Imke

Plant based food enthusiast, knitter, cat mom, INFJ, #pwLC

[Adam @adamgreattweet]

posting this for no particular reason today

[Imke @Imkilein]

@thisistheillme 🙋‍♀️🎄

[Brian Fog @useless_priest]

I've set up a birthday fundraiser for Long COVID!

All funds will go towards Patient-Led Research Collaborative.

I'd appreciate it if you could share widely 🙂🙏👇

[Imke @Imkilein]

@useless_priest Thanks for putting this into words 🙏🏼

[Brian Fog @useless_priest]

Everything is on the patient. Everything. Finding out how the illness works. Finding out you need to pace (despite what you're told). Deciding how to much risk to take with infection. Finding out how to mitigate infection. Deciding how much risk to take with treatment.

[Brian Fog @useless_priest]

Mild: “you look great actually”
Moderate: “you’ll get better dw”
Severe: “oh maybe you should kill ys”

Okay but at some point we should look at prevention and treatment right?

#LongCOVID #MyalgicEncephalomyelitis

[Rien de Böck @riendebock]

Lees dit opiniestuk van @thisistheillme
en Eva Meijer over de ellende die gebeurt bij UWV keuringen van mensen met Long Covid of een andere PAIS 👇
https://t.co/7fXC2TU8de

[Karl @karlander_]

Chronisch krank, aber niemand glaubt dir
Long Covid & #MECFS: Probier’s doch mal mit Tee
https://t.co/hHvW666V2b

[BRIGITTE @brigitteonline]

In Deutschland hat sich die Zahl der ME/CFS-Betroffenen durch die COVID-19-Pandemie von ungefähr 250.000 auf 500.000 verdoppelt. Wie es sich anfühlt, wenn das Leben an einem vorbeizieht, erzählen vier Patientinnen im Interview mit BRIGITTE.  https://t.co/rN28nrCkb8

[Imke @Imkilein]

@thisistheillme Could I possibly also dm you about this? I’m in the same situation 🫠

[tern @1goodtern]

Ten things you can say instead of "during covid"

[Fen, MD @FvRhijn]

YES, this. There are lots of quacks who try to fill the therapeutic void, some even on the verge of what's legal.
It is beyond time for MDs to step up, read the literature and start offering what's available to LC pts. There is so much we can do and we're not doing it. 🧵

[Idealist @Miertje39335725]

Soms zegt een plaatje meer dan duizend woorden 🫣

[Imke @Imkilein]

@thisistheillme It’s been so hard to rest properly with this weather! I just want to go outside and live life 🙃

[Guus @guustweet]

thank you. #pwME

#MEAwarenessDay

[Imke @Imkilein]

@guustweet An LC friend and I were just talking about the exact same thing -.-

[Guus @guustweet]

‘veel longcovidovidpatiënten bezitten geen tractor, dus waarom zou je.’ #LongCovid

[Imke @Imkilein]

@thisistheillme Hope it works for you 🤞🏼

[Brian Fog @useless_priest]

34yo healthy person: “My fiancée and I went to Porto on a pre-honeymoon”

34yo LC patient: “I used my clothes washing physical energy budget so I could go down to the park today and be amongst people.”

[Guus @guustweet]

We are in year 4 of #LongCovid. Still no end in sight. The illness is brutal. It’s rips you out of your life. We need prevention. We need research. We need treatment. We need care - We need you to care.
#LongCovidAwarenessDay
#NotRecovered #NietHersteld

🧵👇🏻