Fsma.India

We strive each day.
We smile each day.
We are families fighting together against SMA. Support us in our mission to bring cure to all.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We thank Govt.of Kerala @KeralaHealth for conducting an elaborate screening for SMA patients at SAT Hospital, Trivandrum. The process was extremely smooth with the presence of trained and efficient doctors. We look forward to a day when #Treatment4All SMA patients can be achieved

[. Subhash kumar dhiman @Subhash44690696]

@Vipinparmarbjp @narendramodi @DhumalHP @jairamthakurbjp @Dr_rajivsaizal @irakeshpathania @curesmaindia माननीय श्री@narendramodiजी
माननीय श्री@DhumalHPजी माननीय श्री
@jairamthakurbjpजी माननीय श्री @Vipinparmarbjpजी माननीय श्री @SBhardwajBJP जी श्री@Dr_rajivsaizalजी
मोदी जी है तो मुमकिन है मुख्यमंत्री जी हैं तो मुमकिन है
@curesmaindia https://t.co/p2vV6aKHoV

[Scholar Rock @ScholarRock]

Our e-poster, “Apitegromab in Spinal Muscular Atrophy (SMA): An Analysis of Multiple Efficacy Endpoints in the TOPAZ Trial” will be live, April 2-7 and virtual from April 24-26 and on-demand April 27-May 14 @AANmember #AANAM

[Pradyut Bordoloi @pradyutbordoloi]

After my letter to @OfficeOf_MM in Dec regarding affordability of life saving drugs for Spinal Muscular Atrophy (SMA), I continue to raise questions on SMA in the current session. Urge GoI to intervene & expedite access to treatment for patients across India. @curesmaindia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Our gratitude 2 @swasticharan @DghsIndia 4 initiating much needed brainstorming 2day on #RareDisease. V'd interactive session. V at @curesmaindia hv been advocatin with all stakeholder 4 creating a robust sustainable ecosystem for SMA n other #RareDisease in India @MoHFW_INDIA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many thanks @ficci_india n @IIM_I 4 dis opportunity to share our thoughts n experience represented by our Co-founder n Director Patient @alpanaS16 🙏. Affordability n Access r d areas @curesmaindia has been working on since d beginning as we deal with #SpinalMuscularAtrophy.

[Alpana Sharma @alpanaS16]

Our gratitude to @ficci_india @IIM_I 4 highly informative & enlightenin round table discussion on ways 2 mke cancer care treatment affordable As rare diseases community we @curesmaindia hv been advocatin with all d stakeholder to make d available treatment accessible & affordable

[Alpana Sharma @alpanaS16]

Our sincere gratitude Honr’ble @supriya_sule 🙏🏻 4 listenin to our plea Patient @curesmaindia r waitin 4 lifesavin treatment #Risdiplam #ZolgenSMA #Spinraza @NCPspeaks @PawarSpeaks @MumbaiNCP , @AjitPawarSpeaks @rajeshtope11 #SMApatient r dyin please help us win #BattleAgainstSMA

[Divyang Empowerment @socialpwds]

#SashaktDiwangSamarthBharat
@RamdasAthawale

[Pranjali Udanshiv @Pranjali_20]

Hope you like the Artwork.
@Riteishd @geneliad @MeDeshmukh

[Archana Vashist Panda @PandaVashist]

Grass root level patients n caregivers voice is important 4 well informed decisions n robust policies @nppa_india @kvijayraghavan @mansukhmandviya @CDSCO_INDIA_INF @drvgsomani @MoHFW_INDIA @PIB_India @curesmaindia @malini_aisola @IdmaPresident @bhagwantkhuba @Bhagwanthkhuba

[Cure SMA @CureSMA]

Many adults with SMA pursue post-graduate degrees, entrepreneurship, corporate jobs, and government and nonprofit work. #NDEAM

Learn more on our website: 👇
https://t.co/u27qrjfW0i

[. Subhash kumar dhiman @Subhash44690696]

@hemrajb @nhm_hp @curesmaindia आदरणीय
श्री @hemrajbजी 👏
हमें पूरा विश्वास है कि आप #SMA बच्चों को बचाएंगे आप यह कर सकते हैं सरकार बच्चों को बचा सकती है
रोश कंपनी से बात की जाए और बच्चों को दवाई दिलाने में आप अपना योगदान कीजिए हम आपके सदा आभारी रहेंगे
धन्यवाद
@curesmaindia

[TreatSMA @TreatSMA]

Update on Roche’s SMA global clinical development programme: New global combination study to begin in early 2022 - https://t.co/cphMTUGs70 #treatSMA

[Fsma.India @FsmaIndia]

#fsmaindia #rocheindia #risdiplam #cureforsma #mohfw #rarediseaseindia #icmr

[Sandeep Kumar @dreamseller25]

@narendramodi @PMOIndia : Please listen to the request of my daughter who is suffering from Spinal Muscular Atrophy. She need RISDIPLAM for her treatment. Please help us.

[Haseena Sait @haseena_sait]

It's important not to dilute the clinical branch for benefit and well being of patients especially with rare disease.
"SAVE THE RARE "
@PMOIndia @MoHFW_INDIA @NBE_DNB @neetpg2022 @DghsIndia @NMC_IND @mansukhmandviya @hrw @CureSMA @ICMRDELHI @DBTIndia @PrinSciAdvGoI

[Vasundhara Tankha @VasundharaTankh]

Spinal muscular atrophy is a rare genetic condition that children are born with. There is only one drug currently which cures this condition and it costs 16cr. Watch @VTankha bring awareness to this condition in parliament & give suggestions on how we can help. Each life matters.