EndoEdition

🔅 Reliable endometriosis facts, research, and awareness
🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary.

[EndoEdition @EndoEdition]

BLOG #5 QUESTION: IF ‘COMPLETE EXCISION’ IS THE GOLD STANDARD FOR ENDOMETRIOSIS TREATMENT, WHY IS IT SO UNCOMMONLY OFFERED? https://t.co/1BlMN1TaJb

[EndoEdition @EndoEdition]

31,000 more signatures needed before Jan 29th. We need #MentrualLeave debated in parliament.

Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis
https://t.co/wlbgK5rOuo

[Sky News @SkyNews]

Menstrual leave campaigner: 'At 23 I was hospitalised three months in a row'

Campaigner Michelle Dewar tells @skysarahjane that women who have a medical diagnosis related to severe period pain should be entitled to paid menstrual leave.

📺 Sky 501
https://t.co/WY7k8twsrS #SJUK

[EndoEdition @EndoEdition]

We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in Portugal in 2025. Help us get to 100,000 signatures 📝
https://t.co/wlbgK5rOuo

[EndoEdition @EndoEdition]

This is our pain. Powerful speech, thank you @PearseDoherty. Post via @Kathleen_M_King. #endometriosis #adenomyosis

[Pearse Doherty @PearseDoherty]

We’ve listened to thousands of women suffering with endometriosis across Ireland who shared their stories and experiences - struggling in silence and denied proper healthcare at home.

The Minister let these women down tonight. We won’t stop until proper healthcare is delivered.

[EndoEdition @EndoEdition]

Working women are too often left to deal with endometriosis alone. But big changes could be coming...
Via @Kathleen_M_King
https://t.co/Tl5sRDwCyS

[Kathleen M King @Kathleen_M_King]

Endometriosis: 'I'm disgusted with the NHS after our daughter took her own life'

https://t.co/uyjdbSd4jR

[Sara Keenan @SaraKeenan16]

I spoke with the amazing @AnitaNnekaJones about her long journey with endometriosis as says she was ‘gaslit by doctors for 14 years’

https://t.co/MCkx7qUua9

[Beth McColl @imbethmccoll]

waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is

[hate zine @hatezine]

Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.

[Sarah Harris @sarahhasendo]

So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians.

If you are interested please drop a message to email on poster or scan the QR code 🎗️

[EndoEdition @EndoEdition]

Records show around three-quarters of a million (755,046) women's health appointments are waiting to happen - up from 360,400 just before the pandemic.
This would suggest around 630,000 people - at the very least - are on the list to be seen for problems.

[EndoEdition @EndoEdition]

"The delay in my care has cost me some of my major organs."

Waiting lists for gynaecology appointments across the UK have more than doubled since February 2020, BBC research has revealed.

@BBCNews
https://t.co/UWrWGoWd03

[EndoEdition @EndoEdition]

Annalise Weckesser "UK folks - if know a young person (10-18 years) who experiences *period pain* - there is this amazing study being conducted by my friend and colleague @UniofOxford....."
@EndoSRN @VQ_Birmingham
https://t.co/fLT57Pytuc

[The BMJ @bmj_latest]

"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds."

@Richard56 discusses the healing power of being listened to
https://t.co/jlPDNR6Iq9

[Victoria Rubadiri @VickyRubadiri]

A life well lived. Rest Jahmby🕊️

[EndoEdition @EndoEdition]

Fyah Mummah Jahmby Koikai @JahmbyKoikai interview with Alan @kasujja @bbcworldservice June 20th 2018

https://t.co/BWJy2vkWTt

[EndoEdition @EndoEdition]

Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊
For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.

[EndoEdition @EndoEdition]

☝🏻Reposting this clip from 2018: Kenyan DJ @JahmbyKoikai suffers from a form of thoracic endometriosis and is an advocate to many suffering with this disease. "This needs to be heard by everyone and we shall overcome this."

Discussion by Victoria's Lounge with @VickyRubadiri.

[The Endometriosis Coalition @theendoco]

Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.

[The Nairobi Times @TheNairobiTimez]

BREAKING NEWS

Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔

Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning.

Rest In Peace🕊️

[Endometriosis UK @EndometriosisUK]

Research Opportunity👇👇

This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis.

Those living with either or both conditions are invited to take part at: https://t.co/hjPcyllQSJ

#UniversityOfLiverpool #TEPEAstudy