Just got extensive genetic testing back: no major genetic indications of connective tissue disorders like EDS, and no major inherited neurological, endocrine, cardiovascular, musculoskeletal, or cancer-related genetic abnormalities. Overall, the results suggest strong baseline genetic health.
Yet after finasteride exposure, I developed severe loose skin, joint issues, muscle loss, lipoatrophy, profound cognitive dysfunction, and dozens of other symptoms. My genome showed no major findings suggesting a clear predisposition to this kind of multisystem collapse.
Prior to this, I was a young, athletic, ambitious, high-functioning natural bodybuilder and Army NCO, not someone showing signs of a progressive genetic disorder.
There's likely more to the picture, which is exactly why more research into post-drug syndromes like PFS is urgently needed. Something is clearly happening biologically, occurring at a level that even extensive conventional testing cannot fully capture.
I know there are many others like me. It's ridiculous that clear post-drug physiological decline continues to be dismissed as “pre-existing issues” or nocebo.
https://t.co/uS2oAVRXRz
I Lost My Youth to Post-Finasteride Syndrome | A College Professor's 14-Year Story:
Another warrior has stepped forward to share his experience with Post-Finasteride Syndrome (PFS).
Lucas, a 37-year-old college professor from Brazil, was prescribed finasteride at just 18 years old for hair loss. What followed was a profound and life-altering change.
He describes developing sexual dysfunction, emotional blunting, fatigue, muscle loss, speech difficulties, cognitive impairment, and a growing sense that he was losing touch with the person he once was.
After living with persistent symptoms for years, Lucas experienced a severe crash 12 years after discontinuing finasteride, resulting in significant neurological and motor impairment that made even basic daily tasks difficult.
Lucas speaks powerfully about the psychological toll of living with persistent symptoms for 14 years — grieving lost time, lost opportunities, and the loss of the future he once imagined.
Despite repeatedly seeking help, he received little validation and was left searching for answers largely on his own.
Thank you for your courage in speaking out and helping bring awareness to this issue, Lucas.
Subscribe, comment, and share to help break the silence.
📩 Share your story: [email protected]
(1/2) We just received a response to a freedom of information request made the @US_FDA. The FDA Adverse Event Reporting System (FAERS) had 246 cases of “post 5-alpha-reductase inhibitor syndrome” under the MedDRA code 10082430 as of June 3, 2026. 15 cases resulted in fatalities.
This is Jalan Lotfolahpour.
1998 - 2025
Jalan was described as an exceptionally intelligent and gifted young man with a passion for mathematics, philosophy, languages, music, and learning. He spoke multiple languages, played the piano and saxophone, excelled in handball and kung fu, and earned a prestigious academic scholarship while studying mathematics and philosophy at Goethe University in Frankfurt, Germany.
At just 18 years old, Jalan began taking Finasteride for hair loss.
According to medical records and correspondence shared by his family, what followed was years of severe and relentless suffering that included extreme fatigue, insomnia, depression, anxiety, brain fog, headaches, tremors, suicidal thoughts, restless legs syndrome, lack of motivation, reduced psychomotor activity, and an increasing inability to function normally.
A young man who once excelled academically and had an incredibly bright future ahead of him suddenly found himself struggling to sleep, think clearly, continue his studies, and make it through daily life.
As his condition worsened, Jalan repeatedly stated that he believed Finasteride had caused what was happening to him. He spent years desperately searching for answers and help from the medical system.
“I’m a 20 year old student from Frankfurt who’s been suffering from PFS for at least two years now… In the end, I couldn’t find any doctor willing to help me.”
“I’m desperate.”
Over the years, Jalan reportedly saw numerous doctors and specialists including neurologists, endocrinologists, psychiatrists, pulmonologists, urologists, and internists. In December 2019, Dr. Uwe Holler formally diagnosed him with Post Finasteride Syndrome (PFS), writing in his medical notes that Jalan “has what is known as post-finasteride syndrome.”
Despite this diagnosis, Jalan remained trapped in a situation with no established treatment and little meaningful help available despite the severity of his suffering.
According to his mother, Jalan had no prior history of depression or chronic medical illness before taking Finasteride.
Over time, his condition reportedly continued to deteriorate as he struggled academically, developed worsening neurological and psychiatric symptoms, and became increasingly unable to function normally.
On February 23rd, 2025, Jalan Lotfolahpour was found dead on a bench in Frankfurt, Germany after years of documented suffering.
He was just 26 years old.
Stories like Jalan’s are why people continue speaking out about Post Finasteride Syndrome and the devastating impact these medications can have on some individuals.
The full story can be found on the PFS Foundation website under: “The Morgue of Public Opinion”
1998 - 2025
This is Jalan Lotfolahpour.
1998 - 2025
Jalan was described as an exceptionally intelligent and gifted young man with a passion for mathematics, philosophy, languages, music, and learning. He spoke multiple languages, played the piano and saxophone, excelled in handball and kung fu, and earned a prestigious academic scholarship while studying mathematics and philosophy at Goethe University in Frankfurt, Germany.
At just 18 years old, Jalan began taking Finasteride for hair loss.
According to medical records and correspondence shared by his family, what followed was years of severe and relentless suffering that included extreme fatigue, insomnia, depression, anxiety, brain fog, headaches, tremors, suicidal thoughts, restless legs syndrome, lack of motivation, reduced psychomotor activity, and an increasing inability to function normally.
A young man who once excelled academically and had an incredibly bright future ahead of him suddenly found himself struggling to sleep, think clearly, continue his studies, and make it through daily life.
As his condition worsened, Jalan repeatedly stated that he believed Finasteride had caused what was happening to him. He spent years desperately searching for answers and help from the medical system.
“I’m a 20 year old student from Frankfurt who’s been suffering from PFS for at least two years now… In the end, I couldn’t find any doctor willing to help me.”
“I’m desperate.”
Over the years, Jalan reportedly saw numerous doctors and specialists including neurologists, endocrinologists, psychiatrists, pulmonologists, urologists, and internists. In December 2019, Dr. Uwe Holler formally diagnosed him with Post Finasteride Syndrome (PFS), writing in his medical notes that Jalan “has what is known as post-finasteride syndrome.”
Despite this diagnosis, Jalan remained trapped in a situation with no established treatment and little meaningful help available despite the severity of his suffering.
According to his mother, Jalan had no prior history of depression or chronic medical illness before taking Finasteride.
Over time, his condition reportedly continued to deteriorate as he struggled academically, developed worsening neurological and psychiatric symptoms, and became increasingly unable to function normally.
On February 23rd, 2025, Jalan Lotfolahpour was found dead on a bench in Frankfurt, Germany after years of documented suffering.
He was just 26 years old.
Stories like Jalan’s are why people continue speaking out about Post Finasteride Syndrome and the devastating impact these medications can have on some individuals.
The full story can be found on the PFS Foundation website under: “The Morgue of Public Opinion”
1998 - 2025
@Jacobwallace818@MaaKor7@EternalGlo83887@Clav0Updates People who defend finasteride tooth and nail are the spitting image of who they project PFS sufferers to be. The drug is more dangerous than the masses realize, they should be informed before they do these SOLELY for the sake of vanity.
We need better informed consent and more thoughtful use of these drugs that can lead to enduring sexual, physical, and emotional dysfunction after stopping the drug. #PSSD, #PFS, #PAS. @CorewellHealth@BeaumontUrology
https://t.co/WpbPPXvksg