FTDtalk

We are the @jonrohrer lab @UCLIoN - our work aims to help people with frontotemporal dementia and associated disorders - we run the @GENFI1 FPI @EDoFTD studies

[FTDtalk @FTDtalk]

The EDiT-FTD programme will take place over 1 year with 2 workshops at the start and end and online meetings between. The group includes clinicians, researchers, ethicists, big data scientists and importantly members of FTD families living at risk of FTD.

[FTDtalk @FTDtalk]

Great to be at @JPNDeurope meeting on digital technologies in frontotemporal dementia today. A jointly led meeting between @UCLIoN and Erasmus Medical Centre in Rotterdam - @rhianconvery Jackie Poos. EDiT-FTD is a 1 year programme to develop a roadmap for implementation. #endftd

[Cure MAPT FTD @CureMaptFtd]

Check out one of our physicians on our SAB @jonrohrer bringing understanding and light to the path forward with families impacted by genetic FTD! #endftd @theftdbrothers

[Prof Cath Mummery @cathmummery]

Great to be involved in this documentary along with @jonrohrer - an exploration of the impact of dementia on families including those at risk of developing a genetic form.

Anna Richardson: #LoveLossAndDementia

Tune in - 2 Oct, 10pm.
https://t.co/9ygx4JHVRc

[Sophie Farley @sophiefarley31]

I had an amazing time this week at the @isftd conference in Amsterdam, with the team @GENFI1 @FTDtalk. It was great meeting so many new people and hearing insightful, thought-provoking talks. Looking forward to applying what I’ve learned.

[Arabella Bouzigues @A_Bouzigues]

Had the most fantastic time @isftd in Amsterdam, with teams @frontlabparis @InstitutCerveau and @FTDtalk @GENFI1 ♥️
Sad it’s already over & have to wait 2 years for the next!!

So lovely seeing all our friends and collaborators for 4 consecutive days of #FTD-science-intense fun!

[FTDtalk @FTDtalk]

We are looking for a new postdoc to work on digital measures and trials in genetic FTD - come and talk to us at ISFTD @jonrohrer @LucyL_Russell #isftd2024

[FTDtalk @FTDtalk]

Amazing three days so far at @isftd meeting in Amsterdam - lots of great posters and presentations from the team and new collaborations made! #isftd2024

[Sophie Goldsmith @SGoldsmith0]

It’s been an amazing few days at the @isftd conference in Amsterdam so far! 🧠 I am very excited to have the fantastic opportunity to present a poster (P372) on some preliminary work from my PhD! 🧫Come say hi if you’re around ☺️ #ISFTD2024

[FTDtalk @FTDtalk]

Please come to see the posters of our team today - some amazing clinical and biomarker science - @aitanasogorb @KeralaAdamsCarr Eve Ferry-Bolder Katie Thompson Liset de Boer #isftd2024

[FTDtalk @FTDtalk]

An exciting orchestral start to #isftd2024 - looking forward to 4 days of new FTD science.

[FTDtalk @FTDtalk]

Our team are heading to the #isftd2024 meeting tomorrow - look out for our talks and posters from our digital, imaging and fluid biomarker work @GENFI1 - we look forward to meeting other researchers and members of the FTD community during the week! #endftd

[Sophie Goldsmith @SGoldsmith0]

Yet another fantastic fFTD support group meeting today☺️ I had the opportunity to talk about my PhD project & how we are using cerebral organoids to study fFTD 🧠🧫 as always, a fantastic session & super to hear how engaged family members are in helping us push forward research!

[Sophie Goldsmith @SGoldsmith0]

@PhoebeFoster_ and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar 💻 Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ☺️

[Sophie Goldsmith @SGoldsmith0]

First batch of organoids are underway! 🧠🧫

[Sophie Goldsmith @SGoldsmith0]

I’m extremely excited to share that I’ve started my PhD in the @WrayLabUCL 🧠I want to say a big thank you to everyone in the Rohrer lab @FTDtalk for all their support over the last two years. I am really looking forward to this next step & can’t wait for what’s to come ☺️

[Sophie Goldsmith @SGoldsmith0]

Alongside my amazing colleagues at @drcionucl, I am running the Hackney Half Marathon to raise money for the @BrainAppeal’s campaign to establish the world's first Centre for Rare Dementia Support. @RareDementia
Any donation would be hugely appreciated! 😁
https://t.co/QF3AVO8t1Q

[FTDtalk @FTDtalk]

Heading to @mndresearch #alsmndsymp in Basel to speak at the joint FTD-ALS session. Looking forward to an exciting meeting. We are looking for a new research assistant to co-ordinate the @GENFI1 study at UCL - if you are interested come and talk to the team. #endftd

[Phoebe Foster @PhoebeFoster_]

To commemorate World FTD Awareness Week 2023, #AFTD have developed a week-long campaign of steps we can all take in this effort of raising awareness.

Check out my latest blog post for @FTDtalk, where I summarise their efforts: https://t.co/w0yFIhzFEg

[Phoebe Foster @PhoebeFoster_]

✍ Check out my latest blog post summarising the team's research highlights from #AAIC23 - https://t.co/BsYQwZZk3z - covering a variety of topics such as novel biomarkers, digitalised testing, disease staging measures, advances in neuroimaging, as well as patient engagement.