Greg Bauer

Devoted father and husband to the best girls on earth. Penn State Football alum. ALS advocate and warrior.

[Greg Bauer @GJBest1982]

Beet Warning: Beets, beet juice, beet root powder all contain a toxin that is very dangerous for brain and neurological diseases.

@Chobani refuses to disclose their source of red coloring agent, which may be beets. Be wary of companies that won’t tell you what’s in their product

[Greg Bauer @GJBest1982]

DIALS visit #7, helping research fight against genetic ALS/FTD. My mother fought the same fight in hopes that her children wouldn’t have to, and now I find myself doing the same. Last time in Boston, as DIALS is moving to PREVENT ALS with locations all over the U.S. Get involved!

[Greg Bauer @GJBest1982]

Daughter was worried I might fly out of a roller coaster. I said “Don’t worry, I have lots of life insurance, you and Mommy would be just fine.” She said “If you fall out, I’m throwing myself out - don’t want to live without you.” Gutted. ALS coming for me is going to destroy her

[Greg Bauer @GJBest1982]

Thank you, @RepDean, for caring about people with ALS. Please advocate for keeping ALS research at $40m for the @CDMRP. Veterans with 100% service connected ALS served our country and deserve treatments and cures. #ENDALS

[Greg Bauer @GJBest1982]

A miracle drug that finally helps fight a disease that has terminally tormented families for generations, and @HCSC calls it ‘medically unnecessary’. SOD1 #ALS need access to the only FDA approved drug that targets their disease. Your plan members deserve better! #HSCSHAVEAHEART

[Brooke Eby @limpbroozkit]

@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.

[Dan Orlovsky @danorlovsky7]

Need everyone on this 🙏🙏
#ALS
#fistbumps4ALS
@GetUpESPN
@stephenasmith
#charlesbarkley
@JalenHurts
@bryceharper3
@JoelEmbiid

[Greg Bauer @GJBest1982]

Thank you @minakimes for leveraging your platform to spread #ALS awareness and advocacy! This beast doesn’t discriminate, and needs all the help it can get. Would be wonderful if @JoshShapiroPA wasn’t fighting against us by cutting ALS funding in PA. @SlangsOnSports ❤️

[Greg Bauer @GJBest1982]

As a lifelong PA resident and someone who has lost 6 family members to ALS, @GovernorShapiro this proposal sickens me. #ALS needs all the help it can get, yet you target it for LESS help? You have constituents dying a horrible death. How out of touch are you??

[ALS Advocacy @alsadvocacy]

Thx, @RepSchmitt
What r u thinking, @GovernorShapiro ?????
Op-Ed: ALS is not an incurable disease. It is an underfunded one https://t.co/uBLkUJtVgG via @TDNHuntingdon HT @KickALS

[Greg Bauer @GJBest1982]

For those using a probiotic with the HA-114 strain for (hopeful) neuroprotection, it looks like it may be wise to space it away from B-12 doses. Thanks @FinishALS

[Greg Bauer @GJBest1982]

https://t.co/ffvOiEiqUo

The L. Rhamnosus HA-114 strain is available in certain OTC probiotic formulas, available on Amazon and elsewhere. #ALS

[Greg Bauer @GJBest1982]

Oh man, I’m late on this, but need to shine a light on some heroes than inspire me to be a better advocate, focus more on life than death, and find ways to seize happiness at every opportunity: @gwenpetersen7 @pjgreen @nadia_sethi @sandymorris333 @FinishALS @bsw5020 @CoreyPolen

[Dr. Nadia Sethi @nadia_sethi]

@LisaLegacy4ALS @iamalsorg @shellyhoover @irene_shapiro1 @sandymorris333 @PaustDeb @nicolecimbura @Mayuri_Saxena @JamieRoseBerryy Oh wow! So many I can think of and no possible way to get them all!! We have one amazing community❤️. @Jeanc9orf72 @CEHaddadNP @conniembecker @GJBest1982 @glen_rouse @KRob8753 @layneo5 @AllisonBulat @cadawno @RobFaulstich

[Greg Bauer @GJBest1982]

@Jeanc9orf72 We’re living parallel lives in that regard, I hear you too. I just think that if gene carriers all got 20-25 more years ‘in the clear’, we might all be okay by then. To even get close to that, we need pre-symptomatic therapies. Preaching to the choir, I know!

[Greg Bauer @GJBest1982]

@Jeanc9orf72 Hell, I’d sign up for 65 right now - that sounds like a nice full life! 🤷🏻‍♂️

[Greg Bauer @GJBest1982]

If there’s fitness in heaven, I know @ScottFightsALS is back to his reps and flexing right now. As long as I’m able, I’ll keep flexing and advocating for him and all #ALS warriors. @JamieLW8 my ❤️ goes out to you and your girls. As a girl dad, I’m so torn up by this 🥺

[Jamie Smith @JamieLW8]

I am heartbroken to announce @ScottFightsALS passed early this morning. He fought until the very end and ultimately won the battle against ALS. We have lost one of the most incredible people to walk this earth and I’m shattered. Till death do us part was not nearly long enough.

[Greg Bauer @GJBest1982]

Great job @Jeanc9orf72 ! @ClellandLab @CD_Clelland is doing amazing work, and has given me more hope for beating this bastard disease than anything in a long time ❤️🙏 #ALS

[Clelland Lab @ClellandLab]

Thank you @Jeanc9orf72 for sharing your experience as a C9 carrier, family member, and activist. Hearing patient stories is so important for scientists, and we really appreciate the work you are doing!

[Greg Bauer @GJBest1982]

@sandymorris333 @KylanMorris1 The greatest warrior I have ever known. Today hurts. This world didn’t deserve her, but Heaven does. Until we meet again - thank you so much for the unmistakable impact you had in this fight and this world. 💔❤️‍🩹🙏

[Greg Bauer @GJBest1982]

“You think I’ll always be able to hold you like a baby?”
“Yes Daddy - I mean, I won’t always be this small, but I’m pretty sure you’ll have big strong muscles until you’re like 80.”
Let’s hope so my darling - you’re what I live for. Fuck you #ALS for threatening my time with her.

[Greg Bauer @GJBest1982]

Seriously, @AP_FDAwriter - I’d love to see a response. You really seem horrifically out of touch of the realities of a disease that can rip the person you love most and make you watch them die of paralyzed asphyxiation. Or, imagine that for yourself. #ALS

[Evan Campa @EvanCampa]

@emmccormick2005 I sincerely hope you read this whole thread, @AP_FDAwriter

[Greg Bauer @GJBest1982]

@sandymorris333 At my most recent Neuro appointment, my doc quickly caught herself referring to someone as a “patient” and said “sorry, I mean person”. I immediately thought of you @sandymorris333

[Greg Bauer @GJBest1982]

@debrakumar @Jeanc9orf72 Here’s one that includes it

[Greg Bauer @GJBest1982]

https://t.co/ffvOiEiqUo

The L. Rhamnosus HA-114 strain is available in certain OTC probiotic formulas, available on Amazon and elsewhere. #ALS