Research article finds that even after the acute symptoms triggered by #PANDAS resolve, children may experience ongoing academic, emotional, behavioral, & social difficulties. #PANS https://t.co/4WIp6qq2Bz
This week I signed a letter with @RuthCadbury from the PANS/PANDAS APPG to @NICEComms requesting development and adoption of formal clinical guidelines for this terrible - and treatable - condition.
If medical and psychiatry do not start to communicate and work together then families will continue to struggle and children suffer for longer.We desperately need these 2 areas of medicine to have a holistic approach #itstimeforchange💚 #bemyvoice#pans
@MattHancock@MattHancock this is my daughter - she has PANS ... there are many Tillies but as this illness is deemed ‘controversial’ it’s overlooked and little known by the NHS .... many parents are forced to go private at huge financial burden - so many Tillies, please hear their voices ...
'Form the mouth of babes' please dont let another child like Mark reach adulthood without treatment He has bravely spoken out Don't let his voice go unheard #MyNameIs#bemyvoice#panspandasawareness#action#now