Dear Grover

Letters to my Multiple Sclerosis. Yeah - I named my MS Grover. Is that weird?

[Dear Grover @GroverDear]

What the hell, Grover!?! Can we stop with the torturous electric shock weirdness emanating from my neck and lower back? This is just cruelty! I’d like to crawl out of my body please!

[Dear Grover @GroverDear]

.@GovKemp, Black lives are not disposable. I stand with the NAACP in calling for justice for Ahmaud Arbery, and the immediate resignation of Jackie Johnson, the District Attorney who mishandled the case.

[Dear Grover @GroverDear]

@GenaMSwarrior Yes. Very much yes.

[Dear Grover @GroverDear]

@MildlyScrambled @mssociety @MSTrust @shiftms Excellent advice!

[Dear Grover @GroverDear]

@bennessb I’m making silly felted and embroidered marionettes for my nieces and nephew. So fun! I’m almost ready to sticks and strings to turn them into marionettes.

[Autoimmunication @Autoimmunicatio]

I came, I saw, I forgot what I was doing.
Retraced my steps got distracted on my way back, have no idea what's going on and now I have to pee

Is it #ms or #dementia
#havetopee https://t.co/YpuC27mBmC

[Birbs @Birbs14]

Oh Dear

[Dear Grover @GroverDear]

Peregrine, makes winter so much more fun. He lets me forget about fatigue and muscle spasms and tired legs for a little while - I think Grover is jealous. #MS #GroverIsAWeenie #zoomies #dogsarethebest #whippet #OhShutUpGrover

[Dear Grover @GroverDear]

Grover’s idea of fun: nightly muscle spasms so intense that they wake both me and husband. Wheeeee!
#MSsymptoms #GroverIsAWeenie #Yawn

[Dear Grover @GroverDear]

We’re off to the beautiful Southwest for a nature-photography work trip. I haven’t traveled since I was diagnosed with #MS. I am really nervous about this. Yesterday I walked 1.5 miles and my legs started to buckle. Grover - this is my JOB, dude. Come on buddy! Work with me!

[Dear Grover @GroverDear]

@c_wicklund @MustStopMS Ack. I’m going to be in airports and on a plane today - surrounded by people at the start of flu season. Being immunocompromised is not fun! Eep!

[Dear Grover @GroverDear]

@AaronBosterMD Felt like I was going to die - but it did get rid of the symptoms. 25 pills a day for five days.

[Dear Grover @GroverDear]

Grover and I enjoy #ArtTherapy to help rebuild - or at least maintain - my fine motor skills. I do the #watercolor work, and he contributes by making my hand shake extra hard when I am working on tiny details that require a steady hand. #ThanksBuddy #MS #Symptoms #FunWithTherapy

[Dear Grover @GroverDear]

@bennessb Ugh. Yes. There’s no escape from it. Night and day.

[Dear Grover @GroverDear]

@UntoNuggan @bennessb YES! I love this. I am going to make this my mantra. Thank you!

[Dear Grover @GroverDear]

Weird buzzy hands. Numb arm. Strange sense of being out of place as I was driving in a familiar neighborhood. Is this all you’ve got for me today, Grover? Ha! Losing your touch, buddy? #YoureNotEvenTrying #GroverIsAWeenie #NeurologicalSymptoms #MS #HavingAGoodDay

[Dear Grover @GroverDear]

@maydelynnj Thanks so much for your kind words, @maydelynnj. 💚

[Dear Grover @GroverDear]

@Brandon_Beaber @GavinGiovannoni I had Mono several years ago. My sister never had it - as far as she knows. We both have MS. We talk a lot about what might have triggered it. A fascinating and horrifying mystery.

[Dear Grover @GroverDear]

Oh, Grover. I’m so frustrated with you. I was making myself a quick lunch, and I forgot that the stove was on three times. I can’t even remember what distracted me. I’m pretty sure this means I can no longer cook without supervision. #MemoryLoss #MS #DangerToMyselfAndOthers

[Dear Grover @GroverDear]

I blame you for the dark circles under my eyes, Grover. I look like I’ve applied deep purple eye shadow for a haunting, goth effect. Cool. #MS #GroverIsAWeenie #Fatigue #MedicationChange #HalfDead