HowBigBWS

Raising awareness for Beckwith-Wiedemann Syndrome. A global movement of people wanting to save lives.

[HowBigBWS @HowBigBWS]

We care about rare! 1 in 11,000 babies are born with Beckwith Wiedemann Syndrome. Recognizing the symptoms and getting a diagnosis is crucial for #childhoodcancer detection. #rarediseaseday #howbigbws… https://t.co/pSbZ1YLpNx

[Alex's Lemonade Stand Foundation @AlexsLemonade]

Help fight childhood cancer, one selfie at a time! Stop by your local Volvo Cars dealership, take a selfie and post your photo with the hashtag #VolvoCarsforAlex. @VolvoCarUSA will donate $10 to #AlexsLemonade for every tagged selfie up to $5,000.

[HowBigBWS @HowBigBWS]

THREE DAYS LEFT to donate to #childhoodcancerresearch and have your donation DOUBLE matched by volvocarusa and @alexslemonade. Link in profile for the #beckwithwiedemannsyndrome fund. #morethan4 #gogold… https://t.co/qZCWLS4exs

[HowBigBWS @HowBigBWS]

We will donate $1 for every retweet and donation to our team through Sunday @AlexsLemonade and @volvocars will match donations too! #morethan4 #ChildhoodCancerAwarenessMonth https://t.co/90dDfNKvfO

[HowBigBWS @HowBigBWS]

#Repost compassionatelybri
・・・
Wow. Attending and speaking at the Deciphering Beckwith Weidemann Syndrome Conference was INCREDIBLE! Pictured in the first photo is Dr. Kalish who organized not only the conference… https://t.co/d9j2mPAGrG

[HowBigBWS @HowBigBWS]

Check out compassionatelybri who talks about self care and kindness and also happens to have #beckwithwiedemannspectrum

#howbigbws #beckwithwiedemannsyndrome
#selfcare #kindnessispowerful https://t.co/Me6UwzPTO1

[HowBigBWS @HowBigBWS]

@justinbaldoni 😂 = 🙏

[HowBigBWS @HowBigBWS]

@MsEdwina Thanks for sharing your story!

[HowBigBWS @HowBigBWS]

Are you counting down the days?

#howbigbws
#beckwithwiedemannsyndrome
#overgrowth
#macroglossia
#hemihypertrophy
#childhoodcancer
#macrosomia
#hypoglycemia… https://t.co/9cvxbYauCa

[HowBigBWS @HowBigBWS]

Your support of Alex's Lemonade Stand Foundation (ALSF) has made 2018 remarkable and hope-filled for children battling cancer. Whether you hosted a lemonade stand, attended one of our… https://t.co/7ZNzjcsnYP

[HowBigBWS @HowBigBWS]

@AlexsEvents

[HowBigBWS @HowBigBWS]

Still time to donate with matching: https://t.co/lRnGKEuHug

[Tricia Surles @surles923]

Thank you @FountainInn44! Lots of money raised for #ChildhoodCancerAwareness @AlexsLemonade @AlexsEvents @HowBigBWS

[HowBigBWS @HowBigBWS]

@VolvoCarUSA is matching donations through Sept 29th for #ChildhoodCancerAwareness #howbigbws #beckwithwiedemannsyndrome https://t.co/lRnGKEuHug @TheEllenShow @AlexsLemonade @TheBeastPennel @JZook1016 @xharrietx1991

[HowBigBWS @HowBigBWS]

https://t.co/yNwReSzbcZ

[Alex's Lemonade Stand Foundation @AlexsLemonade]

#DYK childhood cancer research is vastly and consistently underfunded? Now through the end of tomorrow, @VolvoCarUSA is matching all donations made to #MillionMile teams! Donate to a team and double your impact for kids fighting cancer at https://t.co/VfinqSXjuC. #goldstrong

[HowBigBWS @HowBigBWS]

@xharrietx1991 RT @JZook1016

[HowBigBWS @HowBigBWS]

Today is the last day of DOUBLE matching for #childhoodcancer research #beckwithwiedemannsyndrome https://t.co/lRnGKEuHug #gogold #morethan4

[HowBigBWS @HowBigBWS]

@TheEllenShow RT Today is the last day of DOUBLE matching for #childhoodcancer research #morethan4 #gogold

[HowBigBWS @HowBigBWS]

@TheBeastPennel Please RT!

[HowBigBWS @HowBigBWS]

@AlexsLemonade & @VolvoCarUSA will double match your BWS #Childhoodcancer Research dollars thru Sept 14 https://t.co/lRnGKEuHug #donatetoday #gogold #howbigbws

[HowBigBWS @HowBigBWS]

@AlexsLemonade & @VolvoCarUSA will double match your BWS #Childhoodcancer Research dollars thru Sept 14 https://t.co/lRnGKEuHug #donatetoday #gogold #howbigbws