The Inflammatory Breast Cancer Network UK

Raise awareness of Inflammatory Breast Cancer (IBC)
Promote and fund IBC research in the UK
Support IBC patients and their families
@ibcnetworkuk.bsky.social

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

Curious to know how our charity was formed and what we do ? Take a look at our video and contact us for more information on how we offer support and fund IBC research 🧡https://t.co/Gu6wDggvSi

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@RE_McGEE @RE_McGEE This is fantastic, thank you so much to all your supporters and most importantly.... HAPPY BIRTHDAY!!! 🎂🥳🎉

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@DrScottArthurMP Please also include The Inflammatory Breast Cancer Network UK in this list. 2% of breast cancers diagnosed in the UK are IBC but we account for 10% of all breast cancer deaths. We are a volunteer-led and the only charity funding IBC research in the UK #HopeAlways

[Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @DrScottArthurMP]

Confirmed, the following charities are supporting my Rare Cancers Bill.

Angel Mums
Braid Tumour Charity
Brain Tumour Research
Pancreatic Cancer UK
Less Survivable Cancers Taskforce
Cancer52
Grace Kelly Childhood Cancer Trust
Target Ovarian Cancer
brainstrust
AMMF – The Cholangiocarcinoma Charity
The Urology Foundation
Action Kidney Cancer
Sarcoma UK
Maggie’s
Blood Cancer UK
Shine Cancer Support
Solving Kids Cancer
British Liver Trust
Radiotherapy UK
Leukeamia UK,
CCLG – The Children's Cancer and Leukaemia Group (CCLG)
CLL Support
Neuroblastoma UK
Neuroendocrine Cancer UK
Melanoma Focus
Myeloma UK
The Eve Appeal
Hope for Tomorrow - hopefor
Alike
Yorkshire Cancer Research
Young Lives vs Cancer

[METUPUK @METUPUKorg]

Secondaries On The 2nd.

We want you to know about the signs and symptoms of #MetastaticBreastCancer so we are sharing our infographics that highlight what you should be aware of if you have had a primary breast cancer diagnosis.

These infographics are signposted by NHS England and used worldwide. They are translated into 12 languages.

We know that it can be hard to even think about a recurrence and MBC, but knowledge is power, and if you have any of these symptoms please speak to your medical team. Advocating for yourself is the most important thing you can do for yourself.

As we are focusing on awareness one of METUPUK's key aims, we'd be interested to start seeing your stories on how your #secondarybreastcancer was diagnosed and what signs you think people ought to be looking for.

Use the #2ndsonthe2nd and we'll share your posts.

Here's the link to the infographics https://t.co/BYIlnQqrTX

#METUPUK #DarkerPink #BusyLivingWithMets #IAmThe31 #waitingroomfeet #BreastCancer #BreastCancerCommunity #BreastCancerJourney #BreastCancerSupport #DyingForACure #EarlyDetectionSavesLives #MetastaticBreastCancerAwareness #SecondaryBreastCancer #SecondarySisters #Stage4NeedsMore #StageIVNeedsMore #AdvancedBreastCancer

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@BreastCancerNow @Liz_ORiordan Thank you @Liz_ORiordan for sharing information about symptoms other than lumps. Signs of #InflammatoryBreastCancer can be very subtle. Skin, size and colour changes are most often seen

[Naoto T Ueno, MD, PhD @teamoncology]

I am happy that we have been funded to understand the impact of race and ethnicity on Inflammatory Breast Cancer (IBC) by dissecting the tumor microenvironment from @NIH @theNCI. Excited that we can contribute to understanding why Native Hawaiians have a high incidence of IBC.

[Sara Bonnell 🇺🇦 @Sarajbonnell]

Please join me in #WearItOrange today for #inflammatorybreastcancer awareness. We have chosen orange because one of the symptoms of this rare and aggressive breast cancer is peau d'orange, where the skin on your breast is dimpled like orange peel.

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@RCGPAC Today we are wearing it orange to raise awareness of the symptoms of inflammatory breast cancer. 🍊 Stop by and say hi! 🧡 Booth J20 #RCGPAC #rcgpac2024 #BCAW #InflammatoryBreastCancer #OrangeInThePink #WearItOrange #HopeAlways

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@RCGPAC We’ve had a super first day, many excellent conversations about #InflammatoryBreastCancer
We are the breast cancer few patients have heard about, you may never see a case in your career. Come along to J20 to learn more (and we have chocolate!) 🍊 #RCGPAC24 #HopeAlways

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@FourteenFish @RCGPAC We are really excited to collaborate with you on an inflammatory breast cancer specific learning module. Thanks for stopping by our booth!

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@IamToyinRoberts @RCGPAC Toyin, come and see us on the exhibition floor tomorrow. Booth J20… we have chocolate! (and also lots of helpful information about inflammatory breast cancer)

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@ThanksCancer Head on over to our Insta for much less… pink!

Skin changes is a common symptom of inflammatory breast cancer, like orange peel (peau d’orange) 🍊
Mostly affecting younger patients, swelling misdiagnosed as mastitis and often there is no lump

https://t.co/qhylB7MLOW

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@MartinHGames If you’re minded towards a cancer cause, please consider the smaller, less well known ones or local hospice as an alternative.
Our charity is entirely voluntary and 97 pence of every £1 donated goes directly to fund research (the other 3p covers operational costs)
#HopeAlways

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

Bookmark this for an inspiring lunch break read - https://t.co/wEr0jAtD5o
Thank you to our supporters, fundraisers and volunteers for everything you do!
#HopeAlways

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@ohyouresotough Thank you for everything you do ❤️🎉
Wishing you a joyful birthday from the UK! 🎂🥳

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

A potential opportunity for inflammatory breast cancer patients employed during cancer treatment in the UK #inflammatorybreastcancer #workingwithcancer

[Leah Hardy 🇺🇦 @LeahFHardy]

Am writing an article about what it's like working with cancer. I'm specifically looking to interview someone who was employed during cancer treatment (not self-employed/an entrepreneur). Can anyone help please?

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@dannywallace Dear Danny,
If you do do it, would you consider our charity as the beneficiary. Fewer than 2% of all breast cancers are inflammatory breast cancer, but we account for more than 20% of all breast cancer deaths.
Thanks ever so much,
The IBC Network UK
p.s. Yes, we said do do 🧡

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@NCVO #loveyoursmallcharity
Fewer than 2% of all breast cancers diagnosed in the UK are #InflammatoryBreastCancer, but #IBC accounts for almost 10% of all breast cancer deaths. We are a volunteer-led charity working to change these devastating statistics
#NoLumpStillCancer #HopeAlways

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

@kate_rackham Sending love to Mark, your girls and your family ❤️‍🩹
We will keep advocating and connecting, see you down the beautiful road x

[The Inflammatory Breast Cancer Network UK @IBCNetworkUK]

A fantastic day for our devoted fundraising crew to complete their ultra challenge. More power to their footsteps! Follow along on Insta🤩 https://t.co/ozbaCaez1N

[Royal College of Midwives 💙 @MidwivesRCM]

Hello Liverpool!#RCMConf24