AngelaGenge

Neurologist. Director ALS Centre of Excellence and Phase 1 Unit @TheNeuro_MNI. Leading the way in clinical trials for ALS/MND. Opinions my own

[NeuroCRU @NeuroCRU]

Dr. Simon Ducharme spoke to @andrewcarter800 CJAD yesterday about the 1st #genetherapy trial in Canada for #dementia. This landmark study for #FTD uses a viral vector to deliver a working copy of the #GRN gene to affected individuals. #theneuro
https://t.co/NmLeOd0uDF

[NeuroCRU @NeuroCRU]

The Saguenay region of Quebec has the highest prevalence of #MyotonicDystrophy in the world (1 in 400). Several new #clinicaltrials on #DM1 at the CRU are testing #ASO-based therapies that, if successful, would offer the first disease modifying treatment. https://t.co/5clEyzLOS1

[AngelaGenge @genge_angela]

Grateful to have had the chance to discuss how new technologies, a better understanding of the underlying drivers of motor neuron cell death and the development of a #biomarker driven approach is leading to real progress in treatments of #ALS at #adpd2024 .

[NeuroCRU @NeuroCRU]

All #rarediseases should be treatable. Working towards effective therapies is essential. Each year, NeuroCRU adds new conditions to its list of trials, like #MOGAD, #FSHD, #Huntingtons and #CJD. Patients deserve the option of accessing investigational treatments. #RareDiseaseDay

[AngelaGenge @genge_angela]

I’m thrilled to share that I have received a full professorship in the Department of Neurology and Neurosurgery at McGill University!
@mcgillu @McGillMed #neurology #mcgill

[AngelaGenge @genge_angela]

The #ALS Centre of Excellence @TheNeuro_MNI offers multidisciplinary care and early access to leading clinical trials. Thank you to all our supporters who help foster novel approaches to treatment + initiatives to support quality of life. @ALSCanada @BrainCanada @SLA_ALS_Quebec

[AngelaGenge @genge_angela]

Grateful for the opportunity to speak on personalized medicine and innovations in clinical trial design at the International Symposium on ALS/MND in Basel last week. #ALS #MND #PersonalizedMedicine #ClinicalTrials #Neurology #RareDisease

[The Neuro @TheNeuro_MNI]

@genge_angela, director of ALS Centre of Excellence at The Neuro will be speaking @TheGlobeEvents' AI in Medicine panel tomorrow at 12:30 on the promise of AI to transform speed and accuracy in detecting rare disorders. Free to register: https://t.co/YwpEdm3nhl #GlobeMedicine

[AngelaGenge @genge_angela]

I’ll be speaking at @TheGlobeEvents’ AI in Medicine Tuesday at 12:30. This free event will cover opportunities and considerations related to the use of AI in medicine, and what it means for health care providers and patients. To sign up: https://t.co/e4ijugENv4

[NeuroCRU @NeuroCRU]

Our deepest gratitude to @Genge_angela who stepped down as CRU director after 19 years. Her dedication to patients transformed a small unit into a leading intl centre. Her unique vision and energy will always be part of our DNA. She remains director of The Neuro's ALS clinic.

[NeuroCRU @NeuroCRU]

Fiers d'avoir participé à #RCQ : un nouveau pôle d'info en #rechercheclinique développé par le Réseau @CATALISquebec en partenariat avec le gouv du Qc. RCQ offre un Registre des #essaiscliniques, un accompagnement personnalisé pour patients, et plus.📲 https://t.co/2YIxmtsngn

[AngelaGenge @genge_angela]

#CTQ is a terrific initiative to help patients access #clinicaltrials more easily. And Catalis continues to propel the #lifesciences ecosystem in Quebec.

[The Neuro @TheNeuro_MNI]

Dr. Pandolfo from The Neuro now speaking at #wcn2023 about Friedreich #ataxia, a rare neurological disorder. Only one treatment is approved and that one only by FDA. Others are in different stages of clinical trial.

[The Neuro @TheNeuro_MNI]

Dr. Angela Genge from @NeuroCRU now part of panel at #wcn2023 discussing how doctors and health professionals can best deliver news of an #ALS diagnosis.

[AngelaGenge @genge_angela]

I am honoured to have been invited by @EU_Brain to speak on this important topic. Individuals with MND need us to work together globally to speed up access to new treatments.

[NeuroCRU @NeuroCRU]

Last week, @Genge_Angela was invited to address #UNGA78 at the Science Summit in NYC. She spoke of the urgent need for a global approach to #approval and access for new therapeutics, and how the work done in #ALS can be a model for other #neurodegenerative diseases.

[NeuroCRU @NeuroCRU]

Dr. Angela Genge spoke at @CPathInstitute's #RareDisease Conference in DC this week, highlighting the need for novel #biomarker development to determine early evidence of target engagement in #ALS and the need for improved clinical outcome measures. #cpath

[NeuroCRU @NeuroCRU]

The CRU's Dr. Massimo Pandolfo spoke to CityNews about an international study on #FriedreichsAtaxia which aims to develop imaging #biomarkers to track disease progression more accurately and better assess potential treatments in future #clinicaltrials. https://t.co/WoIUErq1ux

[NeuroCRU @NeuroCRU]

📢Participants urgently needed for study of imaging biomarkers for Friedrich’s Ataxia. These are critical to assessing novel treatments in future clinical trials. Only 3 required visits in MTL. Participants from 🇨🇦 or 🇺🇸 welcome; travel costs covered. https://t.co/Zq0h3FBA2X.

[AngelaGenge @genge_angela]

I'm very proud of what we've been able to accomplish - bringing care to patients at this level from where we were when I started working in ALS. It's been probably the most rewarding aspect of my career.

[NeuroCRU @NeuroCRU]

The Neuro's #ALS clinic has been a trailblazer in developing multidisciplinary care and #genetic counseling in Canada. It helped to shape the CRU's focus on ALS trials including a first-of-its-kind Phase 1 unit for ALS. Congrats to the team! Read more: https://t.co/ekT83oGMWa

[AngelaGenge @genge_angela]

ALS is progressing all the time. It is unrelenting. But so are we. We embody hope together so that we can strike out ALS.
#ALSMNDWithoutBorders #embodyhopetogether #ALSawareness

[Société de la SLA du Québec @SLA_ALS_Quebec]

It's Global ALS/MND Awareness Day and we are pleased to share our meaningful and hopeful manifest featuring members of our community. Please share it now so that our voices are amplified! Together, we embody hope.
#ALSMNDWithoutBorders
#EmbodyHopeTogether
#ALSAwareness