Helena_Solve_ME

ME/CFS patients need help. #ME/CFS
ME & POTS patient myself

[Michael Stingl @neurostingl]

Das ist ein wichtiger Punkt, den man nicht vergessen darf, wenn wieder das Narrativ der "aggressiven Bubble" beschworen wird.

[Helena_Solve_ME @Heresy101_]

@karlander_ Hunde wie üblich, die besten Freunde des Menschen oder flauschige Engel?

[Helena_Solve_ME @Heresy101_]

@iXeno @virginiahughes Well he was scubadiving and running 5ks while having Long Covid. So, cool story. https://t.co/CO00GB2A7h

[Dr Keith Geraghty @keithgeraghty]

Prof Garner in his own words, Sept 2020, he says dont try exercise - pace yourself, - then by November 2020 he took a diving holiday in the Caribbean during his Long-Covid, contracted Dengue fever at that time, returned to UK, and by Jan 2021 he writes in the @bmj_latest blog that it was brain retraining that helped him get better. https://t.co/GG2yBauvnL

[Helena_Solve_ME @Heresy101_]

@virginiahughes Thats the guy who went scuba diving while having Long Covid, right? https://t.co/CO00GB2A7h

[Dr Keith Geraghty @keithgeraghty]

Prof Garner in his own words, Sept 2020, he says dont try exercise - pace yourself, - then by November 2020 he took a diving holiday in the Caribbean during his Long-Covid, contracted Dengue fever at that time, returned to UK, and by Jan 2021 he writes in the @bmj_latest blog that it was brain retraining that helped him get better. https://t.co/GG2yBauvnL

[Arijit Chakravarty @arijitchakrav]

@AlanLevinovitz @WIRED What a bizarre piece of writing!

There are literally hundreds of basic science papers on the molecular mechanisms behind long covid- with concrete biological changes documented.

Given that you lack a medical & scientific background, what motivates you to write stuff like this?

[Helena_Solve_ME @Heresy101_]

@rolisz @internetuserf12 I worked on it, didn't help, didn't cure

[Helena_Solve_ME @Heresy101_]

@DrKrisEdward @hannahspierMD https://t.co/bEy698zmXH

[Helena_Solve_ME @Heresy101_]

@hannahspierMD I "moved forward" for the first 10 years of my illness, ignored bodily symptoms worked with psychiatrists, their approach didn't work, just got me worse. Awesome idea though, as if nobody would have thought of this before 👍

[Helena_Solve_ME @Heresy101_]

@moreisdifferent @hannahspierMD https://t.co/bEy698zmXH

[Helena_Solve_ME @Heresy101_]

@hannahspierMD I "moved forward" for the first 10 years of my illness, ignored bodily symptoms worked with psychiatrists, their approach didn't work, just got me worse. Awesome idea though, as if nobody would have thought of this before 👍

[Helena_Solve_ME @Heresy101_]

@hannahspierMD I "moved forward" for the first 10 years of my illness, ignored bodily symptoms worked with psychiatrists, their approach didn't work, just got me worse. Awesome idea though, as if nobody would have thought of this before 👍

[Helena_Solve_ME @Heresy101_]

@albertus3M @liamsLCjourney @hannahspierMD Surely not, didn't help me. Living bedridden now, cause I ignored symptoms and worked when I should have listened to my body. So this approach doesn't work for ME/CFS patients.

[Helena_Solve_ME @Heresy101_]

Die Paper der MedUni Wien: Spezialisierte
ME/CFS-Behandlungsstellen
Empfehlungen zu Struktur und Prozess https://t.co/vpZ1mjv6o6

[Helena_Solve_ME @Heresy101_]

Einerseits haben wir das durch die öffentliche Hand, eben eröffnete ME/CFS & Long Covid-Zentrum in Salzburg, welches nach dem wissenschaftlichen Standard der @MedUni_Wien diagnostiziert
und dann haben wir die Gutachter der PVA, die wonach beurteilen?
https://t.co/MPghNi8IQb

[Helena_Solve_ME @Heresy101_]

@Farbtastisch Ich hab da ein paar Vermutungen

[Karl @karlander_]

Falsche Unterlagen

Long-Covid-Patient klagt die Pensionsversicherung
https://t.co/gc6UUTK2LD

[Helena_Solve_ME @Heresy101_]

@karlander_ Bravo @MarkusFeiertag, drück die Daumen für dich, für euch und alle Betroffenen.

[Megan Stevenson @MeganTStevenson]

Turns out I was featured in this very dumb article about long covid. And the guy lives in my small town and didn’t even reach out to ask for my perspective! Just sent him this email.

[Julia Marie @julia_doubleday]

@AlanLevinovitz Can you imagine having any other illness- MS, cancer, a severe autoimmune disease, and a reporter writing a long form article about how that illness is “totally real” but they interviewed a guy who says he was cured by envisioning himself getting better so maybe that will work

[Magister Eulenspiegel @frahmeworks]

In Yale infizieren Sie Mäuse mit Long Covid. In Deutschland der DGNB: Long Covid gibt es nicht. Ganz einfach. Willkommen in der postfaktischen Welt.

[Helena_Solve_ME @Heresy101_]

@TheVertlartnic 😂👌

[Helena_Solve_ME @Heresy101_]

@gabrielestroeck Ja aber leider fühlt sich es eher an wie ein Tropfen auf dem heißen Stein ...