barriers #SPEAKUP4MNEA

[RareDxRd @DxRare]

@curedfoundation @NutritionEquity We (all people) should want folks to have their #medicalfoods without having to have multiple surgeries to get a feeding tube. #SPEAKUP4MNEA

[RareDxRd @DxRare]

My spaghetti noodles: $0.99 per box.
Low-pro spaghetti noodles: $9.95 per box.
#barriertocare
#SpeakUp4MNEA @NutritionEquity

[RareDxRd @DxRare]

#medicalfoods are not regular foods. They require specific manufacturing to ensure safety to the individual taking them. Just like medication. The cost of #medicalfoods is much higher than other foods. #letsgetcovered #SpeakUp4MNEA @NutritionEquity

[RareDxRd @DxRare]

Lack of insurance coverage & cost are the 2 most prominent barriers to treatment. Many adults with #PKU cannot afford their #medicalfood because it is >$1000 per month! #SpeakUp4MNEA @NutritionEquity

[RareDxRd @DxRare]

If you have liver disease, chances are you need #medicalnutrition #SpeakUp4MNEA @NutritionEquity

[RareDxRd @DxRare]

If you have Cystic Fibrosis, chances are you need #medicalnutrition #SpeakUp4MNEA

[RareDxRd @DxRare]

#SpeakUp4MNEA #medicalfoods give hope, treatment, and quality of life for all those with #IMD or #fpies #eoe and other GI conditions. Just like #chemo treats cancer. #letsgetcovered @NutritionEquity

[RareDxRd @DxRare]

@NutritionEquity Medical foods & formulas have *literally* saved the lives & livelihoods of thousands of people! Medical foods are medicine! #SpeakUp4MNEA

[RareDxRd @DxRare]

#SpeakUp4MNEA @nutritionEquity. Eating, chatting, drinking with all those who need medical nutrition

[RareDxRd @DxRare]

Join us in celebrating #NationalPKUAwarenessMonth over @JuliasFarms on IG for an awesome giveaway! #pku #pkuawareness #pkunews #partnershipforpku #juliafarms #generosity

[RareDxRd @DxRare]

I have a not-so-secret love affair with @Chobani. #pku #nondairy #pkunews #fairtrade #ethical

[RareDxRd @DxRare]

@katzglutenfree We miss you! We'd love to reengage with you re: #partnershipforpku. Can we get back together? #pku #howmuchphe

[RareDxRd @DxRare]

@GoGosqueeZ We miss you! We'd LOVE to renew our partnership w/you. #partnershipforpku Let's chat!#PKU #howmuchphe @howmuchphe

[RareDxRd @DxRare]

@TheJenGarner I'm a dietitian and I LOVE OUAF! They are perfect for our kids with PKU. @pkunews

[RareDxRd @DxRare]

Hey @mittromney_sen #belikemike and co-sponsor our important legislation the #medicalnutritionequity

...@CongMikeSimpson
...@NutritionEquity
...#medicalnutritionequityact
...#PPMNE
...@IntermountainP @HeidiMaxfield @pkunews #pkunorthwest