Rob Goldstein

I can walk, talk and chew gum at the same time. I am passionate about biotech, healthcare and patient advocacy. Tweets represent my own opinon not my employer's

[Ionis @ionispharma]

We are excited to announce positive topline results from our pivotal study of zilganersen, an investigational RNA-targeted medicine in development for the treatment of #Alexanderdisease (AxD), a rare, progressive #neurological condition.
Read more: https://t.co/JFqb8ZGQVa
$IONS

[Rob Goldstein @GoldstroRob]

@BostonDotCom Just saw the calf again coming in on the ferry. A little further outside the harbor this time. 🐋

[Rob Goldstein @GoldstroRob]

@JoeBiden Thank you for all you have done for so many, Joe. You have been and will always be someone I look up to and respect. ❤️

[Rob Goldstein @GoldstroRob]

@ionispharma I feel tremendously privileged to work on this program here at Ionis and with #alexanderdisease community.

[Rob Goldstein @GoldstroRob]

This is a big moment for adults living with this particular type of amyloidosis. I am so proud to be part of the team at Ionis!

[Ionis @ionispharma]

The U.S. @FDA has approved a new treatment for adults living with polyneuropathy of hereditary transthyretin-mediated amyloidosis. Learn more about this news: https://t.co/ACfoIXo2tx #RareDisease

[Rob Goldstein @GoldstroRob]

I have been dealing with a bad case of FOMO all weekend! This photo is full of changemakers committed to #endALS. Thank you all for everything you do for each other and the global community. #alswithoutborders

[ALS/MND Alliance @ALSMNDAlliance]

🌟 Thank you so much to everyone who made the trip to Basel this year for the Alliance Meeting and those joining virtually. What a fantastic group of people coming together because of a shared passion for creating a world free of ALS/MND. 🤝

[Rob Goldstein @GoldstroRob]

After attending this year’s Prion Disease Conf in Faro, I know there is a growing and seemingly coordinated effort to understand the disease and advance ideas from the lab into the clinic. Got an idea? Apply for a 100k research grant from @CJDFoundation https://t.co/Q57Y6akoy1

[Rob Goldstein @GoldstroRob]

Just amazing. 👑

[Rob Goldstein @GoldstroRob]

A real honor to be with ⁦⁦⁦@PressSec⁩ and so many others last night to support the ⁦@HRC⁩. Thank you ⁦@POTUS⁩ and ⁦@FLOTUS⁩ for your unwavering support of the LGBTQ+ community.

[Rob Goldstein @GoldstroRob]

Thank you @POTUS for standing up for all of us year after year after year. ❤️

[Rob Goldstein @GoldstroRob]

What a powerful moment to hear from Dr Kleinmahon and his husband at the @HRC Equality Convention tonight. Thank you for sharing your story Jake and Tom! ✊ 🏳️‍🌈#humanrights

[Rob Goldstein @GoldstroRob]

I feel truly fortunate to be at the ⁦@HRC⁩ Equality Convention and hearing from leaders of the Pro Democracy, Pro Reproductive Rights and Anti-Gun Violence movements. I am reminded that are more of us than there are of them. #equality

[Steve Gleason - "Live Impossible" @SteveGleason]

Well, here we are, real time. I am grateful to share this update on the release of my book, A Life Impossible. Publishing with Knopf in April 2024, and available for pre-order now wherever books are sold. The adventures continue...

[Rob Goldstein @GoldstroRob]

@ADL_NewEngland Disgusting. I’m all for Freedom of Speech and the Bill of Rights, but the people behind this and similar statements are complicit in these terrorist attacks as far as I’m concerned. May g-d forgive them.

[Mental Health America @MentalHealthAm]

Applications are now open for our first-ever Youth Policy Accelerator! 🏛

The 2023 YPA cohort will focus on driving national conversations around youth #mentalhealth and #peersupport services. Learn more and apply today at https://t.co/jr5A0k0vYa.

[NAMI @NAMICommunicate]

As we kick off August, let's make it clear how we feel. Mental Health Is Health!!!!!!

[The American Brain Coalition @AmericanBrainCo]

TODAY IS World Brain Day! We stand with all our members on this day of advocacy and awareness for ALL living with brain disorders and brain health needs. Everyone has the right to access for brain health needs and beyond. #ABrainCoProud #Brainhealth #Advocacy #WorldBrainDay23

[Rob Goldstein @GoldstroRob]

@End_The_Legacy Cory was a wonderful person. He and his contribution to this world will never he forgotten.

[NEALS Consortium @NEALSConsortium]

Please join us for a webinar update on tofersen on Tuesday, May 2nd at 4:00 PM ET.

Register: https://t.co/PXfSG8d6rX

[David Taylor @VPResearch_ALS]

Have general questions about ALS or questions about ALS research? You are never more than a week away from someone who wants to help. Office Hours team will be "in office" on Zoom today, and every Friday at 1-2pm Eastern - https://t.co/3jL82QwPDq