IntermountainPKU

Providing support/services to individuals with PKU & Allied Disorders, and creating awareness from our corner of the world. #intermountainPKU

[PTC Therapeutics @PTCBio]

#BreakingNews for #investors and #media: We are proud to announce the U.S. FDA has approved our treatment for children and adults living with phenylketonuria (#PKU). Read the press release for more: https://t.co/l8dVB9zNyw

[IntermountainPKU @IntermountainP]

https://t.co/iAtMOS5Thu
#PKUCamp

[IntermountainPKU @IntermountainP]

Just posted a photo https://t.co/m5sp0kzRi5

[IntermountainPKU @IntermountainP]

Just posted a photo @ Washington D.C. https://t.co/Uxh4y8JPXr

[IntermountainPKU @IntermountainP]

Just posted a photo https://t.co/Fg9HNCTO3k

[IntermountainPKU @IntermountainP]

@SharonBuckley @NSPKU @macdonj Folks in the USA swallow the pills whole with no problems.

[IntermountainPKU @IntermountainP]

Just posted a photo https://t.co/8VuWXOT5sZ

[IntermountainPKU @IntermountainP]

Just posted a photo https://t.co/oOQ8yOKu38

[IntermountainPKU @IntermountainP]

Our congratulations also extend to @UtahDHHS @AndyRohrwasser for his prestigious award!

[IntermountainPKU @IntermountainP]

IPAD would like to congratulate @BerryS730, MD, professor, Division of Genetics and Metabolism, Department of Pediatrics, University of Minnesota, for receiving the Clinician Champion Award by the Association of Public Health Laboratories (APHL) at its 2022 Symposium!

[IntermountainPKU @IntermountainP]

@poconnor We are! @intermountain_pku

[IntermountainPKU @IntermountainP]

@mckellar_paul @PKU_Kate In the USA it is usually 30 days with blood tests every week

[IntermountainPKU @IntermountainP]

@GOLIKEmetabolic Any plans to make this new product available in the USA?

[IntermountainPKU @IntermountainP]

Exciting news about a potential new treatment for #PKU

[Synlogic @synlogic_tx]

Following a remarkable year of progress that included proof-of-concept in #PKU, today we look ahead to significant clinical milestones in 2022. See our press release for details https://t.co/Ehcz95XBc2

[IntermountainPKU @IntermountainP]

If you have ever used the NORD PKU assistance program, we need your help! It will only take a few minutes and will make a big difference.

[PKU News @howmuchphe]

NORD’s PKU assistance program has been suspended until they secure funding for 2022. Share what NORD assistance means to you. https://t.co/PsqcKUZYcp Or send your letter directly to [email protected]. Comments due by SUN 1/9 @ 9:00 pm CT. More updates as available.

[IntermountainPKU @IntermountainP]

Happy New Year from your friends at Intermountain PKU! We wish you a healthy 2022 filled with low phe levels!

[IntermountainPKU @IntermountainP]

Looks delicious!😋

[Cook for Love PKU @PKUCookforLove]

Low Pro Focaccia on Cook for Love https://t.co/Kmlh9Z57n0 #lowpro #pku

[IntermountainPKU @IntermountainP]

Restocked with wheat starch! Our emergency essentials food containers come in handy for this essential #lowprotein baking ingredient! Now, what shall we bake?🍪🍩🍰🧁
#PKU #IMD

[RDLA @RareAdvocates]

Congratulations to the 2021 RareVoice Award recipients! #rarevoice2021
In case you missed it, please enjoy #RareVoice2021 show here: https://t.co/ArKZHxRta1
To view full list of awardees visit: https://t.co/kHNeuIeYaX

[IntermountainPKU @IntermountainP]

@PKUFamily @LizTwistMP @NSPKU @MetabolicsBCH @ChrisMRiches Congratulations!! Wonderful to see all the hard work by the #PKU community pay off! Finally good news for all #PKU patients!