HCM Patient Foundation

We aim to improve the lives of Hypertrophic Cardiomyopathy (HCM) patients and families in the EU via innovative projects, information, and psychological care.

[HCM Patient Foundation @HcmPatient]

The European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention submitted feedback via @ERNGuardHeart to the @EU_Commission's call for evidence to organise evidence-based screening for cardiovascular diseases.
https://t.co/w7dEK89k4x

[HCM Patient Foundation @HcmPatient]

Excellent news for non-obstructive HCM patients! @Cytokinetics just announced positive topline results from their ACACIA-HCM study, meeting both primary endpoints. Congrats for everyone involved!

[Ahmad Masri @MasriAhmadMD]

ACACIA-HCM trial topline results - aficamten in nHCM. Incredibly proud and thankful to our patients and team for their commitment and hard work. This represents the first effective treatment for patients with nHCM. looking forward to seeing the full results.
#CardioTwitter

[HCM Patient Foundation @HcmPatient]

Episode 10 of the HCM Pills webcast is here! 📽️🎞️
In it we talk to @jodieingles27 about all aspects of genetic counselling in HCM patients.
Thanks for watching, commenting and sharing!
#HCM #Genetic #Counselling

https://t.co/EdZDBbqjgk

[HCM Patient Foundation @HcmPatient]

More good news for #HCM patients! The SCOUT-HCM study for mavacamten in adolescent patients with obstructive HCM showed a significant reduction in obstruction (-48.5 mmHG) with no increase in adverse effects. Important step for the kids! @bmsnews https://t.co/9AbYVoXWlt

[HCM Patient Foundation @HcmPatient]

In end of 2025 we launched our HCM Knowledge Quiz. As of today there are 202 replies in several languages so we decided to make a summary of the results so far (see in link). They are enlightening about the gaps in knowledge and perception we have. #HCM https://t.co/bk73ltHO81

[HCM Patient Foundation @HcmPatient]

@SrihariNaiduMD @cardiacpolymath @seiiwaiEPmd @YasserRadwan_ @SwatiChand_ @ABaliMD @theHCMacademy @IvanHansonMD @psorajja @adityadoc1 @purviparwani Very interesting, thanks! Hopefully in the next year's there will be a study comparing the AF effects of the three.

[HCM Patient Foundation @HcmPatient]

Check out the IX episode of the HCM Pills webcast with @MasriAhmadMD. We discuss some exciting newly emerging treatments for HCM and amyloidosis.
Thanks for sharing!

Thanks also to our sponsors from @AstraZeneca, @bmsnews, @Cytokinetics and @EdgewiseTx!
https://t.co/H78XkjZH5Z

[HCM Patient Foundation @HcmPatient]

A good start to the New Year - our new T-shirts with Hearty are here! And aren't they cute? 😍

Support us by becoming a member and get one!

https://t.co/YNClY6ywHc

[HCM Patient Foundation @HcmPatient]

✨ 2025 in review – HCM Patient Foundation ✨

A year of research, innovation, awareness, events, collaboration, and community 💙

Thanks to everyone who supported us! We’re just getting started — follow us to keep building the future of HCM together.

#HCM #HCMAwareness

[HCM Patient Foundation @HcmPatient]

Season's greetings from Hearty and the HCM Patient Foundation! 🎅 🎄

[Cytokinetics @Cytokinetics]

We’re excited to announce that the @US_FDA has approved our new medicine for the treatment of symptomatic obstructive hypertrophic cardiomyopathy (oHCM). 

Learn more here: https://t.co/jRKyYy0MQ9

#HCM #CardioTwitter

[HCM Patient Foundation @HcmPatient]

SPECIAL CHRISTMAS HCM PILLS EPISODE is here!
🎄🎁
Can aberrations of cardiac electrophysiology be converted to music? They sure can! Check out the mastery of Dora Deliyska in bringing out artful music from heart arrhythmias!
/etudes by Prof. Elaine Chew/
https://t.co/rsD1cqLuEI

[Global Heart Hub @GlobalHeartHub]

"I'm sharing my journey of failure... 💔 We're using our experiences to aim for an improved healthcare system." Live now: Patient Voices in Action: How Lived Experience Can Guide a Transformative EU Cardiovascular Health Plan at the @EUCVHAlliance Cardiovascular Health Summit.

Thank you to the patient panel, Francesca Musso (@HcmPatient, Global Heart Hub), Kostas Tagkalos (@IntDiabetesFed), @DianaWongRamos1 (Portugal AVC, @StrokeEurope, Global Heart Hub), @marcrijken (Global Lp(a) Taskforce, @fhpatienteurope)

#CVHealthForAll #EACHSummit #SafeHearts

[HCM Patient Foundation @HcmPatient]

Great news! Things are moving so fast in the HCM understanding and treatment that an update was necessary, as great as the second edition was.

[Srihari S. Naidu, MD @SrihariNaiduMD]

Hypertrophic Cardiomyopathy, 3rd Edition, finally here! Tks to section editors @mmartinezheart @tikuowens @MasriAhmadMD & @MartinMaronMD and the 75 authors! @SpringerCardio @LindsayLuvDavis @LisaSalberg @DesaiMilindY @seiiwaiEPmd @AnkurKalraMD @SteveOmmen @scooperpr @purviparwani @hcmsociety @HcmPatient @danmassera @ChrisKramerMD @rooshaparikh @OKhaliqueMD @pkothapalliMD @Pooh_Velagapudi @rahatheart1 @SCAI @drsuneet @PrakashUpretiMD @DrJMarine

[HCM Patient Foundation @HcmPatient]

Many thanks to everybody who contributed to the Move with Francesca and Filippo campaign! They both did great and raised awareness about the importance of staying active with HCM.

[HCM Patient Foundation @HcmPatient]

Тenaya is our valued partner and we were very happy to welcome them to our first European meeting. We will continue to work together on projects that benefit all HCM patients! It is always easy and a pleasure working with companies that put patient interests first.

[Tenaya Therapeutics @TenayaThera]

The First European HCM Patient Meeting, hosted by @HcmPatient Foundation in Vienna, was a powerful reminder of the importance of #HCM advocacy. We were proud to join patients, advocates, and clinicians working together to raise awareness and drive progress for the HCM community.

[HCM Patient Foundation @HcmPatient]

🤔 How much you know about Hypertrophic Cardiomyopathy (HCM)? 💡

👉 Take our quiz and see whether you are a guru or beginner. Hearty will guide you through. And don’t use AI or search engines - Hearty will know. 😊

Thanks for replying and for sharing!

https://t.co/AAF72JV2hJ

[HCM Patient Foundation @HcmPatient]

There are only 5 days until Francesca and Filippo's Marathon endeavor. Their campaign has raised until now 2589 Euro, which is almost exactly half their goal of 5219 Euro. Thanks to all 43 people who donated until now!
You can still follow their example! 🙂

[HCM Patient Foundation @HcmPatient]

There is a month left until Francesca and Filippo's endeavor and we have already received 30 donations for a total of 1946 EUR! Would you like to become their supporter? If yes, just click on the link!

https://t.co/DTFcq1PkB5

[HCM Patient Foundation @HcmPatient]

Impressions from Day 1 of the First European HCM Patient Meeting. We shared, we learned, we exercised, we discussed, we listened to wonderful music, and, above all, we had fun! @bmsnews @Cytokinetics @EdgewiseTx @TenayaThera @IacopoOlivotto @JolandavanderV4