We are officially over 70% sold out of our Amaryllis with only 7,000 kits left - don't delay order yours today: https://t.co/O8rPy0IxYm. Have you got your Amaryllis already? Send us a photo to [email protected]. We love to watch your Amaryllis bloom and inspire hope!
"Canadians collectively are going to be less healthy & live shorter lives than we did in the pre-COVID world.”
-Dawn Bowdish, professor of medicine @McMasterU & Canada Research
Chair in Aging and Immunity, Oct. 2022
Join Dr. Blair Leavitt at HSC'S FREE National Virtual Conference, #HDCon22, on November 13 from 1:00 - 2:00 p.m. for his presentation on "An Update on HD Clinical Trials in Canada". Learn more and register today - IT'S FREE: https://t.co/d7UWXUo1pm
Starting the conversation with your children about Huntington's disease can be intimidating. We have developed some conversation starters by age to help encourage parents and guardians to speak to children about HD. Follow the thread for an overview of tips.
Brilliant science is changing how we think about #Huntingtonsdisease. Hear all about it at the HDF 2022 Virtual Gala on Thursday., November 10, at 7pm ET. We have a great panel of speakers. Free and open to all. Register here👉
https://t.co/qp3wq5uW2X
Living with the risk or the symptoms of Huntington's means facing some particular challenges, emotionally and practically, which most people don't have to face. It can make a big difference if you know what help is out there and get the support and information you need.
⭐️HDClarity Data Visualisation⭐️
⭐️Just how successful are HDClarity LPs in collecting the desired amount of CSF (18-20mls) ?⭐️
⭐️As we can see in the ridge plot below, our clinical sites perform very well, with the vast majority of LPs collecting the desired amount!⭐️
Huntington Study Group Announces Results from the HD-Net Assessment on the State of Care for #HuntingtonsDisease in the United States https://t.co/HQuIQUY0x9 via @prcom
Our co-founder, Ariel Walker describes the magic of Amaryllis: “I hear wonderful stories about how much the flower means to people...inspiration, education in the classroom, bringing families together by comparing growth and how many buds, and the colour.” https://t.co/O8rPy0J5NU
People with Juvenile Huntington's often experience some symptoms that are quite different from adult Huntington's. If you have it, you are less likely to have the involuntary movements (making movements you don't want to make), known as chorea.
The HD Community needs your help to pass the HD Parity Act which will waive the two-year waiting period to receive Medicare benefits. Take action today by contacting your local representatives urging them to support S 868 / HR 2050! Click here:https://t.co/94bdCKvwuk 0vfn
Register today to join Allison Bartlett, Esq. on November 8th at 12pm (ET) when she discusses Disability Planning & Juvenile HD. Click here to register: https://t.co/hisgGlmc64
You may have a green thumb with houseplants, or maintain spectacular gardens. But we’re sure there’s one thing you didn’t know about Amaryllis – they can fly. Fly off the shelf, that is! Order now: https://t.co/O8rPy108PU
LAST CHANCE! Our #YPAHDDay2022 extended funding application deadline is TOMORROW. Click here to apply and for more information: https://t.co/rvD4KKzaXt
The Huntingtons Study Group @HuntingtonSG announces a first-of-its-kind study in collaboration with @ModalityAI. Data and learnings will inform and drive further virtual studies that engage participants and caregivers, improving HD care and treatments.
https://t.co/k1gFsr9WtE
We are excited to announce the recipient of the 2022 NAVIGATOR Research Program, Prof. Cheryl Arrowsmith from the University of Toronto. For more information on the NAVIGATOR Research Program and past recipients, visit https://t.co/9odKdvCOfX
Since the beginning of this month, Support Groups Central has become HeyPeers! Please re-register with HeyPeers at https://t.co/kDKet8fUDU and subscribe to Huntington’s Disease Society of America (Organization) to join in the upcoming online sessions: https://t.co/uUJ1fIQi0K