News! 📢 We are delighted to launch the shiny🆕 Good Grief Connects study website:
https://t.co/gDIUPJoaIw
Please share & watch this space for study updates...
@AGoodDeath@ubeleinitiative@BywNawr
Grief is a natural response to loss; everyone experiences it differently. The important thing is to allow yourself time & space.😮💨
There's no right way to grieve, but we have a list of coping strategies that can help manage feelings & support yourself: https://t.co/sDcAulYQSW
How can we better understand grief in ethnically diverse communities in Wales? How can we improve access to appropriate support? Join us on 6 December for a learning and networking event in Cardiff. Register (free) at: https://t.co/D67aZ1Y2PT
Please spread the word!
Part of this project has been to develop a range of resources to support people to have conversations with diverse South Asian communities and other communities about Advance Care Planning.
We've made these available to all. https://t.co/XeriLJSNVi
The voluntary sector can’t tackle these inequities alone.
Meaningful attention + investment is needed (national + local) to provide culturally + linguistically appropriate info/support to people to consider their EOL wishes, plan ahead + participate in shared decision-making.
The recommendations detail ways to improve conversations about people’s end of life wishes and increase opportunities for advance care planning.
Underpinning all this is the importance of understanding and respecting what matters to each person as an individual.
The project showed (as in other minoritised ethnic groups) South Asian communities face inequities in access to ACP + support at the end of life. There's a clear urgent need to offer people opportunities to consider + make informed decisions about preparing for their end of life.
Many people did not understand end-of-life care terms and how decisions are made if someone lacks capacity.
This led to people feeling alienated from their loved ones’ treatment and care decisions.
People told us repeatedly that they face significant challenges when talking to doctors, finding and understanding information, making treatment and care decisions and accessing support.
In 2022, we launched an 18 month project funded by @TNLComFund.
We co-produced advance care planning workshops aiming to create a safe space for South Asian elders of all faiths to talk more openly about death and dying and plan ahead should they want to do this.
Today we’re sharing what we learnt working alongside @subcotrust + @GGC_Bristol.
We make recommendations we believe are fundamental to good care.
Without them personalised care will be hard to attain for many people in diverse South Asian communities. https://t.co/5Zf9qlgYO3
Delighted to see how popular this event is proving to be. Join us on Monday 9 October at 12pm to hear from an expert panel @UshaGrieve @AGoodDeath Taskin Saleem and Naheed Anwar @subcotrust@olly_clabburn@JamillaHussain1
https://t.co/OA78ddLOMD
When we think about grief, we often think about bereavement, but many other losses can profoundly affect us. Join @MalikAndTheOGs @AlisonCrowther John Simmonds & me to explore the challenges adopted & children in care face & ways they can ask questions & tell their story
Have you seen @GoodGriefFest new website?
A fantastic resource for people who are bereaved, for their supporters, for professionals, and - well, for all of us Mortals.
Thanks, @Lucy_Selman@LeselDawson @aislingmustan and team.
https://t.co/a0Gg4anxMG
*Paid opportunity for Artists*
We are looking to commission an artist to envision and create an interactive art installation to mark the 10th Anniversary of the To Absent Friends festival.
More info here: https://t.co/5b7HlX2YO9
(Photo by Jené Stephaniuk)
Are you interested in what it looks like to build #CompassionateCommunities using arts & creativity? Then have a look at what we've been doing in Weston-super-Mare, where I live, which has significant health inequalities & socio-economic deprivation, but an incredible community👇