INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP)

INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP

[Paperbirds_Oncology @PaperbirdsO]

New article: Sustained complete response on crizotinib in primary lung inflammatory myofibroblastic tumor - Case report and literature review https://t.co/mqRKEnqRQy #lungcancer #oncology

[Dr Sameer Rastogi @samdoc_mamc]

Immune Checkpoint Inhibitors in Alveolar Soft Part Sarcoma: New Standard of Care? https://t.co/PzqsiW8ovU
Excellent response to #nivolumab in metasatic #asps. 18 months and still on.. #immunotherapy #sarcoma ..thanks @abhenilmittal

[Dr Sameer Rastogi @samdoc_mamc]

Our paper showing excellent response to #Erlotinib in #EGFR expressing met #Chordoma . More than 18m and still going on. #chordoma #sarcoma @ChordomaFDN @ChordomaUK @Chordoma @CanChordomaNet @SilviaStacchia @RashiKapoor17 Thanks @SauraVermaMD and team! https://t.co/s8EUsbT15o

[Dr Sameer Rastogi @samdoc_mamc]

https://t.co/lbFfCgoCiL
Our report in Clinical Sarcoma Research. #Kaposiform hemangioendothelioma #KFHE. Complete Response to #propanolol and #steroids. thanks Dr Saurav! #hemangioendotheliomas #rare cancers @BioMedCentral @SN_Oncology #sarcoma @RashiKapoor17 @ThePksinha

[Dr Sameer Rastogi @samdoc_mamc]

https://t.co/iIMg9Dj60D
Our report of immunotherapy and tki combination in UPS in Clinical Sarcoma Research..excellent and sustained response #sarcoma #immunotherapy@RashiKapoor17 @MitalRekha @sorunshishak @SachinSarcoma @sarcomapatients @Melissa8Burgess @BioMedCentral

[Dr Sameer Rastogi @samdoc_mamc]

Role of 18F-FDG PET/computed tomography in prognostication... : Nuclear Medicine Communications https://t.co/FSdhCkPJAq @RashiKapoor17 @SachinSarcoma @MitalRekha @sorunshishak
Excellent paper from #AIIMS Nuclear Medicine#sarcoma#MPNST#PET CT..Thanks Dr Shamim!

[Dr Sameer Rastogi @samdoc_mamc]

Rare cancers in India: A road less travelled Darling H S, Rastogi S - Indian J Cancer https://t.co/yxX2b2IVJ4
#rare cancers #India #sarcoma #GIST #NET
@RashiKapoor17 @InetTumor @sorunshishak @MitalRekha @srothschild

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

@samdoc_mamc @SachinSarcoma @srothschild @GISTSupportUK @ContactgrpGIST @JTrentMDPhD @Liferaftgroup @GistColombia @BlueprintMeds @ctosociety @vijivenkatesh @Friends_Of_Max @ThePksinha Great to have #GIST awareness in our country. Hats off to Sachin Sarcoma Society and AIIMS Sarcoma and GIST clinic! We need more experts urgently !!

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

#Neuroendocrine #NET pt support group meeting with @samdoc_mamc yesterday
Few Qs
Q1- How important the grade is?
Q2- Functional vs non functional tumor
Q3- Its so rare that we can't find anyone with whom we can share our experiences
@netpatientfound @CureNETs @netcancerday

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

Good scientific content for #desmoid #fibromatosis patients and doctors. Role of #tamoxifen really doubtful and in fact there might be some concerning toxicities.

[Rashi Kapoor @RashiKapoor17]

Amazing scientific #presentation
by @samdoc_mamc on #desmoidtumors @Fibromatosis
#benigntumor @SachinSarcoma
@DesmoidI @DTRFoundation
@desmoidcanada @sarcomapatients
@artijai86661937
@lakshayluv1234
@sorunshishak
@ashishrana25

https://t.co/i909XGS7bm

[Dr Sameer Rastogi @samdoc_mamc]

Please see @RashiKapoor17 @lakshayluv1234 @artijai86661937 @ThePksinha @ajumathew_ @SachinSarcoma @sorunshishak @Kamal_Raj_Soti @InetTumor
Why we need survivors to be involved in research..

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

The most common question that a #Neuroendocrine tumor Doctor is confronted with - How long will Octreotide go on? Any Idea Doc?@InetTumor @CureNETs @netpatientfound @netcancerday @sorunshishak @samdoc_mamc @ThePksinha .. Doctor thinks about PROMID and CLARINET!

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

type 1 Gastric #carcinoid in the Gallium 68 DOTANOC scan! #NET
@samdoc_mamc @sorunshishak @rashikapor @ThePksinha
Gastrin >900 and anti parietel cell antibody present .. #Treatment Endoscopic surgery

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

#neurendocrine tumors #NET .. Better life @sorunshishak @samdoc_mamc @rashikapor

[Neuroendocrine Cancer Research Foundation @CureNETs]

The experience of NETs profoundly changes people’s lives. Fatigue, isolation, worry, and bothersome physical side effects can disrupt daily activities. Here are some simple steps to maintain optimal health and balance during and after cancer care. https://t.co/HFGsPLSmPH

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

@sugandhadureja @adarsh1474 @CNETSIndia Thanks for letting us know. Can you tell us whom should we contact. @rashikapor @samdoc_mamc
Our support group has begun with the immense help of Mr Manish Jain (caregiver for person with Neuroendocrine tumor). You can mail us at [email protected] (Dr Sameer Rastogi)

[Dr Sameer Rastogi @samdoc_mamc]

https://t.co/u9TRiJyyJT
#angiosarcoma #post olaratumab again failure in #sarcomas. Hope lies with #propanolol and #immunotherapies for angiosarcoma

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

https://t.co/Et1EB9ki8y
Excellent study @samdoc_mamc @RashiKapoor17
This study shows the high level of depression, anxiety and fatigue in patients with #NET

[INET (INDIA NEUROENDOCRINE TUMOR SUPPORT GROUP) @InetTumor]

@adarsh1474 @CDC_Cancer @sugandhadureja @netpatientfound @drdineshias INET is neuroendocrine support group from India. Please join us so that we can deal with these issues. Rare diseases are very often ignored ..