Ya Hui Hung

#NiemannPickC | #ChildhoodDementia | #RareDisease | #mRNAtherapeutics |
researcher @TheFlorey.
Views are my own.

[The Florey @TheFlorey]

Today is Niemann-Pick Disease Awareness Day, a time to support those affected by conditions such as Niemann-Pick Disease Type C (NP-C).

Supported by @NiemannPickOz, Dr @HungYaHui's team is working on an innovative mRNA gene therapy for NP-C.

Learn more: https://t.co/CxnMxqqLug

[The Florey @TheFlorey]

In honour of Niemann-Pick Disease Awareness Day, we spoke with Mandy Whitechurch, Founder of @NiemannPickOz Foundation and mother of Timothy and Matthew.

With volunteers and families, @NiemannPickOz supports our research into a new gene therapy for NP-C: https://t.co/tx0je7i3Id

[Ya Hui Hung @HungYaHui]

@TheFlorey, my team and I are joining @Child_Dementia to #FACEit, to raise Childhood Dementia Awareness and help to make a difference through our research for effective treatments.

Learn more 👉 https://t.co/PWHnPP5dVv

[Ya Hui Hung @HungYaHui]

Emotions like Joy, Sadness, Anger, Anxiety, Fear, and Disgust, all contribute to the creation of memories. 

For those living with childhood dementia, these emotions and memories slip away. They become confused and disoriented. 

#ChildhoodDementiaAwarenessDay #ChildhoodDementia

[The Florey @TheFlorey]

We are grateful to the Australian NPC Disease Foundation (@niemannpickoz) for supporting our research at The Florey to improve the health and wellbeing of those living with NP-C.

Learn more: https://t.co/CxnMxqrjjO

#TheFlorey #impact #neuroscience #NiemannPickC
@HungYaHui

[The Florey @TheFlorey]

It's an honour to take part in the 2024 NPC Conference held by the Australian NPC Disease Foundation this week, with Dr @HungYaHui from The Florey presenting her team's research in developing an effective mRNA gene therapy for #NiemannPickC.

[The Florey @TheFlorey]

It's great to see our partners from the Australian NPC Disease Foundation (@NiemannPickOz) featured in the Herald Sun this morning.

Thank you @NiemannPickOz for supporting Florey's research to help Noah and other children with NPC disease.

Read here: https://t.co/TwfE2LXBKH

[Associate Professor Samantha Loi, MD, PhD @Doctor_Samba]

Please join us for this important event #YOD

[The Florey @TheFlorey]

This International Women's Day, hear from some of our Florey scientists who have shared their perspectives and stories being women in science.

Read the story in full: https://t.co/5AefjuWZU8

#TheFlorey #IWD2024 #InspireInclusion

[Ya Hui Hung @HungYaHui]

Today is 29th February - a day that occurs only every 1,461 days. A rare day, making it is extra special to celebrate #RareDiseaseDay today to raise awareness and support for 300 million people living with a #RareDisease.

Learn more about our rare disease research @TheFlorey 👇

[The Florey @TheFlorey]

Today is Rare Disease Day.

At The Florey we are working on some of the most devastating rare diseases. Rare diseases affect 1 in 2,000 people, meaning those who have a rare disease often can feel alone 1/3

[Childhood Dementia Initiative @Child_Dementia]

We love Renee's intro to her kids. She's one of the parents raising awareness to create change. Sadly, Hudson, Holly and Austin all have #childhooddementia caused by Niemann-Pick disease type C. You can see Renee’s full interview here: https://t.co/4mytglSMoN

[Genetic Alliance AU @GeneticAll_AU]

Promoting understanding and offering support, the @NiemannPickOz is dedicated to improving lives affected by Niemann-Pick disease. Learn more on their website: https://t.co/IfkxS1983p
.
#RareDiseaseDay2024 #LightUpForRare #ShareYourColours #RareDiseaseDay #raredisease

[Kirsten Johnson, FRSA @DrKirstenJ]

Very pleased to see the launch of this short comedy/drama on the importance of increasing the number of conditions included in newborn heelprick tests - please watch and share!
@fragilexuk @M4RareDiseases @GeneticAll_UK @camraredisease #rareconditions
https://t.co/k6EU2w2Fl9

[Will Evans @willrhevans]

What are Lysosomal Storage Diseases? https://t.co/8qzBj7TDi4 via @YouTube

Neat intro video from a collab with Platt lab team @PharmOxford @NiemannPickUK

[Ya Hui Hung @HungYaHui]

@kariisssaaa Congratulations!

[Ya Hui Hung @HungYaHui]

Today is the Global #NiemannPickDisease Awareness Day. If you have not heard of Niemann-Pick Disease, learn more about this rare and devastating condition and how you can help to support the #NiemannPick community 👉 https://t.co/rWEWxf0StQ

[Ya Hui Hung @HungYaHui]

It's #ChildhoodDementia Day today! My team at @theflorey is helping to raise Childhood Dementia awareness by putting stickers on our faces to #FACEit. Learn more 👉 @Child_Dementia
https://t.co/jTR0pV5NwA

[Ya Hui Hung @HungYaHui]

More details about the Lysosomal Disease Summit can be found here: https://t.co/fLvtoMcKKw

[Ya Hui Hung @HungYaHui]

Join me at the #LysosomalDisease Summit in Melbourne, 27-29 October 2023. There are student scholarships available, sponsored by @FabryAustralia. Apply here: https://t.co/rsGvLl5K8D Deadline has been extended to 22 September, 2023.

[Ya Hui Hung @HungYaHui]

@AshenafiBetrie @EamonnDickson @NatureComms Congratulations @EamonnDickson!