Extra Special Kids

The ESK Group of Ireland has 200 members. We are all mums of children with life limiting conditions. Sign the Petition! via @Change

[Extra Special Kids @ESK_IRELAND]

Please retweet and help get these ladies to Europe @FamiliesOut #EuropeanElections2019 #HealthFirst @McNiffecent @oliveblogs @C_Worthington1

[Families Speak Out #EE19 @FamiliesOut]

Please share. We need a little help seeing as we have a poster free, paperless campaign. Thank you all 🙏 https://t.co/e5CgIGZmyP #ClimateEmergency #HealthFirst @McNiffecent @oliveblogs @C_Worthington1

[Extra Special Kids @ESK_IRELAND]

Hold your precious children tight. In the past 4 mths we have lost 5 little children from our lovely little support group of medically complex children with life limiting illnesses. @JackandJillCF @LauraLynnHouse @TempleStreetHos @CMRF_Crumlin #LifeIsSoPrecious #AppreciateEachDay

[Extra Special Kids @ESK_IRELAND]

This is important. @sammievillena @Sammlesie @shinebox2 @nevrossdublin @mark_fitzpat @chelleylong

[Gabrielle Ní Challaráin @GColleranMD]

@McNiffecent @scolionetwork @aarondalydub @AddressingLife @StephenAMcMahon please RT and respond. So important the parental & patient voice is heard at study design stage: asking the questions that have patient impact thank you 🙏🏼🙏🏼🙏🏼

[Extra Special Kids @ESK_IRELAND]

https://t.co/cNs3A0JVb7 Pls read & share regarding the new children’s hospital fiasco! No date in sight for completion yet price tag is now €2.4 Billion!!! And no maternity Co-location for ill newborns so outcomes can’t & won’t improve so still at risk of death or disability. RT

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

The adults are there in their own right representing people with disabilities. Their focus is Changing Places, Accessible Transport, Respite and Homecare packages. They will have copies of the CRC Prebudget Submission with them. Pls go along to support. @centralremedial 2/2

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

************TODAY********* there is a campaign outside Leinster House at 1pm, Some people will be wearing the Changing Places T-Shirts, Some are wearing yellow.
The campaign is driven by the Adults Services Council in the CRC. #incLOOsion @centralremedial @ChangingPlacesI 1/2

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

Thanks to everyone who RT’d or shared my letter elsewhere, it’s much appreciated. Here’s another chance if you didn’t yet! Thank you 🙏 https://t.co/50KWiu9oza #CareCantWait #clearthelisteveryday

[Make Way Day @MakeWayDay]

As #MakeWayDay campaigners we know that most people’s heart is in the right place. Most obstacles are due to lack of awareness. Parking on the footpath is the top blocker and we’ve enlisted the support of Assistant Commissioner Dave Sheahan of @GardaTraffic

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

It’s flu season. So get the vaccine if you’re on the at risk list. It’s available now in most Doctors. It’s really important & this year the Aussie Flu is coming, it’s not good.
Jack is immunosuppressed so the whole family get vac’d. Just a reminder for those who do vaccinate.

[Nev Ross @nevrossdublin]

For Carers out there It’s finally Tuesday, that means it’s 6 more days until it’s Monday again and then 365 days until it’s another year, no weekends off, no holidays to recharge, no payment, not recognised, just a cycle of #Day2Day providing #24hrcare @ReginaDo @mark_fitzpat

[arlette lyons @Arlettemlyons]

I’m in search of a charity in Dublin that would allow my lovely 16 year old to do some volunteer work he is in ty and is looking to do 2 weeks in October??? Any suggestions thank you

[Extra Special Kids @ESK_IRELAND]

Pls RT https://t.co/ntKuQ2jpm1

[Laura Durcan @Rheum2improve]

Standing up for timely patient care. #CareCantWait @IHCA_IE @DrPayEquality @jeanniejampots @PickleQueen77 @davidjvaughan @DrABurke @samejw @mcdennedy @SimonHarrisTD @Paschald

[martinmcmahon @williamhboney1]

So it turns out that privatization of #CervicalCheck led to sub contracting, sub sub contracting and sub sub sub contracting with quality reducing all the way along the line.

Exactly what happens with all priviatization. Who'd a thunk it?

[Raymond Shannon @Raymond18161478]

No consultant
No senior psychologist
No child care leader
No clinical nurse manager
These should be in place according to vision for change 2006. That's for a population of 50 000.
Now wex.south pop is now 80,000.
I never give up fighting for CAMHS and the children Wexford

[Noreen Curtis @AchillDoc]

@IrishTimes There are no words ... Also @IrishTimes - come and work an 80 hour shift with me and then write about that. I promise to wake you for every call. @SimonHarrisTD @DonnellyStephen @LeoVaradkar @MichaelRingFG

[Sandra @NiDhubhda]

Crumlin Hospital informed me that a 4 year waiting list exists for dermatology out patients appointment. Advice get your doctor to write a referral for SVUH as patient will be 16 at end of month. Dochreidte

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

So ... it’s Carer’s Week @SimonHarrisTD @FinianMcGrathTD @KZapponeTD @ReginaDo @LeoVaradkar @FineGael @fiannafailparty What are you going to do for Carers? @CarersIreland

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

You have ignored this for years. You clapped yourselves on the back when you brought in the MenB vaccine for the baby vaccine schedule (which is great) but what about those children with debilitating conditions who are on the at-risk list? Do you think that’s fair? #MenB

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

@SimonHarrisTD when are you making the #MenB vaccine available to the at-risk group of kids for whom it’s recommended by @HSEImm @HSELive @roinnslainte @LeoVaradkar @KZapponeTD @FinianMcGrathTD #VaccinesSavesLives but only if you give them??? This is a v serious issue. @eilishor