HelenWarrior

long covid activist. Masters in Critical Disability Studies at York University.

[Dr. Amit Arya @AmitAryaMD]

Welcome to Ontario, where the government would rather have 600 COVID patients in the ICU and risk cancellation of non-COVID care, AGAIN…rather than just mandate one of the most impactful, least disruptive and cheapest tools we have to keep us safe during this pandemic...masks.

[HelenWarrior @HelenArmToronto]

@PutrinoLab @loscharlos Unfortunately rapamycin often gets nasty side effects.

[Mike Hoerger, PhD MSCR MBA @michael_hoerger]

Are you doing any COVlD advocacy work within a broader professional organization?

If so, please reach out. We're doing some organizing in this area. It would help to know any successes or pain points. Thanks! DM or email (googleable)
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[Laura Miers @LauraMiers]

For a brief moment in time, media acknowledged COVID is causing the skyrocketing cancer rates in young people (& everyone else).

In 2025, everyone has forgotten again, & we aren’t anywhere near “after the pandemic.” This is after all of science spent 2020-2024 acknowledging COVID is likely oncogenic & definitely causes immunodeficiency.

The money monsters are salivating. Think of the profit opportunities!

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

March is #LongCOVIDAwareness Month — and we’re asking you to help power the patient-led work that makes every other part of the Long COVID response possible.

Education drives awareness, informs clinicians, shapes research, strengthens policy, and protects communities.

For six years, people living with #LongCOVID have volunteered their time through C19LAP, as an all-volunteer, patient-led organization — and together, we’ve accomplished a tremendous amount. As time goes on however, our health declines, resources have disappeared, while conversely, the demand for our work and presence has grown. We want to do more — and we need to do more — but the resources to sustain and expand this work must exist.

Will you help us get there?

Start your Team or Individual Zeffy Campaign or Donate Here:
https://t.co/iCHzDOgUVj (Tutorial here: https://t.co/yahO0adsZe)

Learn more about Long COVID and how to get involved this Long COVID Awareness Month:
https://t.co/c3s4rOw3tp

[David Meyers @DavidMeyers6]

"Homelessness is disabling. We need to be investing in housing people not policing them. The City of Toronto should reallocate money for the police and invest in deeply affordable, accessible housing. A better world is possible". Keat Welsh, @CIL_Toronto #Right2Housing #TOpoli

[David Meyers @DavidMeyers6]

Resharing @PlanningToronto's invitation to a FUND OUR CITY rally on the 2026 @CityOfToronto Budget. Feb. 10, 12-2pm outside City Hall. Council will be voting inside on the budget. Join residents & partners calling for NO CUTS to vital city services vulnerable residents rely on!

[Hiroshi Yasuda (保田浩志) @Yash25571056]

"Long COVID is a worldwide public health crisis that has affected over 400 million individuals with no approved treatments..
Given the variability in its clinical presentation array of underlying mechanisms, the difficulty of capturing key components such as post-exertional malaise (PEM), and a rapidly evolving research base, there is unlikely to be one outcome that can capture the scope of Long COVID's progression or resolution..
In Long COVID, the affected systems, new-onset conditions, intensity, and impact on quality of life differ significantly between individuals..
Several mechanisms are hypothesised to contribute to the physiological disruptions in Long COVID, including:
- autoimmunity and other forms of immune dysregulation;
- dysfunctional neurological signalling;
- gut dysbiosis and translocation;
- inflammation;
- latent virus reactivation;
- mitochondrial dysfunction;
- thrombosis; and
- viral persistence..
Post-exertional malaise (PEM) is a clinical hallmark of ME/CFS, which is a key phenotype of Long COVID..
Symptoms of PEM include, but are not limited to,
- debilitating fatigue;
- cognitive, gastrointestinal and sleep dysfunction; and
- sensory sensitivity..
PEM is difficult to measure, and may be counterintuitive to those who lack familiarity with the condition."

Treatment of post-exertional malaise (PEM) is not a physical effort matter (PEM).

'Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise'
https://t.co/osE0eWOd6f

[Bill Sinclair @BillTNGCS]

"It's hard work and it doesn't stop" - Thank you Bea and all of the residents and front line workers who spoke to Toronto Budget Committee this week!! @TODropinNetwork https://t.co/lkHGk1mOak via @torontostar

[HelenWarrior @HelenArmToronto]

@DonEford Don can er connect. I just started novavax protocol for long covid. Thanks, Helen
Email [email protected]

[RTHM @RTHM_Health]

A new RECOVER study of 6.4M health records shows Long COVID risk has not decreased from 2020–2024. Incidence stayed stable across variants, reinforcing Long COVID as an ongoing public health priority.
Read the study: https://t.co/RN66kGhyxM

[HelenWarrior @HelenArmToronto]

Our group Long Covid Action Now sent an urgent letter to the federal minister of Health Marjorie Michel demanding release of Pemgarda for immune compromised and long covid folks in Canada. We need to hear back and have her meet with us. Add your voice!
@marjoriePLC

[HelenWarrior @HelenArmToronto]

@MAbsForCanada
Our group Long Covid Action Now has written to the federal minister of Health with urgency around getting Prmgarda in Canada. We are waiting and waiting for a reply. Urge you to pressure her as well.

[Gez Medinger @gezmedinger]

Speaking at the European Parliament today on the subject of Long Covid.

Feels a privilege to be here and will advocate on behalf of all of us long haulers who are still living with the condition, up to five years in.

[HelenWarrior @HelenArmToronto]

@gezmedinger Way to go Gez thank you!

[Todd Maderis, ND @dr_todd]

New research highlights promising next-generation mast cell stabilizers (ngMCS).

Unlike antihistamines that block only histamine, these compounds suppress the entire mast cell response—histamine, cytokines, proteases, and lipid mediators.

Using a novel data platform (PhAROS), researchers identified natural compounds with strong potential, including apigenin, quercetin, curcumin, resveratrol, EGCG, kaempferol, alpha-mangostin, and parthenolide.

These candidates may offer:

• Broader anti-inflammatory effects

• Better bioavailability

• Fewer side effects

• Hope for conditions like #MCAS, eczema, asthma, and allergies

Next-gen mast cell stabilizers could transform treatment for complex inflammatory and mast cell disorders.

Source: https://t.co/NQVnosSwmP

[HelenWarrior @HelenArmToronto]

@broadwaybabyto I have a much more nuanced perspective on this issue now that I have very debilitating long covid. I used to be so completely against this assisted dying but now I'm not so sure so try to show the Nuance please

[Michael R Scoma MD @DrMichaelScoma]

Administration of antibiotics and probiotics may exert serious unintended consequences in ME/CFS and LC as alterations of the gut microbiome amidst a backdrop of immune dysregulation, autonomic dysfunction, and a vulnerable gut-brain axis may precipitate clinical deterioration.

[HelenWarrior @HelenArmToronto]

@loscharlos Made my long covid worse, be careful!

[HelenWarrior @HelenArmToronto]

@royalhansen Where is he getting treatment? Good luck!