Eating Disorders Podcast

Eating Disorders Off Topic Podcast
Survivor and HAES Aligned

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@jamesldowns When people report their ED just started or they recently relapsed, my *immediate* response is to check and see if there is a major transition or stressful scenario happening in their life. EDs can be protective mechanisms. They’ll need support there, too.

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@jamesldowns “Luckily, you’ve still got a little weight on you, so we won’t worry TOO much. That means you don’t need as much support….”

🤮🤮🤮🤮

[Eating Disorders Podcast @EdOfftopic68292]

@jamesldowns “Guys like girls with meat on their bones”… literally some people with a history of SA intentionally use their ED to protect against THAT VERY THING.
Add in the fact that not everybody’s looking for a man.. or that people don’t NEED to please others….
Just don’t say that.

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@holdspacefree @HLAUnited They didn’t even get to the part about how AI mines user data, how the bots are not HIPAA-compliant, and how these companies often sell user data. Even the NEDA bot terms of use say the company claims user inputs as the company’s own intellectual property once received.

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@CheriLev One MAJOR issue is that “obesity” is based on weight, and it is not in and of itself a disease.
There may be medical factors related to specific behaviors or metabolic processes, but *bodyweight* is not the way to measure that.

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@AgnesAyton Not a very trauma-informed approach…
If being at a healthy weight prevented ED thoughts/behaviors, then ED behaviors wouldn’t START until somebody was already malnourished… we all know that’s not the case.

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@EDCoalition @MarkWarner Anybody know how the NEDA chatbot is doing these days? 🤔

[Eating Disorders Podcast @EdOfftopic68292]

@Blalock_24 @DBelardoMD @tarekmd THANK YOU

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@AgnesAyton If authoritarian treatment regimes didn’t follow such an all-or-nothing, our-way-or-the-highway structure, we wouldn’t need to wait until all hope was gone before actually asking the client what they really need in the moment.

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@AgnesAyton It’s frustrating, because palliative care may be a necessity for a few. However, it’s currently being presented as “if you don’t follow our orders exactly, prepare to die”.
What happened to meeting patients where they’re at? There is much middle ground.

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@BBennettPhD What are the privacy settings of this app? Does it track user data and claim it as its own intellectual property like the NEDA app did?

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@EDCoalition It doesn’t help that major adolescent “health” agencies want to put them on diet pills and remove parts of their stomachs.
I’d be upset, too…

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@Lundberg_lab That’s nice, dear.
When people start their anorexia journey at 300lb and end up at 200lb a month later, that’s clinically significant and their body is in an incredibly stressed state.
You’re welcome.

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@epikrisa @OxPsychiatry @LiveScience There is no BMI cutoff for AN these days. We’ve moved past that. Get with the times.

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@AgnesAyton Not sure why people would be against further study on this topic. Anorexia treatments in general have a high failure rate, so a 40% success rate is actually promising.
There’s room for more tools in the toolbox.

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@IntJEatDisord Who determines what’s “significant” and how much did they pay for it?

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@MPStOngePhD @FZuraikat Another interesting paradox: people can recognize that restricting sleep causes physical/behavioral change. But docs happily suggest cutting food intake, expecting no bad side effects….

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@NEDAstaff Body image can be damaged by sexual assault, oppressive societal norms, abuse, gender dysphoria, and more. Your bot thinks it can help by just telling people to just “think positive!”, as if that makes the other things disappear.
(Actual chat message).
Gaslighting, much?

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@danceswithfat People can easily recognize that if you force yourself to stay awake all night, you’ll sleep extra tomorrow.
But when we talk about food, suddenly they think the body doesn’t have built-in ways to self-regulate. It’s wild.

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@lisacfogarty @AnorexiaMyths The fact that ED parent-advocates are unironically out here throwing a fit at the very idea of being asked to look inward is an excellent example of why this subject still needs more attention.