Axl Ruffin

Axl was born October 15th, 2016. Presently he has 20 brain tumors, poly cystic kidney disease & epilepsy! All his unforeseen future has been darkened out by TSC

[Axl Ruffin @Fight4Axl]

Just posted a photo https://t.co/90MVYBqkjX

[Axl Ruffin @Fight4Axl]

Make a donation and receive your choice of items from our select inventory
#friendsofaxl #curetsc #fight4axl #endtsc #Curetsc #luvbabyaxl

https://t.co/miegjp6fgD

[Axl Ruffin @Fight4Axl]

Fight4Axl Dual Port Car Charging Block: Can charge 2 USB connected devices with full watts at same time https://t.co/XeXmliAzLc

[Jill Woodworth @jwoodworthtalks]

Intuitive Podcasting Event! @talks_tsc #podcast #podcaster #chronicillness #tuberoussclerosis #cannabis #livedexperience #beyourownguru https://t.co/I9OX3xxgZB

[Jill Woodworth @jwoodworthtalks]

New @talks_tsc #podcast is live at https://t.co/DkHXk2cz7p #holistichealthcoach on @LifeWaveHealth and #stemcell activating #x39patch @linseyhurley #alternativehealth #lightworker

[Jill Woodworth @jwoodworthtalks]

Day 29, 30 Day Content Posting Challenge~Global TSC Awareness Month https://t.co/2vTrbmN77p via @YouTube @tsctalks_jill @tscalliance #tuberoussclerosis #x39 #stemcells #polypharmacy #cannabis #lifewave #allhandsondeck #unconditionallove

[Jill Woodworth @jwoodworthtalks]

https://t.co/zXVVPDsiks #stemcells #specialneeds @talks_tsc

[TSC Talks-The Podcast @talks_tsc]

Special Needs Parents & Caregivers! Come learn about Stem Cell Activating Patches! https://t.co/vLOYmRUCpc

[Axl Ruffin @Fight4Axl]

@talks_tsc wow wait why are you stopping

[touchNEUROLOGY @touchNEUROLOGY]

@tscalliance aims to drive research, and advocate for all affected by tuberous sclerosis complex #TSC. We met with @KariRosbeck, President and CEO to discuss their objectives, initiatives, and events for 2022/23

Part 1: https://t.co/npi2VLx23U
Part 2: https://t.co/WePP8l2sbo

[Iris Mustich, MPH @IMustich]

This is so very exciting! @tscalliance #HopeNoMatterHowComplex #TSC

[Nobelpharma America @NobelpharmaUS]

One More Week! Ask us about Totally Super Cool, a book illustrating how Tori and Tommy think differently about TSC-related facial angiofibroma at the 2022 #WorldTSCConference.

#FacialAngiofibroma #TuberousSclerosisComplex #TSC

[Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @PMTJames]

Grateful to all involved in the Research Community for their dedication to Tuberous Sclerosis #Research. Enabling families like mine to have improved life enhancing & life saving treatments. Research gives us hope for a #TSCure for those yet to be born with #TSC #RDD2022 @UKTSA

[Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @PMTJames]

15th May is #TSCGlobalAwarenessDay #TSC Tuberous Sclerosis Complex is a rare genetic disorder that can cause tuber shaped growths in vital organs, there is as yet no cure - @UKTSA @tscalliance fund research giving families like mine hope for the future https://t.co/NveTl3c6FI

[Tuberous Sclerosis Association @UKTSA]

We welcome planned reforms to the Mental Health Act which mean that neither learning disability or autism alone will be considered reasons for someone to be detained. People will be detained for treatment only if a mental health condition is identified.

https://t.co/Kok2Bt8lwV

[Tuberous Sclerosis Association @UKTSA]

We're delighted to confirm the appointment of John Shepherd as our new Chief Executive. John joins the TSA as an experienced senior leader with proven success across the private and charity sectors in a range of roles.

https://t.co/vDZMhbt38n

[Tuberous Sclerosis Association @UKTSA]

Today's #FridayFundraiser is @David_Suchet and @FishmongersCo! Sir David signed copies of his latest book at their recent family day, raising over £600 to support research into TSC. Thank you! 👏

Get a signed book plate by Sir David here: https://t.co/FTixxDSSMb

[Tuberous Sclerosis Association @UKTSA]

It's hot, hot, hot! ☀ But, our TSA Festive Greeting Card Design Competition 2022 is
open! Enter for a chance to have your work used as a TSA card for winter 2022! https://t.co/1d3RsNtUwf

Plus, help us pick other cards we'll use this winter - check the pictures and comment!

[Tuberous Sclerosis Association @UKTSA]

Feeling the full force of increases to cost of living? The TSA Support Fund is a small grant given to people in the TSC community for lots of different reasons, like home improvements, paying everyday costs and respite breaks.

https://t.co/tJCJiPHF5A

[BarabanLab @BarabanLab]

Wrapping up an exciting week hosting newly minted Assistant Professor @Iffland_Lab & @AmEpilepsySoc Young Investigator awardee to learn all things #zebrafish | @CureEpilepsy @PeterCrino