Gabriel's Gale

A nonprofit raising $ for & awareness of Pompe Disease. Inspired by 2 kids in 1 family living with Pompe. #pompestrong #gabrielsgale

[Gabriel's Gale @GabrielsGale]

HUGE THANKS to all who took part in our Mother's Day virtual fundraiser! Together, you raised $4,250.00! That money will go to fight Pompe Disease. We're excited to share our next "steps" soon. Your support is incredible! Thank you! #GGGiveback #pompestrong #curepompe

[Gabriel's Gale @GabrielsGale]

We're doing it! We're back to raising $ for awareness of, research on & a cure for Pompe Disease! Will you join us?🚶‍♀️🚶‍♂️🚶 #internationalpompeday #pompestrong #pompedisease #gggiveback #gabrielsgale https://t.co/WUooz4HADt

[Gabriel's Gale @GabrielsGale]

Happy #InternationalPompeDay ! We are thrilled to be able to talk about Pompe, the advances being made as we search for a cure & an announcement! Listen to @KMBZradio with @jaymekmbz & @jongraysonradio at 12:30 today! #pompestrong

[Gabriel's Gale @GabrielsGale]

THIS! Way to go @KDHE Kansas! Pompe is added to ANOTHER state's screening panel! 👏👏👏 #pompestrong #curepompe #pompe #RareDisease

[Donna Pitman KMBC @DonnaPitmanKMBC]

The # of lives to be changed & saved in KS is unknown. But it's certain the latest move by the
@kdhe will have an incredibly positive impact on many for years to come! https://t.co/kiPtTbD7WF

[Gabriel's Gale @GabrielsGale]

My 9 y/o told me on this walk she hopes for a cure for #pomedisease. Me, too!🙋‍♀️Our fundraisers have been canceled this year b/c of COVID. If you can help this #GivingTuesday please know it is so appreciated. Just go to: https://t.co/wCN6tseqtb 💙💚#curepompe #pompestrong

[Gabriel's Gale @GabrielsGale]

Such an honor to be able to talk about Pompe on @kmbz today. Thank you for having me on! - Donna

[98.1 KMBZ Kansas City @KMBZradio]

PODCAST: International Pompe Awareness Day

@JaymeKMBZ & @JonGraysonRadio are joined by @kmbc first news anchor @DonnaPitmanKMBC to discuss how today holds a special place in her family's hearts.

#Midday

Photo courtesy of Donna Pitman

Listen Here: https://t.co/6EgTIMsssV

[Gabriel's Gale @GabrielsGale]

Tomorrow is it! International Pompe Day! Work from home? Find a green top! Not working but home? Green comfy pants! Essential? Go all out! Wearing green shows your support for our Pompe Warriors.💚💙 #pompe #curepompe #pompestrong #greaterthanpompe #rare #raredisease #pompeday

[Gabriel's Gale @GabrielsGale]

Wishing you peace, reflection, health and perseverance as we collectively -- yet at Social Distance -- navigate these uncharted waters. Sincerely, Donna Pitman Board Chair
Gabriel’s Gale (5/5) #pompe #pompestrong #gggiveback #curepompedisease #rare #showyourrare 💙💚💙💚

[Gabriel's Gale @GabrielsGale]

UPDATE: With all that is going on and so much uncertainty due to the Coronavirus, we have decided to cancel the silent auction we’d still planned to hold online this year. So many have needs more immediate and dire than those of our organization and our mission. (1/5)

[Gabriel's Gale @GabrielsGale]

We will continue to work with the doctors at Children’s Mercy Hospital to develop educational materials and believe we will be able to stay on course this year with money saved in our Gabriel’s Gale account. (4/5)

[Gabriel's Gale @GabrielsGale]

(4/4) Thank you for your generous support, always, and for understanding. - Gabriel's Gale Board #pompe #curepompe #pompestrong #greaterthanpompe #rare #raredisease #showyourrare #coronavirus

[Gabriel's Gale @GabrielsGale]

(1/4) It is with much consideration and heavy hearts that we have decided to cancel our 2020 Gabriel’s Gale Fundraiser on March 28th due to overwhelming concerns over the Coronavirus Pandemic.
So many of you have made donations and we will refund them, per your request.

[Gabriel's Gale @GabrielsGale]

(3/4) We are sad and disappointed, especially when so many of you are so supportive of our mission to improve the lives of people living with Pompe. Our fight continues, despite having to cancel our big event.

[Gabriel's Gale @GabrielsGale]

Here is an amazing illustration of Pompe Disease by the @australianpompe
Association. If you think you have it or have these symptoms - get checked. #pompe #curepompe #pompestrong #greaterthanpompe #rare #raredisease
https://t.co/Or9KuxkJf1

[Gabriel's Gale @GabrielsGale]

Getting closer to our March 28th fundraiser - more hints of some auction items. Big thanks to @TopgolfKC @SECArenaKC & @OnceUponAChild Lee's Summit for helping us beat Pompe! #pompe #pompedisease #pompestrong #GGGiveback

[Gabriel's Gale @GabrielsGale]

Sifting through confetti from the Chiefs Super Bowl Victory! This will be among the many items in the Silent Auction at our fundraiser March 28th! #sheshed #mancave #sneakpeek #pompe #curepompe #pompestrong #greaterthanpompe #rare #raredisease #showyourrare

[Gabriel's Gale @GabrielsGale]

1 month & 1 day away from our big fundraiser! A sneak peak at some auction items! Super Bowl VI confetti & experiences at @ElmsResort @staytoneycreek @climbibex & with @barleybuskc ! #pompe #pompedisease #pompestrong #GGGiveback